Links to Other Websites
Disclaimer: Linking to a non-federal site does not constitute an endorsement by CDC, HHS, or any of its employees of the sponsors or the information and products presented on the site.
Adult Congenital Heart Association
The Adult Congenital Heart Association is a national organization providing education and support services for adults with congenital heart defects and their families. They are focused on the long-term needs of adults with congenital heart defects, providing education, outreach, and advocacy.
American College of Cardiology
The American College of Cardiology (ACC), a nonprofit medical society, is dedicated to enhancing the lives of cardiovascular patients through continuous quality improvement, patient-centered care, payment innovation and professionalism. The ACC provides professional education and operates national registries for the measurement and improvement of quality care.
American Heart Association
The American Heart Association offers information about the effects of and risk for congenital heart defects, as well as symptoms and treatment for children with congenital heart defects. This website also offers information about specific types of congenital heart defects.
Children’s Heart Association
The Children's Heart Association (formerly The Association for Children with Heart Disorders) is a support group run by families and friends of children with a heart defect for families with, or who have had, children with heart disorders.
Children’s Heart Foundation
The Children’s Heart Foundation works to understanding congenital heart defects by funding research to advance the diagnosis, treatment and prevention of congenital heart defects.
Congenital Heart Information Network
The Congenital Heart Information Network is a national organization providing education, support services, and financial assistance resources. It helps families of children with a congenital heart defect or acquired heart disease, as well as adults living with a congenital heart defect.
Congenital Heart Public Health Consortium
CDC provides technical assistance to the Congenital Heart Public Health Consortium, a unique collaboration that brings together families, experts, and organizations to address congenital heart defects through surveillance, research, education, health promotion, and policy development.
Cove Point Foundation: Congenital Heart Disease
This website is an in-depth resource on congenital heart defects. It offers information about specific types of congenital heart defects, including descriptions of the defects, treatments, and links to other resources.
It’s My Heart
It’s My Heart is a non-profit organization that provides support to and advocates for those affected by Acquired and Congenital Heart Defects (CHD). It aims to increase awareness about CHD, provide resources and education, and create alliances and networks among families, groups, hospitals, and the community.
Kid’s With Heart
Kid’s With Heart is an organization devoted to providing support for children and families affected by congenital heart defects. It provides parent-matching, online support, bereavement services, awareness products, and educational resources.
Little Hearts, Inc.
Little Hearts, Inc. is a national organization providing emotional support, education, resources, parent networking, and hope to families affected by congenital heart defects. Support services consist of parent matching, discussion board, quarterly newsletters, and our popular "Stories of Hope". Membership consists of families who have or are expecting a child with a CHD.
March of Dimes
The March of Dimes is a national organization focused on helping babies to be born healthy. Its website offers a brief overview of congenital heart defects, provides descriptions for some specific defects, and directs readers to additional resources.
Mended Hearts provides support for heart disease patients, their families and caregivers, by facilitating a positive patient-care experience. Mended Hearts partners with 460 hospitals and rehabilitation clinics and offers services to heart patients through visiting programs, support group meetings and educational forums.
National Heart Lung and Blood Institute
The National Heart, Lung, and Blood Institute features an overview on congenital heart defects. It includes information on how the heart works, types of defects, causes, signs and symptoms, diagnosis, treatment, issues related to living with a congenital heart defect, and clinical trials.
- Centers for Disease Control and Prevention
National Center on Birth Defects and Developmental Disabilities
Division of Birth Defects and Developmental Disabilities
1600 Clifton Road
Atlanta, GA 30333
TTY: (888) 232-6348
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