von Willebrand Disease (VWD)

Table 3. HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD), data reported from 1/1/2012 through 09/29/2018

HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD)
VWD (n=20107)
Type 1 Type 2 Type 3 Type other and Type unknown
# (%) # (%) # (%) # (%)
# of patients 15765 (100) 2354 (100) 421 (100) 1567 (100)
Age (years) <2 141 (1) 37 (2) 9 (2) 41 (3)
2-10 3328 (21) 470 (20) 71 (17) 376 (24)
11-19 6575 (42) 666 (28) 77 (18) 532 (34)
20-44 3990 (25) 653 (28) 159 (38) 362 (23)
45-64 1266 (8) 317 (13) 80 (19) 151 (10)
65+ 465 (3) 211 (9) 25 (6) 105 (7)
Sex Male 5432 (34) 984 (42) 206 (49) 534 (34)
Female 10333 (66) 1370 (58) 215 (51) 1033 (66)
Ethnicity Hispanic, Latino/a, or Spanish origin 2562 (16) 296 (13) 33 (8) 255 (16)
Not Hispanic, Latino/a, or Spanish origin 12963 (82) 2005 (85) 382 (91) 1226 (78)
Unknown 240 (2) 53 (2) 6 (1) 86 (5)
Race American Indian/Alaska Native 94 (1) 19 (1) * * 11 (1)
Asian 380 (2) 64 (3) 24 (6) 39 (2)
Black or African American 1107 (7) 202 (9) 33 (8) 136 (9)
Native Hawaiian or other Pacific Islander 64 (0) 12 (1) * * 5 (0)
White 13453 (85) 1961 (83) 347 (82) 1251 (80)
More than one of these 135 (1) 23 (1) 5 (1) 17 (1)
Unknown 532 (3) 73 (3) 6 (1) 108 (7)
Insurance Status Insured 15402 (98) 2164 (92) 410 (97) 1529 (98)
Uninsured 234 (1) 149 (6) * * 19 (1)
Unknown 129 (1) 41 (2) * * 19 (1)
History of HCV infection Yes 129 (1) 94 (4) 93 (22) 16 (1)
No 11176 (71) 1734 (74) 298 (71) 994 (63)
Unknown 4460 (28) 526 (22) 30 (7) 557 (36)
History of HIV infection Yes 44 (0) 8 (0) 9 (2) 5 (0)
No 11117 (71) 1809 (77) 380 (90) 1008 (64)
Unknown 4604 (29) 537 (23) 32 (8) 554 (35)

†The HTC Population Profile contains 37 transsexual individuals. For confidentiality purposes, the number of transsexual patients is too small to report by year or other characteristics. Transsexual patients have been included in the counts of male and female according to the sex assigned to them at birth since hemophilia and von Willebrand disease, the most common congenital bleeding disorders, affect the sexes differently.

* Counts greater than zero but less than five have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.