The National ALS Registry Newsletter- 1st Edition

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Patient Spotlight: Alan Alderman

For nearly two decades, Alan Alderman has defied the odds by living with ALS. He has dedicated much of his life to raising awareness of ALS.

Along with four dedicated teammates, Alan successfully rowed 3,000 miles across the Atlantic Ocean in the Talisker Whisky Atlantic Challenge—dubbed the “World’s Toughest Row.” His team, known as “Row4ALS,” was:
1. One of only three teams from the United States to enter this year’s race,
2. The first team in history to register from the State of Utah, and
3. The first team in history that successfully met this challenge with a patient living with ALS.

Would you or someone you know like to be featured in our next patient spotlight


The National ALS Registry

Did you know the National ALS Registry is more than counting cases? We help fund ongoing ALS research across the country.
Last fall, ATSDR funded 3 new awards to help advance ALS research.

Click here to learn more about the new research studies.

The National ALS Registry Webinar- Coming soon


From a new social media toolkit, to ALS registry materials, we’ve got you covered.
Check out our resources below and help share information about the National ALS Registry on your website or at your clinic.

New in 2019:

Appointment Card Reminder

Clinic Poster and Handout

The National ALS Registry Web Buttons


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