About the National ALS Biorepository

What is the National ALS Biorepository?

The National ALS Biorepository is part of the National ALS Registry. This Biorepository will include samples from persons living with ALS  who are enrolled in the National ALS Registry. ATSDR developed a plan for creating this Biorepository with help from external experts. This plan describes the best ways to collect, store, and share biological samples. Persons living with ALS must give their consent to take part in the National ALS Biorepository.

This Biorepository may help scientists better understand the cause(s) of ALS. Researchers may be able to study the genetic variation in those with ALS. The National ALS Registry collects epidemiological data from persons living with ALS. Connecting biological samples with these data will make the National ALS Registry more complete and useful.