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National Resource Directory


The Sickle Cell Disease National Resource Directory is a listing of national agencies, specialty care centers, and community-based organizations that provide services and resources for people affected by sickle cell disease (SCD). The goal of this directory is to help people find SCD services and resources. The directory was last updated in September of 2015.

How to use this Directory

The information from this directory is sorted by state. Within each state, the resources are listed by type: Providers/Sickle Cell Centers, Non-Profits/Associations/Foundations, and Support Groups. In many cases, organizations offer both clinical and non-clinical resources and services. When making contact, ask about other services that may be offered such as support groups and social services.

To update the information in this directory, or to suggest adding a new resource call 1-800-CDC-INFO (232-4636), TTY: 1-888-232-6348 or e-mail:

U.S. States

Click on any state to view that state’s resources.

  • U.S. States


For more information please contact

Centers for Disease Control and Prevention

1600 Clifton Road NE, Atlanta, GA 30333

Telephone: 1-800-CDC-INFO (232-4636)

TTY: 1-888-232-6348