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ALS Registry Alert:

ALS Prevalence in the United States
A new journal article has just been published on data gathered by the National ALS Registry “Estimation of the Prevalence of Amyotrophic Lateral Sclerosis in the United States Using National Administrative Healthcare Data from 2002 to 2004 and Capture-Recapture Methodology”.  Learn more at

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Amyotrophic lateral sclerosis (ALS), sometimes called Lou Gehrig’s disease, is a progressive disease that attacks the nerve cells that control voluntary movement. The National ALS Registry is a congressionally mandated registry for persons in the U.S. with ALS. It is the only population-based registry in the U.S. that collects information to help scientists learn more about who gets ALS and its causes. No one knows for sure what causes ALS and currently there is no cure. If you have the disease, consider joining the Registry and completing the brief risk-factor surveys because your answers could help scientists defeat ALS. Learn more about the National ALS Registry Video [MP4 – 30 MB]

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National-ALS Registry Tutorial Video


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Learn more about ALS, clinical trials and studies, and locate the nearest ALS support group and clinic.
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National ALS Biorepository

National ALS Biorepository

Learn how you can participate and help researchers learn more about ALS.
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ALS Research

Learn how the Registry can help you with your ALS research.



Read the latest Registry supported ALS publications and reports.
ALS Reports


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Learn how the Registry advances ALS Research.
Funded Research
Non-Funded Research

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  • Agency for Toxic Substances and  Disease Registry
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