Free Materials on Spina Bifida
The National Spina Bifida Patient Registry
The National Spina Bifida Patient Registry was created by the Centers for Disease Control and Prevention in 2008 to learn more about spina bifida and how to better take care of people living with this condition.
Skin Care
The Spina Bifida Association created these materials to help patients and families prevent skin problems.
Poster (English) [2.15 MB / 1 page]
Infant Brochure (English) [752 KB / 2 pages]
School Age Brochure (English) [536 KB / 2 pages]
Adolescent/Adult Brochure (English) [593 KB / 2 pages]
CDC’s Work
Living with Spina Bifida: A Public Health Challenge [PDF – 963 KB]
Researchers at CDC are working on a series of projects to improve the quality of life and encourage full participation at every age for those living with spina bifida.
Managing Care
UTI Fact Sheet (English) [PDF – 94 KB] | (Spanish) [PDF – 120 KB]
What parents should know: urinary tract infections in young children with spina bifida.
Folic Acid
Folic acid can help prevent major birth defects of the baby’s brain and spine. CDC has materials for women, health care providers, and others on the benefits of folic acid.
External Resources
Guidelines for the Care of People with Spina Bifida by Age
The Spina Bifida Association has written guidelines for spina bifida care, categorized by age.
The Spina Bifida Association has developed a free, interactive mobile app to help people with spina bifida and their families search the new guidelines and track their health to share with their physician.
The Spina Bifida Association (SBA) offers a series of fact sheets and publications, including information on living with spina bifida, treatments, and emotional issues.
The Hydrocephalus Association offers information, resources, and research on hydrocephalus, or extra fluid in and around the brain.