Factor VIII and Factor IX

Table 2. HTC Population Profile Patient Characteristics, Factor VIII and Factor IX, data reported from 1/1/2012 through 09/29/2018

HTC Population Profile Patient Characteristics, Factor VIII and Factor IX
Factor VIII (n=18434) Factor IX (n=5851)
Mild Moderate Severe Severity Unknown Mild Moderate Severe Severity Unknown
# (%) # (%) # (%) # (%) # (%) # (%) # (%) # (%)
# of patients 6676 (100) 3059 (100) 8390 (100) 309 (100) 2154 (100) 2100 (100) 1518 (100) 79 (100)
Age (years) <2 141 (2) 98 (3) 214 (3) 22 (7) 61 (3) 52 (2) 58 (4) * *
2-10 1105 (17) 596 (19) 1677 (20) 46 (15) 369 (17) 412 (20) 294 (19) 13 (16)
11-19 1486 (22) 677 (22) 1899 (23) 34 (11) 461 (21) 470 (22) 285 (19) 13 (16)
20-44 2195 (33) 1095 (36) 3553 (42) 144 (47) 699 (32) 673 (32) 603 (40) 26 (33)
45-64 1135 (17) 418 (14) 865 (10) 44 (14) 370 (17) 335 (16) 221 (15) 15 (19)
65+ 614 (9) 175 (6) 182 (2) 19 (6) 194 (9) 158 (8) 57 (4) * *
Sex Male 5038 (75) 3008 (98) 8356 (100) 136 (44) 1438 (67) 2082 (99) 1512 (100) 47 (59)
Female 1638 (25) 51 (2) 34 (0) 173 (56) 716 (33) 18 (1) 6 (0) 32 (41)
Ethnicity Hispanic, Latino/a, or Spanish origin 1247 (19) 621 (20) 1421 (17) 57 (18) 156 (7) 130 (6) 283 (19) * *
Not Hispanic, Latino/a, or Spanish origin 5332 (80) 2411 (79) 6917 (82) 241 (78) 1964 (91) 1954 (93) 1222 (81) 64 (81)
Unknown 97 (1) 27 (1) 52 (1) 11 (4) 34 (2) 16 (1) 13 (1) * *
Race American Indian/Alaska Native 105 (2) 39 (1) 70 (1) * * * * 26 (1) 13 (1) * *
Asian 169 (3) 114 (4) 421 (5) 11 (4) 35 (2) 27 (1) 76 (5) * *
Black or African American 397 (6) 417 (14) 1294 (15) 33 (11) 164 (8) 85 (4) 224 (15) 6 (8)
Native Hawaiian or other Pacific Islander 7 (0) 10 (0) 49 (1) * * * * 11 (1) 11 (1) * *
White 5723 (86) 2370 (77) 6289 (75) 234 (76) 1900 (88) 1922 (92) 1155 (76) 68 (86)
More than one of these 79 (1) 36 (1) 119 (1) * * 10 (0) 9 (0) 14 (1) * *
Unknown 196 (3) 73 (2) 148 (2) 21 (7) 40 (2) 20 (1) 25 (2) * *
Insurance Status Insured 6411 (96) 2946 (96) 8122 (97) 276 (89) 1823 (85) 1650 (79) 1467 (97) 62 (78)
Uninsured 204 (3) 92 (3) 199 (2) 22 (7) 271 (13) 434 (21) 43 (3) 11 (14)
Unknown 61 (1) 21 (1) 69 (1) 11 (4) 60 (3) 16 (1) 8 (1) 6 (8)
History of HCV infection Yes 813 (12) 638 (21) 2181 (26) 28 (9) 188 (9) 372 (18) 488 (32) 7 (9)
No 4950 (74) 2172 (71) 5672 (68) 177 (57) 1531 (71) 1443 (69) 912 (60) 48 (61)
Unknown 913 (14) 249 (8) 537 (6) 104 (34) 435 (20) 285 (14) 118 (8) 24 (30)
History of HIV infection Yes 103 (2) 177 (6) 894 (11) 12 (4) 20 (1) 47 (2) 127 (8) * *
No 5583 (84) 2599 (85) 6886 (82) 196 (63) 1679 (78) 1736 (83) 1259 (83) 53 (67)
Unknown 990 (15) 283 (9) 610 (7) 101 (33) 455 (21) 317 (15) 132 (9) * *

† The HTC Population Profile contains 37 transsexual individuals. For confidentiality purposes, the number of transsexual patients is too small to report by year or other characteristics. Transsexual patients have been included in the counts of male and female according to the sex assigned to them at birth since hemophilia and von Willebrand disease, the most common congenital bleeding disorders, affect the sexes differently.

* Counts greater than zero but less than five have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.