Genomic Resources E

Educational materials

For General Public

• Cardiovascular Disease: Genes are Important, but Health-Related Behaviors and Lifestyle Choices can Make or Break your Health
  “Howard will turn 50 soon, and it worries him. His grandfather died of a heart attack in his fifties, and so did his father and uncle.”
• CDC OPHG Podcasts and Videocasts
• Consumer Genetics Resources, American Society of Human Genetics
• Genetics Generation
• Genetics and Genomics for Patients and the Public, National Human Genome Research Institute
• Genetics Home Reference
• GEMSS – Genetics Education Materials for School Success
• Genetic Science Learning Center, University of Utah
• Understanding Genetics: A Guide for Patients and Professionals, Genetic Alliance
• YourGenome.org, Wellcome Trust Sanger Institute

Also see Disease and Genetic Information, Family Health History, Glossaries, and other sections of interest in this resource guide.

For Policymakers

• GinaHelp, Genetic Alliance, Genetics and Public Policy Center, and NCHPEG

For Researchers and Public Health Professionals

• Case Studies for Medical Students: Ethical, Legal, and Social Issues (ELSI) Associated with Genetics
• Certificate Program in Public Health Genetics, University of Michigan School of Public Health
• CDC’s Expert Commentary Series on Medscape
• Educational Materials for Health Professionals, World Health Organization
• Familial Hypercholesterolemia, CDC Expert Commentary, Medscape
• Family Health History Case Studies for Clinicians, Office of Public Health Genomics
• Human Genome Project Education Resources, U.S. Department of Energy
• Information for Genetic Professionals, University of Kansas Medical Center
• Lecture Series on Genomics, Howard Hughes Medical Institute
• Newborn Screening and Follow-up
• Online Education Kit: Understanding the Human Genome Project, National Human Genome Research Institute
• Personal Genomic Tests, CDC Expert Commentary, Medscape

Also see Training Programs and Courses and Academic Degree Programs

For Teachers

• Dolan DNA Learning Center
• Education, American Society of Human Genetics
• National DNA Day: Teaching Tools
• NIH Curriculum Supplements for High School
• Scitable from Nature Education
• University of Utah Genetic Science Learning Center

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Ethical, legal, and social issues (ELSI) information

• Coalition for Genetic Fairness
• Ethical, Legal, and Social Issues, Human Genome Project Information, U.S. Department of Energy
• Ethical, Legal and Social Implications of Human Genomics, World Health Organization
• Ethical, Legal, Social Implications & Issues, Kansas University Medical Center
• Ethical, Legal, and Social Issues in Public Health Genetics, University of Michigan Center for Public Health and Community Genomics
• HumGen International
• National Information Resource on Ethics & Human Genetics, Georgetown University
• Policy & Ethics, National Human Genome Research Institute, NIH

Also see Policy

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Events

• Upcoming Events
  Conferences, seminars, workshops, and meetings related to genomics and public health offered in the United States and other countries

Selected past events related to public health genomics offered by CDC and partners.

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Evidence-based recommendations

Evidence-based recommendations on the validity and utility of specific genetic tests currently being used in clinical practice.

• Evaluation of Genomic Applications in Practice and Prevention (EGAPP™)
  • Testing for Cytochrome P450 Polymorphisms (CYP450) in Adults with Non-Psychotic Depression Prior to Treatment with Selective Serotonin Reuptake Inhibitors (SSRIs)
  • Can UGT1A1 Genotyping Reduce Morbidity and Mortality in Patients with Metastatic Colorectal Cancer Treated with Irinotecan?
  • Can tumor gene expression profiling improve outcomes in patients with breast cancer?
  • Genetic testing strategies in newly diagnosed individuals with colorectal cancer aimed at reducing morbidity and mortality from Lynch syndrome in relatives
  • Genomic profiling to assess cardiovascular risk to improve cardiovascular health
  • Genetic testing for Factor V Leiden and prothrombin variants for idiopathic venous thromboembolism (VTE)
  • Can testing of tumor tissue for mutations in EGFR pathway downstream effector genes in patients with metastatic colorectal cancer improve health outcomes by guiding decisions regarding anti-EGFR therapy?
  • Does genomic profiling to assess Type 2 Diabetes (T2D) risk improve health outcomes?
  • Does PCA3 Testing for the Diagnosis and Management of Prostate Cancer improve patient health outcomes?

• U.S. Preventive Services Task Force
  • Genetic Risk Assessment and BRCA Mutation Testing for Breast and Ovarian Cancer Susceptibility
  • Screening for Hemochromatosis

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Evidence-based reviews

Evidence-based reviews on specific genetic tests and family health history conducted through the Evidence-Based Practice Centers (EPC) Program of the Agency for Healthcare Research and Quality in the U.S. Department of Health and Human Services.

• Collection and Use of Cancer Family History in Primary Care
• EGAPP™ supplementary evidence review: DNA testing strategies aimed at reducing morbidity and mortality from Lynch syndrome
• Genomic Tests for Ovarian Cancer Detection and Management
• HER2 Testing to Manage Patients with Breast or Other Solid Tumors
• Hereditary Nonpolyposis Colorectal Cancer: Diagnostic Strategies and Their Implications
• Impact of Gene Expression Profiling Tests on Breast Cancer Outcomes
• Testing for Cytochrome P450 Polymorphisms (CYP450) in Adults with Non-Psychotic Depression Prior to Treatment with Selective Serotonin Reuptake Inhibitors (SSRIs)

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