National ALS Disease Estimates
Prevalence
The National ALS Registry publishes estimates of prevalence (patients living with the disease) in the United States. The reports below are prevalence estimates for calendar years 2010-2016. The Registry will publish additional years prevalence data as they become available.
- NewPrevalence of ALS, United States, 2017external icon
- Prevalence of ALS, United States, 2016external icon
- Prevalence of ALS, United States, 2015 pdf icon[PDF – 166KB]
- Prevalence of ALS, United States, 2014 pdf icon[PDF – 101KB]
- Prevalence of ALS, United States, 2012–2013 pdf icon[PDF – 389KB]
- Prevalence of ALS, United States, 2010–2011 pdf icon[PDF – 575KB]
Incidence
The National ALS Registry publishes estimates of incidence (patients newly diagnosed with the disease) in the United States. The report below are incidence estimates for calendar years 2014-2016. The Registry will publish additional years of incidence data as they become available.
Mortality
The National ALS Registry publishes estimates of mortality (patients who have died from this disease) in the United States. The Registry will publish additional years of mortality data as they become available.
State and Metropolitan Surveillance Project
The National ALS Registry publishes estimates of incidence and prevalence in select states and cities in the United States. The Registry will publish additional years of data as they become available.
Page last reviewed: May 13, 2022
Content source: Agency for Toxic Substances and Disease Registry