The National Amyotrophic Lateral Sclerosis (ALS) Registry

Key points

Outlines how the National ALS Registry was created

Affiliates

Vinicius C. Antao1, D. Kevin Horton1

  1. Agency for Toxic Substances and Disease Registry and Centers for Disease Control and Prevention

Journal

Journal of Environmental Health

Summary

This paper outlines how the National ALS Registry was created, describing the four previously run pilot projects, the adopted two-prong approach, and the Registry’s next steps, including the construction of a biorepository.

Link to Paper

Find the paper here!