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CDC’s New Muscular Dystrophy Research - CDC’s Muscular Dystrophy Surveillance Tracking and Research Network is the only population-based muscular dystrophy tracking program in the US.

Muscular Dystrophy: Kevin’s Story
Read about Kevin, a man with muscular dystrophy who doesn’t let the condition define him.
(Published: February 11, 2013)

The following CDC scientific articles are listed in order of date published from present to 2008.

PublicationsSibling concordance for clinical features of Duchenne and Becker muscular dystrophies
Muscle & Nerve; 2013 Sept. 13  (Epub ahead of print)
Pettygrove S, Lu Z, Andrews JG, et al.

Reproductive Patterns Among Mothers of Males Diagnosed with Duchenne or Becker Muscular Dystrophy  
American Journal of Medical Genetics; Part A. 2013 Jan;161A(1):70-5. 
Nabukera SK et al. 

Clinic-Based Infant Screening for Duchenne Muscular Dystrophy: A Feasibility Study
PLoS Currents Muscular Dystrophy; May 2, 2012
Cyrus A, et al.

Evidence Based Path to Newborn Screening for Duchenne Muscular Dystrophy
Annals of Neurology; 2012 Mar;71(3):304-13. 
Mendell JR et al.

Disparities in the diagnostic process of Duchenne and Becker muscular dystrophy
Genetics In Medicine; 2011 Nov.;13(11);942-7
Holtzer C, et al

National Profile of Health Care and Family Impacts of Children With Muscular Dystrophy and Special Health Care Needs in the United States
Journal of Child Neurology; 2011 Sep 27.
Ouyang L, Grosse SD, Fox MH, Bolen J.A

Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care
Lancet Neurology; 2010 Feb;9(2):177-89
Bushby K. et al.

Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management
Lancet Neurology; 2010 Jan;9(1):77-93
Bushby K, et al.

Prevalence of Duchenne/Becker muscular dystrophy among males aged 5-24 years - four states, 2007
Morbidity and Mortality Weekly Report; 2009 Oct 16;58(40):1119-22
CDC

Health care utilization and expenditures for children and young adults with muscular dystrophy in a privately insured population
Journal of Child Neurology; 2008 Aug;23(8):883-8
Ouyang L, Grosse SD, Kenneson A

Related Articles

The following articles are authored by CDC grantees and listed in order of date published, from present to 2009.

Patterns of growth in ambulatory males with duchenne muscular dystrophy
Journal of Pediatrics  2013 Dec;163(6):1759-1763
West NA, Yang ML, Weitzenkamp DA, et al.

Oral Corticosteroids and Onset of Cardiomyopathy in Duchenne Muscular Dystrophy    
Journal of Pediatrics; 2013 Oct;163(4):1080-4  
BJ Barber, JG Andrews, Z Lu, et al.

Use of Complementary and Alternative Medicine by Males with Duchenne or Becker Muscular Dystrophy
Journal of Child Neurology; 2011 Dec. 7.
Nabukera SK, Romitti PA, Campbell KA, et al.

Palliative care services in families of males with Duchenne muscular dystrophy
Muscle & Nerve; 2011 Jul;44(1):93-101.
Arias R, Andres J, Pandya S, et al

Use of corticosteroids in a population-based cohort of boys with duchenne and becker muscular dystrophy
Journal of Child Neurology; 2010 Nov;25(11):1319-24
Matthews DJ, James KA, Miller LA

Change in natural history of Duchenne muscular dystrophy with long-term corticosteroid treatment: implications for management
Journal of Child Neurology; 2010 Sep;25(9):1116-29
Moxley RT 3rd, Pandya S, Ciafaloni E

Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet): case definition in surveillance for childhood-onset Duchenne/Becker muscular dystrophy
Journal of Child Neurology; 2010 Sep;25(9):1098-102
Mathews KD, Cunniff C, Kantamneni JR

The effect of caregiving on women in families with Duchenne/Becker muscular dystrophy
Health & Social Care in the Community; 2010 Sep;18(5):520-8.
Kenneson A, Bobo JK.

Widening gap in age at muscular dystrophy-associated death between blacks and whites, 1986-2005
Neurology; 2010 Sep 14;75(11):982-9.
Kenneson A, Vatave A, Finkel R.

The respiratory management of patients with Duchenne muscular dystrophy: a DMD care considerations working group specialty article.
Pediatric Pulmonology; 2010 Aug;45(8):739-48.
Birnkrant DJ, Bushby KM, Amin RS, Bach JR, Benditt JO, Eagle M, Finder JD, Kalra MS, Kissel JT, Koumbourlis AC, Kravitz RM.

Delayed diagnosis in Duchenne muscular dystrophy: data from the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet)
The Journal of Pediatrics; 2009 Sep;155(3):380-5
Ciafaloni E, Fox DJ, Pandya S

Mutation analysis in a population-based cohort of boys with Duchenne or Becker muscular dystrophy
Journal of Child Neurology; 2009 Apr;24(4):425-30
Cunniff C, Andrews J, Meaney FJ

Adherence to American Academy of Pediatrics recommendations for cardiac care among female carriers of Duchenne and Becker muscular dystrophy.
Pediatrics; 2009 Mar;123(3):e471-5
Bobo JK, Kenneson A, Kolor K, Brown, MA.

All Articles

Search a database of articles that have been published by CDC authors within the National Center on Birth Defects and Developmental Disabilities from 1990 to present.

 

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