Central Cancer Registry Functions
The process for evaluating and subsequently approving a pathology laboratory as being qualified to perform electronic reporting that meets cancer registry standards.
The process whereby a data source submits event reports to the central cancer registry, using established criteria for record layout format, required event report types, required data items, and transmission standards.
To verify that a group of event reports meet the standards for record layout format, and that the batch has not been submitted previously.
To verify that information submitted on an event report represents a reportable case and meets logic, consistency, and data validity standards.
To use defined criteria to determine whether source records refer to the same patient, based on the degree of agreement between demographic and other data fields. This process can be automated, manual, or a combination of both. Also called record linkage or matching.
Perform Tumor Linkage
To use defined criteria to determine whether source records for the same patient refer to the same tumor, based on the degree of agreement between cancer data fields. This process can be automated, manual, or a combination of both.
To combine data from two or more linked source records for the same patient and tumor to produce a single "best" value for each variable. This process can be automated, manual, or a combination of both.
An evaluation of a data source's ability to identify and transmit eligible, reportable neoplasms to the central cancer registry. It involves a review of the most likely sources of cases, including disease indices, pathology reports (such as surgical, bone marrow, autopsy, and cytology), radiation therapy logs, and surgical logs, to identify cancer cases that should have been reported to the central cancer registry, and compare these cases to those that were reported.
Perform Quality Assurance / Quality Improvement
Quality improvement is a planned set of activities by which a cancer registrar monitors quality and takes appropriate remedial action to improve future quality, maximizing correct reporting and characterizing the reporting process in measurable terms. Quality assurance or an audit is a formal review of patient records to evaluate case completeness and data quality.
Perform External Linkage to Improve Data
To obtain and/or validate data items by linking central cancer registry databases with non-central cancer registry databases. For example, using death certificate data to add missing vital status and race.
Conduct Death Clearance
Death clearance consists of two processes: death certificate follow-back is the process of reviewing a patient's medical history to determine if a cancer case reported first by a death certificate was diagnosed at any other source while the patient was alive; death certificate clearance is the process of linking death certificates from a state's vital statistics office with registry records to obtain death data for previously registered cancer cases.
Conduct Active Follow-Up
An organized system of long-term patient surveillance in which the registry monitors patients after discharge by obtaining updated information annually regarding a patient's health status.
Perform Interstate Data Exchange
To report cancer cases occurring in patients who live in another state to the appropriate central cancer registry.
Respond to Calls for Data
To submit cancer information to organizations to meet federal and state regulations and to assist in research activities (previously called reporting).
Provide Data for Use by Others
To disseminate statistical analyses and data interpretations to researchers for scientific research, policymakers for planning services, hospitals for planning technology purchases and staffing, and non-governmental organizations for community cancer prevention and control.
Conduct Linkage for Research
To provide cancer registration data to researchers regarding their study cases.
Perform Rapid Case Ascertainment
A special casefinding procedure that allows early or preliminary reporting of certain types of cases to notify researchers of eligible study subjects.
Conduct Research and Analysis
To analyze collected cancer data and convert it into information about treatment, survival, and other factors affecting cancer patients. To perform statistical analysis on collected data to provide interpreted information on cancer for a particular population.
Page last reviewed: November 9, 2011
Page last updated: November 9, 2011
Content source: Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion