Projects & Partners

CDC’s Work

We work to understand the epidemiology of inflammatory bowel disease (IBD) to effectively target interventions and inform best clinical practices by

  • Gathering national prevalence and incidence data.
  • Supporting population-based studies to describe the incidence, prevalence, demographic, and clinical characteristics of people with IBD, and to assess the impact of the disease and various clinical practices in managing IBD.
  • Adapting and expanding current studies to capture socio-economic, racial, and geographic differences among the population.

Studying the Epidemiology

We fund the Crohn’s & Colitis Foundationexternal icon to conduct research that addresses important questions about the epidemiology and effective outcomes related to IBD, including quality of life and work productivity. Epidemiologic studies are also focused on identifying psychosocial, economic, demographic, clinical, and biological elements associated with disparate outcomes in IBD. This involves identifying variations in the use of medical therapies that affect outcomes, determining factors including patient and provider characteristics contributing to variation in the use of medical therapies such as steroids and biologics, and developing and disseminating interventions to improve disease outcomes.

Currently, CDC is supporting the INPUT (Defining the Incidence, Prevalence, and Treatment Patterns of IBD in the United States) study to estimate the incidence and prevalence of Crohn’s disease and ulcerative colitis in adult and pediatric populations, to determine whether race and IBD practice volume are associated with patterns of care, and to identify strategies to improve disease outcomes.

CDC first began addressing inflammatory bowel disease in 2005. Four cooperative agreements have since been awarded to address gaps in epidemiologic data and information about treatment for Crohn’s disease and ulcerative colitis. From 2013 to 2018, CDC supported the Ocean State Crohn’s and Colitis Registry (OSCCAR)external icon in Rhode Island, linking OSCCAR enrollees to the Crohn’s & Colitis Foundation Partners in IBD Research registry, and communicating important information back to patients affected by the disease and their providers to improve outcomes. The registry link also helped to expand and enhance descriptions of the disease and outcomes.