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Contact Information
Centers for Disease
Control and Prevention
Division of Cancer
Prevention and Control
4770 Buford Hwy, NE
MS K-64
Atlanta, GA 30341-3717

Call: 1 (800) CDC-INFO
TTY: 1 (888) 232-6348
FAX: (770) 488-4760

E-mail: cdcinfo@cdc.gov

Central Cancer Registry Workgroup

  • Hospital Operations Workgroup
  • Central Cancer Registry Workgroup
  • Cancer Control and Data Use Workgroup
    		•
  • eHealth Initiatives
  • ePath Reporting Activities

    • Purpose and Goals

    The Central Cancer Registry (CCR) Workgroup was formed after the Strategic Assessment and Modeling Session (SAMS) held in Atlanta, Georgia, in March 2006. Regional and state registries are the main participants.

    The workgroup consists of participants from the March and October 2006 SAMS. The purpose of the workgroup is to—

    • Develop the CCR module of the NPCR-AERRO model.
    • Create a best practice use case for each cancer registry function identified at the SAMS.
    • Review and revise the diagrams.
    • Develop guidelines and recommendations.
    • Help develop an implementation strategy.

    The workgroup meets regularly to further NPCR-AERRO central cancer registry activities.

    Activities and Timeline

    The workgroup is reviewing and revising diagrams, developing guidelines and recommendations for central registries to use electronic reporting and automation, and collaborating on the development of an implementation strategy for electronic reporting. Below is a task list and work products that represent workgroup activities. The task list is updated as deliverables are finalized.

    CyberView: The latest versions of completed models, UML diagrams, and use case documents are available in this Web-based presentation tool that opens in a new browser window. CyberView provides a view of the models at different levels of granularity with easy drill-down navigation.

    Modeling

    Use Case Task Status Estimated Release Date
    1.1 Prepare and Transmit Event Report In final review
    • Use Case
    • Data Flow Diagram
    • Workflow Diagram
    		 Summer 2009
    1.2 Receive Batch File Complete October 2007
    1.3 Validate Event Report Complete October 2007
    1.4 Perform Patient Linkage In final review
    • Use Case
    • Data Flow Diagram
    • Workflow Diagram
    		 Summer 2009
    1.5 Perform Tumor Linkage Defer to NAACCR Tumor Linkage Workgroup Not applicable
    1.6 Perform Consolidation Defer to NAACCR Data Item Workgroup Not applicable
    2.1 Perform Casefinding Audits In final review
    • Use Case
    • Data Flow Diagram
    • Workflow Diagram
    		 Summer 2009
    2.2 Perform Quality Assurance / Quality Improvement In progress Summer 2009
    2.3 Perform External Linkage to Improve Data In progress Summer 2009
    2.4 Conduct Death Clearance Defer to NAACCR Death Clearance Workgroup Not applicable
    2.5 Conduct Active Follow-up Defer Summer 2009
    3.1 Perform Interstate Data Exchange Defer to NAACCR Confidentiality Committee Summer 2009
    4.1 Respond to Calls for Data Defer to Agency Publishing Call for Data Summer 2009
    5.1 Provide Data for Use by Others Assigned to NPCR-AERRO Cancer Control and Data Use Workgroup Summer 2009
    5.2 Conduct Linkage for Research Defer Summer 2009
    5.3 Conduct Research and Analysis Assigned to NPCR-AERRO Cancer Control and Data Use Workgroup Summer 2009
    5.4 Perform Rapid Case Ascertainment Defer to NAACCR IT Committee Summer 2009
    6.1 Conduct Education and Training Assigned to NPCR-AERRO ePath Workgroup Not applicable
    6.2 Handle Security No use case Not applicable
    6.3 Conduct Education and Training No use case Not applicable

    Analysis and Design

    Future activities include—

    • Define a list of reports to be submitted by each data source and a submission timeline for each.
    • Define a standard for naming files of event reports from data sources.
    • Define a format for transmitting the Medical Record Disease Index electronically.
     Related Links
  • Project Description
  • Project Approach
  • Workgroups and Activities
    		•
  • Publications
  • Contact Us
    		•

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    Page last reviewed: June 10, 2009
    Page last updated: June 10, 2009
    Content source: Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion
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