National Amyotrophic Lateral Sclerosis (ALS) Registry
Learn how the Agency for Toxic Substances and Disease Registry (ATSDR) is working with persons living with ALS, researchers, neurologists, advocates, and other ALS experts to further ALS research. Watch via Livestream – July 23 from 8:30am – 4:00pm ET.
Amyotrophic lateral sclerosis (ALS), sometimes called Lou Gehrig’s disease, is a progressive disease that attacks the nerve cells that control voluntary movement. The National ALS Registry is a congressionally mandated registry for persons in the U.S. with ALS. It is the only population-based registry in the U.S. that collects information to help scientists learn more about who gets ALS and its causes. No one knows for sure what causes ALS and currently there is no cure. If you have the disease, consider joining the Registry and completing the brief risk-factor surveys because your answers could help scientists defeat ALS. Learn more about the National ALS Registry Video media icon[MP4 – 30 MB]
Log in to your account and take risk factor surveys and help researchers learn more about ALS.
Get the latest news from the Registry such as research notifications, new publications, and events.
- ALS Association Video media icon[MP4 - 4 MB]
- About the National ALS Registry media icon[MP4 - 24 MB]
- "Why join the Registry" - PALS testimonial
- Add ALS Registry Button to Your Website
- The National ALS Registry Photos
- CDC PHGR – National ALS Registry
- Beyond the Data -- Living with ALS
- Article ready for newspaper or online word icon[DOC - 14 KB]
- Agency for Toxic Substances and Disease Registry
4770 Buford Hwy NE , Atlanta, GA 30341
Monday-Friday: 8am-8pm (Closed Holidays)