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Registry and Surveillance System for Hemoglobinopathies (RuSH)

  	Two men and a woman posing for a pictureIn 2010, in partnership with the National Institutes of Health’s National Heart, Lung, and Blood Institute, the Registry and Surveillance System for Hemoglobinopathies (RuSH) project was launched to collect initial state-specific, information on people with sickle cell disease (SCD) and thalassemia. The RuSH project activities in the seven participating states (California, Florida, Georgia, Michigan, New York, North Carolina, and Pennsylvania) are scheduled to end in the fall of 2013. Currently, RuSH states and the CDC are analyzing the data collected and preparing to launch health prevention and promotion activities by:

  • Creating fact sheets describing project results
  • Developing papers to describe the project, including how it was done and what information was collected
  • Developing papers that describe what was learned about the health of youth and adults with SCD and thalassemia in the 7 states

Registry and Surveillance System for Hemoglobinopathies (RuSH) Sites

RuSH Map showing the 7 sites: California, Florida, Georgia, Michigan, North Carolina, New York, and Pennsylvania CaliforniaFloridaGeorgiaMichiganMichiganNorth CarolinaNew YorkPennsylvania


RuSH Overview


RuSH Overview
The Registry and Surveillance System for Hemoglobinopathies (RuSH) is designed to collect information to learn about the number of people living with SCD and thalassemia so that we can better understand how these disorders affect their health.

CDC Medscape Commentary


RuSH Medscape Video
Learn about the Registry and Surveillance System for Hemoglobinopathies (RuSH) initiative.

RuSH Strategies Booklet


RuSH Strategies from the Field: Health Promotion [PDF - 5.01mb]
RuSH Strategies from the Field: Data Collection [PDF - 4 mb]

The RuSH Strategies from the Field reports were created to showcase some of the unique ways in which the seven states implemented activities designed to meet programmatic goals of RuSH. The Health Promotion report highlights one of each state’s many programs featuring information about resources needed to operate or replicate the activity, intended benefits and outcomes, and lessons learned. The Data Collection report highlights a particular aspect of each state’s data collection process, including information about resources, lessons learned and sustainability. To learn more about the RuSH project access the Medscape video, featuring Dr. Althea Grant.