Skip directly to search Skip directly to A to Z list Skip directly to navigation Skip directly to site content Skip directly to page options
CDC Home
Share
Compartir

Data & Statistics

* The data on this page are from the study, “Prevalence of Diagnosed Tourette Syndrome in Children in the United States, 2007”unless otherwise noted. [Read article]1

A CDC study has found that 3 of every 1000 children 6 through 17 years of age have been diagnosed with Tourette syndrome.In the United States

  • It is not known exactly how many people have Tourette Syndrome (TS). A Centers for Disease Control and Prevention (CDC) study has found that 3 of every 1,000 children 6 through 17 years of age and living in the United States have been diagnosed with TS based on parent report; this represents about 148,000 children. Other studies using different methods have estimated the rate of TS at 6 per 1,000 children.

  • Among children with TS, 27% have been reported as having moderate or severe forms of the condition.

  • TS affects people of all racial and ethnic groups.

  • Males are affected three times more often than females.

  • A TS diagnosis is twice as likely among non-Hispanic White people than among Hispanic and non-Hispanic Black people.

  • A diagnosis of TS is twice as common among children 12 through 17 years of age as among those 6 through 11 years of age.

Co-Occurring Conditions

  • Among children diagnosed with TS, 79% also have been diagnosed with at least one additional mental health, behavioral, or developmental condition, such as:
    • Attention-deficit/hyperactivity disorder (ADHD), 64%;
    • Behavioral or conduct problems, 43%;
    • Anxiety problems, 40%;
    • Depression, 36%; and
    • Developmental delay affecting his or her ability to learn, 28%.

  • More than one-third of people with TS also have obsessive-compulsive disorder.2,3

Chart: Prevalence of selected diagnoses among people aged 6-17 years who have ever received a diagnosis of TS

Life Course

In most cases, tics decrease during adolescence and early adulthood, and sometimes disappear entirely; however, many experience tics into adulthood and, in some cases, tics can become worse in adulthood.4

  • One study that followed youth with TS over time found that at 18 years of age, almost half (47%) of the youth had been tic-free the week before they were interviewed, just over 10% had minimal tics, over a quarter (28%) had mild symptoms, and 11% had moderate to severe tics.2

Public Health Impact of TS

Presentations from the 5th International Scientific Symposium on Tourette Syndrome about the public health impact of TS are available online. These presentations include results from the 2009 CDC study on the prevalence of TS1, the prevalence and health service use of individuals with TS, the disability associated with tics in community samples, and priorities as judged by people with TS.

Video excerpts from these presentations »

References

  1. Centers for Disease Control and Prevention. Prevalence of diagnosed Tourette Syndrome in persons aged 6-17 years - United States, 2007. MMWR Morb Mortal Wkly Rep. 2009; 58(21): 581-5.
  2. Leckman, JF, Zhang, H, Vitale, A, Lahnin, F, Lynch, K, Bondi, C, et al. Course of tic severity in Tourette Syndrome: the first two decades. Pediatrics. 1998; 102(1 Pt 1): 14-19.
  3. Eapen, V, Crncec, R. Tourette Syndrome in children and adolescents: special considerations. J Psychosom Res. 2009. 67(6): 525-32.
  4. American Psychiatric Association. Diagnostic and statistical manual of mental disorders: DSM-IV-TR. 4th ed. Washington, DC; 2000.

 

Learn More about Health Insurance Market Place


Public Health Grand Rounds


Flu and disabilities button

Contact Us:
  • Centers for Disease Control and Prevention

    National Center on Birth Defects and Developmental Disabilities

    Division of Human Development and Disability

    1600 Clifton Road
    MS E-88
    Atlanta, GA 30333
  • 800-CDC-INFO
    (800-232-4636)
    TTY: (888) 232-6348
  • Contact CDC-INFO
USA.gov: The U.S. Government's Official Web PortalDepartment of Health and Human Services
Centers for Disease Control and Prevention   1600 Clifton Rd. Atlanta, GA 30333, USA
800-CDC-INFO (800-232-4636) TTY: (888) 232-6348 - Contact CDC-INFO