Tourette Syndrome Research

Microscope, stethescope, and notepad

The CDC works with partners to conduct research to better understand Tourette Syndrome (TS), including the prevalence of TS, the quality of life among people affected by TS, risk and protective factors associated with the impact of TS, and health risk behaviors associated with TS. Results from this research are used to better inform public health efforts to improve the lives and health outcomes of people affected by TS, to implement education programs to help improve the quality of life of those with TS and their families, and to inform future research.

CDC conducts research to:

  • Find out how many people have TS and the characteristics of people with TS.
  • Determine the impact of TS on individuals; families; and communities, including schools.

Prevalence and Characteristics of TS

It is important to know how many people have TS (prevalence). The CDC is using data from national surveys to understand the impact of TS on individuals and their families. By studying the number of people diagnosed with TS and other tic disorders over time, we can determine whether the number is rising, dropping, or staying the same. We also can compare the number of people with TS across different areas of the country and among different groups of people. This information can help identify causes of TS and help communities plan for services.

Understanding the characteristics of people with TS helps researchers at CDC to better identify groups of people who might be at greater risk for TS, as well as groups who might be less likely to be diagnosed with TS. This information helps researchers at CDC focus future research and outreach activities.

Click here to view the prevalence for your region.

Programs conducted by the Tourette Syndrome Association-CDC Partnership


Following are activities that CDC conducts or funds in order to learn more about the number of people with TS:

Child sitting on floor
National Survey of Children’s Health

CDC supports a nationally representative survey that provides data on health conditions among children in the United States, called the National Survey of Children’s Healthexternal icon.

In the survey, parents are asked if their child had ever been diagnosed with TS, whether or not their child currently had TS, and about the severity of TS. These data can be used to calculate nationally representative prevalence estimates of diagnosed TS, as well as information about the prevalence of co-occurring conditions and characteristics of children who had been diagnosed with TS.

The data from 2011-12 showed that approximately 1 out of every 360 children 6 through 17 years of age in the United States had been diagnosed with TS; this represented about 138,000 children. [Read article on 2007-08 data] [Read article on 2011-12 dataexternal icon]

Overview of Other Research Activities


Bridging the Gap between Public Health and Tourette Syndrome

The National Center on Birth Defects and Developmental Disabilities is working to improve the systematic understanding of TS, and the health and well-being of people affected by TS. The approach is based on a summary report on TS that was informed by a literature review and expert panel and highlighted gaps in knowledge and resources that can be addressed by public health.

Read an archived summary of the report»

For More Information

For information on clinical trials and TSexternal icon

Tourette Association of America supported researchexternal icon

Scientific Articles and Key Findings

A National Profile of Tourette Syndrome, 2011-2012
(Published: July 11, 2014)

Tourette Syndrome and Parenting Aggravation
Learn about how having a child with Tourette Syndrome can affect families
(Published: July 11. 2014)

Health Care Needs of Children with Tourette Syndrome
Children with TS experience greater health care needs and face challenges receiving coordinated care
(Published: July 11, 2014 )

Tourette Syndrome: Everyone Can Play a Role
Learn how everyone, including CDC, can play a role to improve the lives of people with Tourette syndrome.
(Published: June 1, 2015)

10 Years of Tourette Syndrome Education and Research
Learn about CDC’s decade of work doing research and educating the public on Tourette Syndrome.
(Published: June 2, 2014)

Tourette Syndrome: New Treatment Option
Learn about a new treatment option and find out what CDC is doing to raise awareness and educate health and education professionals about Tourette Syndrome.
(Published: June 3, 2013)

Scientific Articles

* These CDC scientific articles are listed in order of date published

When you click "Read Summary"

The link will take you to a short summary of the article. The full article is available to subscribers of the publication's service.

Design of a Multi-Site Study Assessing the Impact of Tic Disorders on Individuals, Families, and Communities.
Pediatric Neurology, online ahead of print: 8 November 2016
Erika F. Augustine, Heather R. Adams, Rebecca H. Bitsko, Edwin van Wijngaarden, Angelika H. Claussen, Alyssa Thatcher, Camille E. Hanks, Adam B. Lewin, Thomas G. O’Connor, Amy Vierhile, Melissa L. Danielson, Roger Kurlan, Tanya K. Murphy, Jonathan W. Mink
[Read articleexternal icon]

Suicidal thoughts and behaviors in children and adolescents with chronic tic disorders.
Depression and Anxiety. 2015; 32(10), 744–753.
Eric A. Storch Ph.D., Camille E. Hanks, Jonathan W. Mink, Joseph F. McGuire, Heather R. Adams, Erika F. Augustine, Amy Vierhile, Alyssa Thatcher, Rebecca H. Bitsko, Adam B. Lewin, Tanya K. Murphy
[Read summaryexternal icon]

Utility of the Diagnostic Interview Schedule for Children for Assessing Tourette Syndrome in Children
Journal of Child and Adolescent Psychopharmacology. 2014; 24(5), 275-284.
Adam B. Lewin, Jonathan W. Mink, Rebecca H. Bitsko, Joseph R. Holbrook, E. Carla Parker-Athill, Camille Hanks, Eric A. Storch, Erika F. Augustine, Heather R. Adams, Amy E.Vierhile, Alyssa R. Thatcher, and Tanya K. Murphy.
[Read articleexternal icon]

All Articles

Search a database of articles that have been published by CDC authors within the National Center on Birth Defects and Developmental Disabilities from 1990 to present.