Free Materials on Spina Bifida
The National Spina Bifida Patient Registry
The National Spina Bifida Patient Registry was created by the Centers for Disease Control and Prevention in 2008 to learn more about spina bifida and how to better take care of people living with this condition.
The Spina Bifida Association created these materials to help patients and families prevent skin problems.
Poster (English) pdf icon[2.15 MB / 1 page]external icon
Infant Brochure (English) pdf icon[752 KB / 2 pages]external icon
School Age Brochure (English) pdf icon[536 KB / 2 pages]external icon
Adolescent/Adult Brochure (English) pdf icon[593 KB / 2 pages]external icon
Researchers at CDC are working on a series of projects to improve the quality of life and encourage full participation at every age for those living with spina bifida.
Folic acid can help prevent major birth defects of the baby’s brain and spine. CDC has materials for women, health care providers, and others on the benefits of folic acid.
The Spina Bifida Association has written guidelines for spina bifida care, categorized by age.
The Spina Bifida Association has developed a free, interactive mobile app to help people with spina bifida and their families search the new guidelines and track their health to share with their physician.
The Spina Bifida Association (SBA) offers a series of fact sheets and publications, including information on living with spina bifida, treatments, and emotional issues.
The Hydrocephalus Association offers information, resources, and research on hydrocephalus, or extra fluid in and around the brain.