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Articles & Key Findings

Highlighted Articles

Key Findings: Cost savings of spina bifida prevention after folic acid fortification in the United States
This study looked at potential cost savings associated with spina bifida prevention after folic acid fortification of enriched cereal grains in the United States.
(Published: January 11, 2016)

Key Findings: Sociodemographic Attributes and Spina Bifida Outcomes
Data from CDC’s spina bifida registry suggests certain patients may have less favorable health outcomes.
(Published: April 8, 2015)

Key Findings: Updated estimates of neural tube defects prevented by mandatory folic Acid fortification – United States, 1995-2011
CDC’s Morbidity and Mortality Weekly Report published a new study looking at how many serious birth defects of the brain and spine, called neural tube defects (NTDs), have been prevented since the U.S. Food and Drug Administration required that all enriched grain products be fortified with folic acid.
(Published: January 15, 2015)

Using Data to Help Babies Born with Spina Bifida
Learn how CDC is protecting babies born with spina bifida.
(Published: October 17, 2016)

Stories: Living with Spina Bifida
Spina bifida is a condition that affects the spine and is usually apparent at birth. It is a type of neural tube defect (NTD). To learn what it’s like to live with this condition or how families are affected, read these real stories from people living with spina bifida.

Supplement use and other characteristics among pregnant women with a previous pregnancy affected by a neural tube defect – United States, 1997-2009.
MMWR Morb Mortal Wkly Rep. 2015 Jan; 64(1):6-9
Arth A, Tinker S, Moore C, Canfield M, Agopian A, Reefhuis J.
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A Randomized Trial of Prenatal versus Postnatal Repair of Myelomeningocele
The New England Journal of Medicine; 2011 March 17; 364:993-1004 Adzick NS, et al
[Read summary]

Scientific Articles

Publications

* These CDC-authored scientific articles are listed in order of date published, starting with the most recent.

 

Bladder Reconstruction Rates Differ Among Centers Participating in National Spina Bifida Patient Registry
Journal of Urology
2017 August 19
Routh JC, Joseph DB, Liu T, Schechter MS, Thibadeau JK, Wallis MC, Ward EA, Weiner JS
[Read Summary]

Design and Methodological Considerations of the National Spina Bifida Patient Registry Urologic and Renal Protocol for the Newborn and Young Child
Journal of Urology 2016 Jul 27.
Routh JC, Cheng EY, Austin JC, Baum MA, Gargollo PC, Grady RW, Herron AR, Kim SS, King SJ, Koh CJ, Paramsothy P, Raman L, Schechter MS, Smith KA, Tanaka ST, Thibadeau JK, Walker WO, Wallis MC, Wiener JS, Joseph DB.
[Read full article]

Factors associated with the timeliness of postnatal surgical repair of spina bifida
Child’s Nervous System 2016 May 14.
Radcliff E, Cassell CH, Laditka SB, Thibadeau JK, Correia J, Grosse SD, Kirby RS.
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Retrospective assessment of cost savings from prevention: folic ccid fortification and spina bifida in the U.S.
Am Jl Prev Med. 2016 May;50 (5):S74-80.
Grosse SD, Berry RJ, Tilford JM, Kucik JE, Waitzman NJ.
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Sociodemographic attributes and spina bifida outcomes
Pediatr. 2015;135(4):e957-e964.
Schechter MS, Liu T, Soe M, Swanson M, Ward E, Thibadeau J.
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The national spina bifida patient registry: profile of a large cohort of participants from the first 10 clinics
J Pediatr. 2015 Feb; 166(2):444-50.e1.
Sawin K, Liu T, Ward E, Thibadeau J, Schechter M, Soe M, Walker W.
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Characteristics and survival of end stage renal disease (ESRD) patients with spina bifida in the United States Renal Data System (USRDS)
J Urol. 2015 Feb; 193(2):558-64.
Ouyang L, Bolen J, Valdez R, Joseph D, Baum MA, Thibadeau J.
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Updated estimates of neural tube defects prevented by mandatory folic Acid fortification – United States, 1995-2011.
MMWR Morb Mortal Wkly Rep. 2015 Jan; 64(1):1-5
Williams J, Mai CT, Mulinare J, Isenburg J, Flood TJ, Ethen M, Frohnert B, Kirby RS.
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