National Amyotrophic Lateral Sclerosis (ALS) Registry
NEW PUBLICATION: A new paper describes the demographic characteristics of the rare cases of Juvenile ALS (jALS) in the United States.
Webinar Registration: 2023 National ALS Registry Annual Research Symposium and Meeting will be open to the public and held virtually on August 29th-30th, 2023. You can register for the meeting at the following link:
The transcript of the questions and answers posed and given during Day 1 of the National ALS Registry’s 2023 Annual Meeting is available to view here:
Report: The 2018 report on Prevalence of ALS in the United States has just been published, read the findings in the following link:
ALS research counts on you! Be counted and join the fight against ALS.
Tell your story and take the risk factor surveys and help researchers learn more about ALS.
View the clinical trials and studies the Registry has helped to recruit for and how you can be notified.
Donate your blood and saliva at no cost to you and help ALS researchers learn more about this disease.