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Sickle cell Status fact sheetFact Sheet: Get Screened to Know Your Sickle Cell Status
Learn why and how to get screened for sickle cell trait.
Sickle Cell InfographicInfographic: Get Screened for Sickle Cell Trait
Did you know there’s more than one way to inherit sickle cell trait? Learn how it is inherited.
Fact Sheet: Sickle Cell Trait Cover

Fact Sheet: Sickle Cell Trait
What you should know about sickle cell trait.

Supporting Students with SCD Tip Sheet Thumbnail images

Tip Sheet: Supporting Students with Sickle Cell Disease
The purpose of this booklet is to inform people about sickle cell disease (SCD) and describe the roles that teachers, school staff and parents/caregivers play in supporting students living with SCD. The booklet highlights ways SCD may impact a student’s daily life and describes how school staff can make accommodations (i.e., adjustments to the classroom setting or instruction) to meet the needs of children who may experience health problems associated with SCD during the school day. The content covers information on ways SCD might impact education outcomes and information about pain, stroke, and symptoms associated with SCD that school personnel should know. Each student’s experience with SCD is different and the tips discussed should not replace any medical advice a person with SCD receives from their doctor.

 
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The Registry and Surveillance System for Hemoglobinopathies (RuSH) pilot project funded seven states to participate in data collection on sickle cell disease and thalassemia. State-specific fact sheets feature data on sickle cell disease provided by the pilot project.

Sickle Cell Disease in California

Sickle Cell Disease in California (for Providers)

Sickle Cell Disease in Georgia

Sickle Cell Disease in Georgia (for Providers)

Sickle Cell Disease in Michigan

Sickle Cell Disease in North Carolina

Sickle Cell Disease in North Carolina (for Providers)

Sickle Cell Disease in New York

Sickle Cell Disease in New York (for Providers)

 

Living Well with Sickle Cell Disease: Self-care Toolkit

Toolkit for Living Well with Sickle Cell Disease
The toolkit is a collection of materials that can be used to help people living with sickle cell disease(SCD) to manage their health and keep track of important information regarding medical care and treatment. The toolkit has multiple uses it is designed to help: (1) patients and their caregivers with the daily management of the disease, (2) organize important information regarding medical services, and (3) assist with maintaining communication between the many health and service providers that are involved with patient care.

Sickle Cell Disease Fact Sheet

Fact Sheet: Sickle Cell Disease
What you should know about sickle cell disease.

Fact Sheet: Sickle Cell Disease and College

Fact Sheet: Sickle Cell Disease and College
Nine steps to living well with sickle cell disease in college.

Fact Sheet: Sickle Cell and Pregnancy Cover

Fact Sheet: Sickle Cell and Pregnancy
What you should know about sickle cell disease and pregnancy.

Living Well With Sickle Cell Disease Cover

Living Well With Sickle Cell Disease
People with sickle cell disease can live full lives and enjoy most of the activities that other people do. The following tips will help you, or someone you know with sickle cell disease, stay as healthy as possible.

Five Tips to Help Prevent Infection Cover

Five Tips to Help Prevent Infection
Common illnesses, like the flu, can quickly become dangerous for a person with sickle cell disease. The best defense is to take simple steps to help prevent infections.

Emergency Guide: When to See the Doctor Cover

Emergency Guide: When to See the Doctor
It is very important that every person or family with a young child with sickle cell disease have a plan for how to get help immediately, at any hour, if there’s a problem. Be sure to find a place that will have access to your medical records or bring a copy.

National Sickle Cell Disease Directory cover

Sickle Cell Disease National Resource Directory
The Sickle Cell Disease National Resource Directory
is a compilation of national agencies, state-based
health providers, and community-based organizations
that provide services and resources for individuals
and families affected by SCD.

 

Learn More about Health Insurance Market Place

Sickle Cell Disease National Resource Directory. Click here to learn more.

Contact Us:
  • Centers for Disease Control and Prevention

    National Center on Birth Defects and Developmental Disabilities

    Division of Blood Disorders

    1600 Clifton Road
    MS E-87
    Atlanta, GA 30333
  • 800-CDC-INFO
    (800-232-4636)
    TTY: (888) 232-6348
  • Contact CDC-INFO
  • Page last reviewed: December 9, 2014
  • Page last updated: December 9, 2014
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Centers for Disease Control and Prevention   1600 Clifton Rd. Atlanta, GA 30329-4027, USA
800-CDC-INFO (800-232-4636) TTY: (888) 232-6348 - Contact CDC-INFO