Real Stories from People living with Hearing Loss
"I'm honored to share my family's experience with hearing loss. I am the mother of twins, David and Elyssa, who were born extremely early. One of the consequences of their prematurity is that both my children have permanent hearing loss.
“When I was 17 years old, I lost all of my hearing in one ear. I learned that I had a genetic syndrome that caused tumors to grow on my hearing nerves. And I learned that someday I would become completely deaf in the other ear. I was devastated and frightened. I grew up with full hearing and didn't know anyone who was deaf. I couldn't imagine the world without sound. A few years later, a friend told me about a remarkable new technology called an alpha pager, a pager that could receive a message sent via a live operator. I was excited to think that someday this technology could help me.
If you would like to share your personal story, please contact us at Contact CDC-INFO
- Centers for Disease Control and Prevention
National Center on Birth Defects and Developmental Disabilities
Hearing Loss Team
1600 Clifton Road
Atlanta, GA 30333
TTY: (888) 232-6348
- Contact CDC-INFO