Real Stories of Women Living with Bleeding Disorders

Story Topics

Bleeding Disorders
Hemophilia

Von Willebrand disease (VWD)
Videos

Bleeding disorders pose unique problems for women and girls because of the impact the disorders can have on their reproductive health and quality of life. Recognizing the signs and symptoms is important because effective treatment is available. We invite you to read stories and watch videos from women living with a bleeding disorder.

Stories About Bleeding Disorders

Chelsee’s Story

The only atypical thing in Chelsee’s life was that she would get heavy nosebleeds. Read her story to learn how one nosebleed led to her platelet disorder diagnosis.

Candace’s Story

Candace’s bleeding disorder diagnosis was a surprise, but it may have saved her life. Read her story to learn why, and how her diagnosis inspired her to change careers.

Stories About Hemophilia

Maya’s Story

Maya faced many obstacles during her journey to control her bleeding symptoms and get a diagnosis. Learn more about how she persevered to get where she is today.

Jennifer’s Story

When Jennifer was diagnosed with hemophilia and VWD, there weren’t many resources for girls. Now she’s sharing her story to raise awareness.

Carrie’s Story

Carrie is no stranger to hemophilia – she, her father, and her son have hemophilia B. Read her story to learn the advice she gives to other parents of children with bleeding disorders.

Shellye’s Story

Hemophilia primarily affects men, but women can have hemophilia too. Shellye experienced the symptoms of a bleeding disorder but was not tested and diagnosed until later in life. Read about her journey from symptoms to diagnosis.

Stories About Von Willebrand disease (VWD)

Janine and Daniela

Janine and Daniela have both experienced challenges with treating their bleeding disorders. Despite their challenges, they find joy and resilience in giving back to their community.

Brandee Cookston

Brandee Cookston, a 34-year-old woman, learned she had von Willebrand disease (VWD) type 3 at age 12, after experiencing extremely heavy periods.

Brooke Connell

For Brooke Connell, von Willebrand disease (VWD) is a family affair. At 6 months old, Brooke was diagnosed with the most severe form of VWD: type 3.

Videos from women with a Bleeding Disorders

We invite you to watch videos from women living with a bleeding disorder.

Real Stories of Women Living with Bleeding Disorders

Stories About Bleeding Disorders

Stories About Hemophilia

Stories About Von Willebrand disease (VWD)

Videos from women with a Bleeding Disorders

Information For…