Skip directly to search Skip directly to A to Z list Skip directly to site content
CDC Home

Persons using assistive technology might not be able to fully access information in this file. For assistance, please send e-mail to: Type 508 Accommodation and the title of the report in the subject line of e-mail.

Announcements: National Amyotrophic Lateral Sclerosis (ALS) Registry Available Online

On October 19, 2010, the Agency for Toxic Substance and Disease Registry (ATSDR) launched the National Amyotrophic Lateral Sclerosis (ALS) Registry web portal. ALS, commonly known as Lou Gehrig's disease, is a fatal neurodegenerative disease. The registry provides a means of structured data collection that will help address uncertainty about the incidence and prevalence of ALS in the United States. The registry gathers patient information from existing electronic records (i.e., records from the Centers for Medicare & Medicaid Services and the U.S. Department of Veterans Affairs) as well as from patients who enter information directly into the web portal. The data also might provide insight into the role of the environment in the etiology of ALS. The purpose of the ALS Registry is to 1) better describe the incidence and prevalence of ALS in the United States; 2) examine factors, such as environmental and occupational exposures, that might be associated with the disease; 3) better outline key demographic factors (e.g., age, race/ethnicity, sex, and family history) associated with the disease; and 4) facilitate examination of the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases, progress to ALS.

The National ALS Registry web portal allows ALS patients to register and take online surveys about potential risk factors. ATSDR is encouraging all patients living with ALS to join the registry to help scientists learn more about the disease. In addition, clinicians can create an account to access continuing education modules. The National ALS Registry web portal is available at

Use of trade names and commercial sources is for identification only and does not imply endorsement by the U.S. Department of Health and Human Services.

References to non-CDC sites on the Internet are provided as a service to MMWR readers and do not constitute or imply endorsement of these organizations or their programs by CDC or the U.S. Department of Health and Human Services. CDC is not responsible for the content of pages found at these sites. URL addresses listed in MMWR were current as of the date of publication.

All MMWR HTML versions of articles are electronic conversions from typeset documents. This conversion might result in character translation or format errors in the HTML version. Users are referred to the electronic PDF version ( and/or the original MMWR paper copy for printable versions of official text, figures, and tables. An original paper copy of this issue can be obtained from the Superintendent of Documents, U.S. Government Printing Office (GPO), Washington, DC 20402-9371; telephone: (202) 512-1800. Contact GPO for current prices.

**Questions or messages regarding errors in formatting should be addressed to The U.S. Government's Official Web PortalDepartment of Health and Human Services
Centers for Disease Control and Prevention   1600 Clifton Road Atlanta, GA 30329-4027, USA
800-CDC-INFO (800-232-4636) TTY: (888) 232-6348 - Contact CDC–INFO
A-Z Index
  1. A
  2. B
  3. C
  4. D
  5. E
  6. F
  7. G
  8. H
  9. I
  10. J
  11. K
  12. L
  13. M
  14. N
  15. O
  16. P
  17. Q
  18. R
  19. S
  20. T
  21. U
  22. V
  23. W
  24. X
  25. Y
  26. Z
  27. #