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Graphic: Globe with stick figures holding handsCDC works to prevent the complications of hemophilia and to improve the quality of life for people affected by the disorder. To help increase awareness, education, and research on hemophilia, we partner with many organizations.


 

Our Partners

American Society of Hematology
The American Society of Hematology (ASH) is the world’s largest professional society concerned with the causes and treatments of blood disorders. The mission of the Society is to further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic and vascular systems, by promoting research, clinical care, education, training, and advocacy in hematology.

National Hemophilia Foundation
The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for bleeding and clotting disorders through education, advocacy, and research.

Hemophilia Federation of America
The Hemophilia Federation of America (HFA) is a national nonprofit organization that assists and advocates for the bleeding disorders community.

American Thrombosis and Hemostatic Network
American Thrombosis and Hemostatic Network (ATHN) is dedicated to advancing and improving the care of individuals affected by bleeding and thrombotic disorders.

World Federation of Hemophilia
The World Federation of Hemophilia (WHF) is an international not-for-profit organization dedicated to improving the lives of people with hemophilia and related bleeding disorders.

Free Materials

CDC has brochures, fact sheets, and other educational tools that partners can view, print, and distribute.

World Hemophilia Day – April 17th

April 17th is World Hemophilia Day. This day is celebrated by hemophilia organizations around the world, and gives them an opportunity to increase awareness of hemophilia. It is a day for us to re-commit ourselves to continuing the fight to improve the quality of life of people with hemophilia around the world.

Visit the World Federation of Hemophilia Website for information and ideas for getting involved.

Conferences

The 2nd National Conference on Blood Disorders in Public Health
March 12-14, 2012 in Atlanta, Georgia”

The purpose of this conference was to further advance the public health context described during the 1st National Conference on Blood Disorders in Public Health (March 2010) and to promote the adoption and full integration of evidenced-based and evidenced-informed public health functions that are capable of promoting the health of and improving outcomes among people with a blood disorder. This conference was hosted by the Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention in partnership with: the Maternal and Child Health Bureau of the Health Resources and Services Administration; the Division of Blood Diseases and Resources of the National Heart, Lung, and Blood Institute and the Office of Rare Diseases Research of the National Institutes of Health; the American Society of Hematology; and Hemophilia of Georgia. The 3rd National Conference on Blood Disorders in Public Health is scheduled for 2015.

National Conference on Blood Disorders in Public Health

March 9-11, 2010 in Atlanta, Georgia

The goal of the two and a half-day conference is to serve as the catalyst for developing a nationally recognized public health framework for promoting the health of and improving outcomes among people at risk for or affected by a non-malignant blood disorder. The conference, hosted by CDC in partnership with the American Society of Hematology, the Health Resources and Services Administration, and the National Heart, Lung and Blood Institute, will gather together public health practitioners, medical professionals, health educators, health communication specialists, health informatics specialists, researchers, policymakers, international public health colleagues, advocacy groups, public health professional organizations and associations, private sector leaders, and others involved in work related to blood disorders. 

The International Society on Thrombosis and Haemostasis, Inc.
June 20-25, 2015 in Toronto, Canada

The International Society on Thrombosis and Haemostasis, Inc. is organized and operated exclusively for scientific and educational purposes. Its objectives are to foster and advance science relating to the important medical problems of thrombosis and abnormalities of hemostasis and vascular biology; to provide a forum for discussion of these problems; to encourage research on these problems by scientists of the several relevant disciplines; to foster the diffusion and exchange of ideas through scientific meetings and publications; to standardize nomenclature and methods as appropriate and timely. For more information visit: http://www.isth.org/?page=ISTHCongresses

The American Society of Pediatric Hematology/Oncology
May 14-17, 2014 in Chicago, Illinois

The most comprehensive and focused educational opportunity for pediatric hematologists/oncologists, the ASPHO 23rd Annual Meeting provides a unique opportunity to network and collaborate with fellow subspecialists in pediatric hematology/oncology. The Annual Meeting will present current research data on causes, diagnosis, and management of hematology/oncology problems in children and will apply the data to clinical practice. For more information visit: www.aspho.org/education/2014/annual-meeting.html

External Partners Group at the National Center on Birth Defects and Developmental Disabilities

The External Partners Group is a coalition of government and private sector organizations who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilitites. If you would like to become a partner and receive the newsletter, email updates, and other information, please visit the External Partners Group website.

 

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    National Center on Birth Defects and Developmental Disabilities

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    Atlanta, GA 30333
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