Mark your Calendars — Sickle Cell Data Collection (SCDC) Summit

SCDC Summit 2023

CDC’s National Center on Birth Defects and Developmental Disabilities, Division of Blood Disorders is hosting the Sickle Cell Data Collection (SCDC) Summit September 26th – 29th.

CDC’s Sickle Cell Data Collection (SCDC) program provides funding to states to gather important health information about people living with sickle cell disease (SCD).  The goal of SCDC is to study long-term trends in diagnosis, treatment, and healthcare access in the United States. SCDC helps inform policy and healthcare standards that improve and extend the lives of people with SCD.

SCDC teams in Alabama, California, Colorado, Georgia, Indiana, Michigan, Minnesota, North Carolina, Tennessee, Virginia, and Wisconsin will showcase the complex and critical work they’re doing, as well as highlight data that have been translated into action to improve healthcare access and health outcomes among people with SCD in their respective states. Each day of the Summit will focus on different topics in the form of presentations and discussion panels that will describe how data is being used to improve the lives of people living with SCD.

This virtual event is free and open to the public. Register here.


*Day 1 – Tuesday, September 26, 2023, 2:00 PM–5:30 PM ET

  • SCDC Methods
  • Newborn Screening


Day 2 – Wednesday, September 27, 2023, 2:00 PM–5:30 PM ET

  • Healthcare Access
  • SCD Health and Health Outcomes


Day 3 – Thursday, September 28, 2023, 2:00 PM–5:30 PM ET

  • Healthcare Utilization
  • COVID-19


Day 4 – Friday, September 29, 2023, 2:00 PM–5:30 PM ET

  • Community Outreach and Partnerships I & II


For more information about SCDC Program visit

*Dates and agenda are subject to change. Any changes will be sent to registrants.