Thalassemia Communication Resources

What to know

CDC develops and shares resources to increase public awareness of thalassemia and help people with thalassemia and their caregivers better manage the condition. These resources include fact sheets, videos, and social media graphics.

Blocks with letters on them lined up to spell out the word RESOURCES.

Videos

Aaron Cheng talking in a library

Video Series on Living with Thalassemia

Learn about thalassemia and how Aaron has overcome challenges related to thalassemia.

Graphics for social media

Ancestors from here? Map of the following shaded regions: Africa, Europe, and Southeast Asia. Give blood Save lives Tell others blooddonordiversity.com Sickle cell disease (SCD) and thalassemia are inhertited blood conditions. Some people with these conditions count on blood from volunteer donors to live (transfusions). People born with SCD or thalassemia have ancestors from places shown on the map. If you do too, your blood may be their life-saving match! The map highlights areas in southern Europe, Africa, and Southeast Asia.

Downloadable Graphics for Social Media Sharing

Share graphics on social media to raise awareness of the need for blood donors to help save lives.

Materials

Group of healthcare providers looking at medical chart

Initiating Regular Transfusions

Information to help people with β thalassemia know when and why to initiate regular transfusions.
Doctors talking to patients giving blood

Understanding a Transfusion Plan

Information to help people with β thalassemia understand their transfusion plan.

Materials from other organizations

Guide To Living With Thalassemia

Learn more about how to live healthy with thalassemia by viewing this guide.

School Toolkit for Thalassemia

View this school toolkit to learn more about how to best manage school and thalassemia transfusions for children who have thalassemia.

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Content Source:
National Center on Birth Defects and Developmental Disabilities (NCBDDD)