About SUID and SIDS
CDC Resources and Activities
- 1,000 Grandmothers Project
The 1,000 Grandmothers project reached nearly 200 participants from four tribes, including the Turtle Mountain Band of Chippewa Indians in North Dakota, the Eastern Band of Cherokee Indians in North Carolina, the Hannahville Indian Community (Potawatomie), and the Sault Ste. Marie Tribe of Chippewa Indians, both in Michigan’s Upper Peninsula. Each site used adaptations of selected Healthy Native Babies [PDF - 3.6 MB] materials developed by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) of the National Institutes of Health (NIH) and session activities varied by traditional cultures of the tribe. Focus groups, document review, pre- and post- assessments, and key informant interviews were used to evaluate the project, and lessons learned were incorporated into a report and implementation resources. The intergenerational 1,000 Grandmothers project used an evidence-based and culturally appropriate approach to reducing the disparity in SUID rates within the Native American population.
- Sudden Unexpected Infant Death Case Registry
The purpose of the Sudden Unexpected Infant Death Case Registry is to improve states' ability to monitor SUID trends using standardized definitions by improving data completeness, timeliness, and case ascertainment.
- Sudden Death in the Young (SDY) Case Registry
The SDY Case registry expands the population of the SUID Case Registry from infancy through adolescence. The SDY registry includes an advanced review where cases are discussed and categorized jointly by pediatric clinical specialists (e.g., cardiologists, neurologists) and forensic pathologists. A blood sample is also collected at autopsy for future research to investigate the cause of death. For more information, see Frequently Asked Questions about the Sudden Death in the Young Case Registry.
- Sudden Unexplained Infant Death Investigation Reporting Form (SUIDIRF)
The SUIDIRF was designed to help investigative agencies to better understand the circumstances and factors contributing to unexplained infant deaths.
- Sudden Unexplained Infant Death Investigation Training Resources
CDC collaborated with organizations and subject matter experts to create training materials for investigators and instructors who investigate infant deaths.
- Protect the Ones You Love Initiative
CDC’s National Center for Injury Prevention and Control launched the Protect the Ones You Love initiative to raise parents’ awareness about the leading causes of child injury in the United States (including suffocation) and how they can be prevented.
- Pathologic Evaluation of Sudden Unexplained Infant Death
CDC’s Infectious Diseases Pathology Branch in the National Center for Emerging and Zoonotic Infectious Diseases (NCEZID) evaluates biospecimens from infants whose deaths cannot be explained. State health departments, US physicians, and non-US physicians can submit specimens for deaths where clinical or laboratory information suggests potential infection.
- National Center for Health Statistics- National Vital Statistics System
The National Vital Statistics System publishes information about infant deaths, which may be used to monitor causes of death (such as SIDS) among infants younger than 1 year of age in the United States, Puerto Rico, the Virgin Islands, and Guam.
- PRAMS (Pregnancy Risk Assessment Monitoring System)
PRAMS collects state-specific, population-based maternal and infant health data from women 2 to 6 months after delivery, including infant sleep practices.
SUID Fact Sheet
Learn more about SUID and CDC’s SUID Case Registry. [PDF - 197 KB]
Safe to Sleep
CDC collaborates with the National Institutes of Health in its Safe to Sleep campaign, formerly known as the Back to Sleep campaign. Safe to Sleep has outreach and education activities aimed at reducing infant death from sudden infant death syndrome (SIDS) and other sleep-related infant deaths.
- Page last reviewed: June 8, 2016
- Page last updated: June 8, 2016
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