Free Materials on Spina Bifida

The National Spina Bifida Patient Registry

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The National Spina Bifida Patient Registry was created by the Centers for Disease Control and Prevention in 2008 to learn more about spina bifida and how to better take care of people living with this condition.

Learn about The National Spina Bifida Patient Registry

Skin Care

CDC’s Work

Title: Living with Spina Bifida: A Public Health Challeng

Living with Spina Bifida: A Public Health Challenge [PDF – 963 KB]

Researchers at CDC are working on a series of projects to improve the quality of life and encourage full participation at every age for those living with spina bifida.

Managing Care

Spina Bifida UTI Fact Sheet - English

UTI Fact Sheet (English) [PDF – 94 KB] | (Spanish) [PDF – 120 KB]

What parents should know: urinary tract infections in young children with spina bifida.

Folic Acid

Graphic: Imformative materials about folic acid

Folic Acid

Folic acid can help prevent major birth defects of the baby’s brain and spine. CDC has materials for women, health care providers, and others on the benefits of folic acid.

External Resources

Spina Bifida Association logo

Guidelines for the Care of People with Spina Bifida by Age

The Spina Bifida Association has written guidelines for spina bifida care, categorized by age.

Mobile App for Guidelines

The Spina Bifida Association has developed a free, interactive mobile app to help people with spina bifida and their families search the new guidelines and track their health to share with their physician.

Spina Bifida Fact Sheets

The Spina Bifida Association (SBA) offers a series of fact sheets and publications, including information on living with spina bifida, treatments, and emotional issues.

Hydrocephalus Association logo

Hydrocephalus Publications

The Hydrocephalus Association offers information, resources, and research on hydrocephalus, or extra fluid in and around the brain.