Skip directly to search Skip directly to A to Z list Skip directly to navigation Skip directly to site content Skip directly to page options
CDC Home

Multi-site Clinical Assessment of CFS - Frequently Asked Questions

Someone I know was selected for this study. How can I sign up?

Scientific studies, such as this one, follow strict rules for selecting participants. Unless you are a patient at one of the seven participating clinical sites, and meet the eligibility assessment, you cannot join the study.

How did CDC select the seven sites?

Full and open competition was used in soliciting offers for this requirement. The request for proposals (RFP 2011-N-13483) was posted in FedBizOpps in July 2011. This proposed procurement action was not set-aside for small business. All the valid contract proposals submitted within 30 days of the posting of the solicitation were reviewed and three contracts were awarded with a total of seven clinic sites.

What case definition was used for determining CFS cases?

No specific case definition was used. Any patient (aged 18 – 70 years) that is managed or diagnosed with CFS, post-infective fatigue (PIF) or myalgic encephalomyelitis (ME) at any of the seven participating clinical sites is eligible for participation in this study. Clinicians from each participating clinical site will determine whether a patient has CFS based on their clinical experience and expertise in CFS.

Why wasn't the Canadian case definition used for enrollment?

The goal of the study was to collect standardized data to characterize the illness as managed by clinical experts. This data can then be used to evaluate the strengths and weaknesses of current case definitions and determine refinements or additions of sub-groups for both clinical and research work.

 

CDC 24/7 – Saving Lives, Protecting People, Saving Money. Learn More About How CDC Works For You…
Contact Us:
  • Centers for Disease Control and Prevention
    1600 Clifton Rd
    Atlanta, GA 30333
  • 800-CDC-INFO
    (800-232-4636)
    TTY: (888) 232-6348
  • Contact CDC-INFO
USA.gov: The U.S. Government's Official Web PortalDepartment of Health and Human Services
Centers for Disease Control and Prevention   1600 Clifton Rd. Atlanta, GA 30329-4027, USA
800-CDC-INFO (800-232-4636) TTY: (888) 232-6348 - Contact CDC-INFO