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IIS Policy and Legislation

Privacy, Confidentiality, and HIPAA

Privacy, confidentiality, and security of information are important components of immunization information systems. The following links and documents provide information on HIPAA as well as legislation related to IIS within states. Review the Functional Standards to better understand how IIS address these areas.

Health Insurance Portability and Accountability Act (HIPAA)

State IIS Legislation

A survey of state immunization information system-related legislation was conducted by the CDC. This Survey of State IIS Legislation summarizes for each state:

if a state has law authorizing IIS; and if so, if it mandates reporting
if state has law addressing sharing of immunization information
if state has law addressing sharing of healthcare information
type of consent: required, implied, or not yet addressed
if implied consent, whether there are provisions to opt out or limit access
whether notice is given of inclusion in the IIS

See the ASTHO State Immunization Legislation Resources [139 KB, 11 pages] for more information on IISrelated legislation.

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Contact IIS:

National Center for Immunization and Respiratory Diseases
Centers for Disease Control and Prevention
1600 Clifton Road NE, Building 24
Mailstop A-19
Atlanta, GA 30333
iisinfo@cdc.gov