At a glance
The HTC Population Profile (HTC PP) Data Reports provide demographic information from people who have different bleeding disorders and participate in the HTC PP. The purpose of the HTC PP Data Reports is to make available the information collected through the Community Counts project to care providers and researchers in the bleeding disorders community.
HTC Population Profile Data Reports
The HTC Population Profile (HTC PP) is a set of 12 data items collected on patients with bleeding disorders or venous thromboembolism. Data tables in the reports are categorized by annual patient characteristics, factor VIII (8) & factor IX (9), von Willebrand disease, rare factor deficiencies, and, beginning with the March 31, 2017, report, platelet disorders and other disorders.
The purpose of the HTC PP Data Reports is to make available the information collected through the Community Counts project to care providers and researchers in the bleeding disorders community.
The HTC PP Reports are published twice per year, with data through March 31 and September 29. The reports include the following information about HTC PP participants:
Diagnoses
- Factor VIII & factor IX
- Von Willebrand Disease
- Rare factor deficiencies
- Platelet disorders
- Other disorders (for example, venous thromboembolism, blood coagulation disorder without specific diagnosis)
Demographics
- Age
- Sex
- Ethnicity
- Race
- Insurance status
- History of hepatitis C virus (HCV) infection
- History of human immunodeficiency virus (HIV) infection
Recent reports are available at the links below.
- Community Counts: The HTC Population Profile Data through March 2023
- Community Counts: The HTC Population Profile Data through September 2022
- Community Counts: The HTC Population Profile Data through March 2022
Older reports (2017 and earlier) are available by searching the CDC Stacks.