Researcher Requests Information

Researcher Data Requests

Researchers may request Registry data for their own research studies. These data are collected in the risk factor modules. Some data requested may not be available because, for example, it could be used in conjunction with other data to identify a participant. For more information on the types of data collected by the Registry, please review Part D of the application form. Prior to submitting a data request, please contact the Registry in order to determine which data are available.

Click here to view current institutions who have requested data. For additional questions, please contact us at

Submit Application

To complete and submit your application materials,

please click the link below

Update Application

To Update application,

please click the link below.

Page last reviewed: March 21, 2022
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