Prevalence of amyotrophic lateral sclerosis (ALS), United States, 2016

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Affiliates Paul Mehta [1] , Jaime Raymond [1] , Reshma Punjani [1] , Theodore Larson [1] , Frank Bove [1], Wendy Kaye [2] , Lorene M. Nelson [3] , Barbara Topol [3] , Moon Han [1] , Oleg Muravov [1] , Corina Genson [1] , Bryn Davis [1] , Thomas Hicks [4] , and Kevin Horton [1]

 

[1] Agency for Toxic Substances and Disease Registry/Centers for Disease Control and Prevention
[2] McKing Consulting Corporation
[3] Department of Epidemiology and Population Health, Stanford University School of Medicine
[4] Carter Consulting, Inc
Journal Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
Summary The National ALS Registry reports the most recent ALS prevalence estimates. In 2016, the Registry conservatively identified 16,424 adult persons who met the Registry definition of ALS for an age-adjusted prevalence rate of 5.2 per 100,000 U.S. population. The pattern of patient characteristics (e.g., age, sex, and race/ethnicity) has not changed from previous Registry reports.
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