Health Insurance Coverage

The majority of male Registry participants with hemophilia had private insurance (53% for both hemophilia A and B). Thirty-nine percent of males had public insurance (40% hemophilia A; 36% hemophilia B). Additionally, 4% of males with hemophilia A or B were covered by some other form of health insurance and 3% were uninsured (2% hemophilia A; 7% hemophilia B) (Figure 8). Private insurance includes commercial insurance and military insurance. Public insurance includes Medicaid, Medicare, state programs, and Indian Health Services.

Figure 8. Distribution of male Registry participants with hemophilia, by insurance and hemophilia type
Figure 8. Distribution of male Registry participants with hemophilia, by insurance and hemophilia type

Figure 8. Distribution of male Registry participants with hemophilia, by insurance and hemophilia type
All Hemophilia A Hemophilia B
Private 4,890 53.3% 3,886 53.4% 1,004 52.9%
Public 3,576 39.0% 2,897 39.8% 679 35.8%
Insured Other 378 4.1% 308 4.2% 70 3.7%
Uninsured 275 3.0% 138 1.9% 137 7.2%
Unknown 54 0.6% 47 0.7% 7 0.4%

Health Insurance Coverage by Age

Both private and public health insurance are utilized as the primary form of insurance among male hemophilia participants in the Registry < 2 years of age (52% and 45%, respectively, for hemophilia A and 48% and 45%, respectively, for hemophilia B) and 2–10 years of age (47% and 49%, respectively, for hemophilia A and 48% and 46%, respectively, for hemophilia B). More than 55% of male Registry participants (both hemophilia A and B) between 11 and 64 years of age were using private insurance. In contrast, among Registry participants 65 years of age or older, 73% of hemophilia A participants and 76% of hemophilia B participants were using public insurance (Figures 9 and 10).

Figure 9. Distribution of male Registry participants with hemophilia A, by primary insurance and age group
Figure 9. Distribution of male Registry participants with hemophilia A, by primary insurance and age group

Figure 9. Distribution of male Registry participants with hemophilia A, by primary insurance and age group
Private Public Insured Other Uninsured Unknown
<2 years 150 51.7% 129 44.5% * * * * 6 2.1%
2–10 years 814 46.7% 862 49.4% 47 2.7% 11 0.6% 10 0.6%
11–19 years 961 54.6% 694 39.4% 80 4.5% 19 1.1% 6 0.4%
20–44 years 1402 59.6% 716 30.4% 128 5.4% 85 3.6% 21 1.0%
45–64 years 505 57.5% 313 35.6% 38 4.3% * * * *
65+ years 54 21.5% 183 72.9% * * * * * *

* Counts less than six have been suppressed to protect patient confidentiality

Figure 10. Distribution of male Registry participants with hemophilia B, by primary insurance and age group
Figure 10. Distribution of male Registry participants with hemophilia B, by primary insurance and age group

Figure 10. Distribution of male Registry participants with hemophilia B, by primary insurance and age group
Private Public Insured Other Uninsured Unknown
<2 years 38 47.5% 36 45.0% * * * * * *
2–10 years 187 47.5% 181 45.9% 6 1.5% * * * *
11–19 years 258 58.2% 144 32.5% 13 2.9% * * * *
20–44 years 329 58.0% 144 25.4% 29 5.1% * * * *
45–64 years 175 55.6% 100 31.7% 19 6.0% * * * *
65+ years 17 17.3% 74 75.5% * * * * * *

* Counts less than six have been suppressed to protect patient confidentiality