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Family History Collection Tools

The following inventory is a compilation of family history tools. The list is not exhaustive but includes tools that were developed for the general public and are accessible through the Internet. New tools will be added as they become available.

Family Health History Collection Tools

Family Healthware

Family Healthware™

Developer(s): Centers for Disease Control and Prevention
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Title: Family Healthware™
Format: An interactive web-based tool that collects information on personal health behaviors and screening, and family health history. Data is saved and stored in a database. Information can be updated as needed. Printable report includes drawing of family tree, familial risk assessment, and personalized prevention recommendations.
Availability: Currently being evaluated in a clinical trial. Also available for licensure and research studies. Contact genetics@cdc.gov
Target Population/Audience: General population
Languages: English
Completed by: Consumer
Diseases/Conditions: Heart disease, stroke, diabetes, colon cancer, breast cancer, and ovarian cancer.
Behavioral/Environmental Factors: Health behaviors - smoking, exercise, diet, aspirin, alcohol. Screening – cholesterol, blood pressure, blood glucose, fecal occult blood test, colonoscopy, sigmoidoscopy, clinical breast exam, mammogram.
Risk Assessment: Algorithms assess familial risk for each disease. User classified as having strong, moderate or weak familial risk.
Family Health History-Based Interventions: Algorithms assess familial risk and behaviors and screening and generate prevention recommendations. Share information with family members and health care providers.
Comments: CDC Web site has family health history resources and materials for the general public and health professionals and more information about Family Healthware. http://www.cdc.gov/genomics/

My Family Health Portrait

My Family Health Portrait

Developer(s): Centers for Disease Control and Prevention
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Title: Family Healthware™
Format: An interactive web-based tool that collects information on personal health behaviors and screening, and family health history.  Data is saved and stored in a database. Information can be updated as needed. Printable report includes drawing of family tree, familial risk assessment, and personalized prevention recommendations.
Availability: Currently being evaluated in a clinical trial. Also available for licensure and research studies. Contact genetics@cdc.gov
Target Population/Audience: General population
Languages: English
Completed by: Consumer
Diseases/Conditions: Heart disease, stroke, diabetes, colon cancer, breast cancer, and ovarian cancer.
Behavioral/Environmental Factors: Health behaviors - smoking, exercise, diet, aspirin, alcohol. Screening – cholesterol, blood pressure, blood glucose, fecal occult blood test, colonoscopy, sigmoidoscopy, clinical breast exam, mammogram.
Risk Assessment: Algorithms assess familial risk for each disease.User classified as having strong, moderate or weak familial risk.
Family Health History-Based Interventions: Algorithms assess familial risk and behaviors and screening and generate prevention recommendations. Share information with family members and health care providers.
Comments: CDC Web site has family health history resources and materials for the general public and health professionals and more information about Family Healthware. http://www.cdc.gov/genomics/

Family Health History Tools - Prenatal Genetic Screening Questionnaire, Pediatric Clinical Genetics Questionnaire, Adult Family Health History Form

Family Health History Tools - Prenatal Genetic Screening Questionnaire, Pediatric Clinical Genetics Questionnaire, Adult Family Health History Form

Developer(s): American Medical Association
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Title: Family Health History Tools - Prenatal Genetic Screening Questionnaire, Pediatric Clinical Genetics Questionnaire, Adult Family Health History Form
Format: Can be completed on-line and printed. Data is not saved.
Availability: http://www.ama-assn.org/ama/pub/physician-resources/medical-science/genetics-molecular-medicine/family-history.page
Target Population/Audience: Physicians and patients
Languages: English
Completed by: Physician or patient
Diseases/Conditions: Numerous diseases and conditions across all life stages.
Behavioral/Environmental Factors: Pregnancy exposures.
Risk Assessment: None
Family Health History-Based Interventions: The “Family Medical History in Disease Prevention” pamphlet for physicians describes the value in obtaining a family medical history and how knowledge of family health history can improve patient care.
Comments: Printed copies of the “Family Medical History in Disease Prevention” pamphlet and a patient pocket guide with instructions on completing a family health history are available on the web or can be ordered by sending an email request to srt@ama-assn.org.

The Heart of Diabetes Family History Tree

The Heart of Diabetes Family History Tree [PDF 1.86 MB]

Developer(s): The American Heart Association (AHA)
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Title: The Heart of Diabetes Family Health History Tree
Format: An online tool that draws a family tree and allows you to make a record of heart disease and stroke risk factors, including diabetes, for your blood relatives. Requires free registration. Data is encrypted and not accessible to the AHA.
Availability: http://www.heart.org/idc/groups/heart-public/@wcm/@hcm/documents/downloadable/ucm_314410.pdf [PDF 1.86 MB]
Target Population/Audience: General population
Languages: English
Completed by: Consumer
Diseases/Conditions: Diabetes, heart attack, high blood pressure, high total cholesterol or LDL cholesterol, Low HDL cholesterol, obesity, stroke.
Behavioral/Environmental Factors: Physical activity, smoke and second hand smoke
Risk Assessment: None
Family Health History-Based Interventions: Share information with family members and health care providers.
Comments: If you have questions for your family members about their health conditions, you can send them an e-card from this site to get the answers.

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