National Spina Bifida Patient Registry Scientific Publications
Articles are listed in descending chronological order.
The summary page will indicate if the complete article is available at no charge.
Kidney Function Surveillance in the National Spina Bifida Patient Registry: A Retrospective Cohort Study.
Journal of Urology. 2020 Sept 1
Chu DI, Liu T, Patel P, Routh JC, Ouyang L, Baum MA, Cheng EY, Yerkes EB, Isakova T.
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Factors Associated With Ambulation in Myelomeningocele: A Longitudinal Study From the National Spina Bifida Patient Registry
American Journal of Physical Medicine & Rehabilitation. 2020 July
Davis WA, Zigler CK, Crytzer TM, Izzo s, Houtrow AJ, Dicianno BE.
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The Relationship between Motor Level and Wheelchair Transfer Ability in Spina Bifida: A Study from the National Spina Bifida Patient Registry
Archives of Physical Medicine and Rehabilitation. 2020 Jul 16
McKernan G, Izzo S, Crytzer TM, Houtrow AJ, Dicianno BE.
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Correlation between Neurologic Impairment Grade and Ambulation Status in the Adult Spina Bifida Population.
American Journal of Physical and Medical Rehabilitation, 2019 Mar 29
Tita AC, Frampton JR, Roehmer C, Izzo SE, Houtrow AJ, Dicianno BE.
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Differences in Continence Rates in Individuals with Spina Bifida Based on Ethnicity.
Journal of Pediatric Rehabilitation Medicine. 2019 Dec 19
Smith, KA, Liu, T, Freeman, KA, Betz, C, Clayton, GH, Castillo, H, Castillo, J, Tu, D, Van Speybroeck A, Walker, WO
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Philosophy of Care Delivery for Spina Bifida.
Disability and Health Journal. 2019 Dec 20
Thibadeau J, Walker WO, Castillo J, Dicianno BE, Routh JC, Smith KA, Ouyang L.
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Baseline Urinary Imaging in Infants Enrolled in Urologic Management to Preserve Initial Renal Function (UMPIRE) Protocol for Children with Spina Bifida.
Journal of Urology. 2019 Feb 5
Tanaka ST, Paramsothy P, Thibadeau J, Wiener JS, Joseph DB, Cheng EY, Tu D, Austin C, Koh CJ, Wallis MC, Walker WO, Smith KA, Routh JC, Baum MA.
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Decompression for Chiari malformation type II in individuals with myelomeningocele in the National Spina Bifida Patient Registry.
Journal of Neurosurgery. Pediatrics. 2018 Dec 1
Kim I, Hopson B, Aban I, Rizk EB, Dias MS, Bowman R, Ackerman LL, Partington MD, Castillo H, Castillo J, Peterson PR, Blount JP, Rocque BG.
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Treated hydrocephalus in individuals with myelomeningocele in the National Spina Bifida Patient Registry.
Journal of Neurosurgery. Pediatrics. 2018 Dec 1
Kim I, Hopson B, Aban I, Rizk EB, Dias MS, Bowman R, Ackerman LL, Partington MD, Castillo H, Castillo J, Peterson PR, Blount JP, Rocque BG.
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The National Spina Bifida Patient Registry: A Decade’s Journey.
Birth Defects Research. 2018 Nov 6
Castillo J, Lupo PJ, Tu DD, Agopian AJ, Castillo H.
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Surgeries and Health Outcomes Among Patients With Spina Bifida.
Pediatrics, 2018 Sept.
Alabi NB, Thibadeau J, Wiener JS, Conklin MJ, Dias MS, Sawin KJ, Valdez R
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Bladder Management and Continence Outcomes in Adults with Spina Bifida: Results from the National Spina Bifida Patient Registry, 2009 to 2015.
The Journal of Urology, 2018 July
Wiener JS, Suson KD, Castillo J, Routh JC, Tanaka ST, Liu T, Ward EA, Thibadeau JK, Joseph DB; National Spina Bifida Patient Registry.
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Longitudinal Study of Bladder Continence in Patients with Spina Bifida in the National Spina Bifida Patient Registry.
The Journal of Urology, 2018 March
Liu T, Ouyang L, Thibadeau J, Wiener JS, Routh JC, Castillo H, Castillo J, Freeman KA, Sawin KJ, Smith K, Van Speybroeck A, Valdez R.
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Bladder Reconstruction Rates Differ among Centers Participating in National Spina Bifida Patient Registry.
The Journal of Urology. 2018 Jan
Routh JC, Joseph DB, Liu T, Schechter MS, Thibadeau JK, Wallis MC, Ward EA, Wiener JS.
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The National Spina Bifida Patient Registry: Past, Present, and Future.
Journal of Pediatric Rehabilitation Medicine. 2017 Dec 11
Thibadeau, J.
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Variation in bowel and bladder continence across US spina bifida programs: A descriptive study.
Journal of Pediatric Rehabilitation Medicine. 2017 Dec 11
Freeman KA, Castillo H, Castillo J, Liu T, Schechter M, Wiener JS, Thibadeau J, Ward E, Brei T.
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Variation in surgical management of neurogenic bowel among centers participating in National Spina Bifida Patient Registry.
Journal of Pediatric Rehabilitation Medicine. 2017 Dec 11
Routh JC, Joseph DB, Liu T, Schechter MS, Thibadeau JK, Chad Wallis M, Ward EA, Wiener JS.
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Bowel management and continence in adults with spina bifida: Results from the National Spina Bifida Patient Registry 2009-15.
Journal of Pediatric Rehabilitation Medicine. 2017 Dec 11
Wiener JS, Suson KD, Castillo J, Routh JC, Tanaka S, Liu T, Ward E, Thibadeau J, Joseph D, Registry NSBP.
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Agreement between electronic medical records and self-reported urologic domains in the National Spina Bifida Patient Registry (NSBPR): Implications for future research.
Journal of Pediatric Urology. 2017 Aug
Halline CG, Meyer T, Rosoklija I, Yerkes EB.
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Factors Associated with Mobility Outcomes in a National Spina Bifida Patient Registry.
American Journal of Physical Medicine & Rehabilitation 2015 Dec
Dicianno BE, Karmarkar A, Houtrow A, Crytzer TM, Cushanick KM, McCoy A, Wilson P, Chinarian J, Neufeld J, Smith K, Collins DM.
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Factors Associated With Pressure Ulcers in Individuals With Spina Bifida.
Archives of physical medicine and rehabilitation. 2015 August
Kim S, Ward E, Dicianno BE, Clayton GH, Sawin KJ, Beierwaltes P, Thibadeau J; National Spina Bifida Patient Registry.
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Sociodemographic Attributes and Spina Bifida Outcomes.
Pediatrics 2015 Apr
Schechter MS, Liu T, Soe M, Swanson M, Ward E, Thibadeau J.
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The National Spina Bifida Patient Registry: Profile of a Large Cohort of Participants from the First 10 Clinics.
The Journal of Pediatrics 2015 Feb
Sawin KJ, Liu T, Ward E, Thibadeau J, Schechter MS, Soe MM, Walker W; NSBPR Coordinating Committee.
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Testing the Feasibility of a National Spina Bifida Patient Registry.
Birth Defects Research. Part A, Clinical and molecular teratology. 2013 Jan
Thibadeau JK, Ward EA, Soe MM, Liu T, Swanson M, Sawin KJ, Freeman KA, Castillo H, Rauen K, Schechter MS.
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