Sickle Cell Disease National Resource Directory


The Sickle Cell Disease National Resource Directory is a listing of national agencies, specialty care centers, and community-based organizations that provide services and resources for people affected by sickle cell disease (SCD). The goal of this directory is to help people find SCD services and resources. The directory was last updated in June 2017.

How to use this Directory

This directory is sorted by national and state resources and listed in A-Z order. Within each state, the resources are listed by type: Providers/Sickle Cell Centers, Non-Profits/Associations/Foundations, and Support Groups. In many cases, organizations offer both clinical and non-clinical resources and services. When making contact, ask about other services that may be offered such as support groups and social services.

To update the information in this directory, or to suggest adding a new resource call 1-800-CDC-INFO (232-4636), TTY: 1-888-232-6348 or e-mail:

National Resources

Sickle Cell Community Consortium
525 Tribble Gap Road, Box 1195
Cumming, GA 30040
(706) 619-6029
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Sickle Cell Disease Association of America, Inc.
231 East Baltimore Street, Suite 800
Baltimore, MD 21202
(410) 528-1555
(800) 421-8453
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State Resources

Click on any state to view that state’s resources.

For more information please contact:

Centers for Disease Control and Prevention
1600 Clifton Road NE, Atlanta, GA 30333
Telephone: 1-800-CDC-INFO (232-4636)
TTY: 1-888-232-6348