Personal Story: Tasha

At a glance

Tasha Hines received her sickle cell disease (SCD) diagnosis as a newborn. Despite her condition, she's been able to live a full life by managing her SCD appropriately. Read more about her journey below, including her career path.

Tasha Hines

Tasha's story

Tasha Hines is 39 years old, married, and a registered nurse at an internal medicine outpatient clinic.A She also has sickle cell disease (SCD). Tasha was diagnosed through newborn screening. The news of her sickle cell diagnosis came as a surprise to her parents, who later learned they both carried the trait for SCD, as does Tasha's older sister.


Growing up with SCD, Tasha experienced a lot of pain. These episodes of pain are commonly referred to in the sickle cell community as a pain crisis. Tasha's mother was always worrying about her doing certain things when she was growing up. "She was scared when I took my first flight. She was scared when I had a headache. She would automatically think I was having a pain crisis."

In 2010, Tasha experienced a major pain crisis which resulted in her being hospitalized for 9 days. The doctors told her she had pneumonia, and her hemoglobin was very low. Tasha was told by her medical team that she would need to have a blood transfusion. At first, Tasha refused the transfusion. "Up to that point, I had never received blood in my life, and I didn't want anyone else's blood in my body," she said. However, her father was concerned for her safety and well-being and convinced her to go through with the procedure.


Tasha has been very fortunate and has been able to live a full life because of how she manages and approaches life with SCD. "Luckily, I've been able to do all the things that others who don't have sickle cell can do." She tries to watch her diet, stays hydrated, takes folic acid, and takes steps to manage her stress. She also makes sure she gets enough rest and usually doesn't need anything more than Tylenol to manage her pain. "I know my limitations. If I have any pain, I know to stop." In addition, she makes sure to visit her hematologist (a doctor who specializes in blood disorders) once a year.

She is still concerned about her future, whether any potential grandchildren could have SCD since her kids will inherit the sickle cell trait from her. "I will have to educate my children about choosing a partner because if their partner has sickle cell trait any future children they have will have an increased chance of having sickle cell disease."

Tasha said that living with the condition also has influenced her career choice as an adult. "Having sickle cell disease is what led me into the healthcare field, even though my mother didn't want me to pursue nursing. She thought it was too strenuous and wanted me to have a sit-down job."

Lessons learned

Tasha wants others to know that SCD is manageable if you are aware of your lifestyle and how it contributes to your health. Some tips she offers for others with SCD include the following:

  • Read all you can about your diagnosis and keep a close relationship with your pediatrician.
  • Inform your teachers and make people aware of your condition.
  • Keep hydrated.
  • Get regular checkups.
  • Reduce stress levels if you can.
  • Limit strenuous activities that could cause a crisis.

CDC thanks Tasha for sharing her story.

  1. Note: Personal stories were written over the past decade. Thus, some information about the storyteller and their future ambitions might appear dated. We did not attempt to revise any of this information because it reflects the storyteller’s experience at the time the story was developed. Nonetheless, we believe the lived experiences described in these stories remain relevant and may be helpful to those experiencing similar challenges.