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IIS Policy and Legislation

Privacy, Confidentiality, and HIPAA

Privacy, confidentiality, and security of information are important components of immunization information systems. The following links and documents provide information on HIPAA as well as legislation related to IIS within states. Review the Functional Standards to better understand how IIS address these areas.


State IIS Legislation

A survey of state immunization information system-related legislation was conducted by the CDC. This Survey of State IIS Legislation summarizes for each state:

  • if a state has law authorizing IIS; and if so, if it mandates reporting
  • if state has law addressing sharing of immunization information
  • if state has law addressing sharing of healthcare information
  • type of consent: required, implied, or not yet addressed
  • if implied consent, whether there are provisions to opt out or limit access
  • whether notice is given of inclusion in the IIS

A peer-reviewed paper on this study, including more detailed data, has been accepted for publication at the Journal of Public Health Management and Practice.  This site will be updated with the print citation when known, but for now the paper, Immunization Information Systems: A Decade of Progress in Law and Policy has been published ahead of print on JPHMP’s website (subscription required for full text).

See the ASTHO State Immunization Legislation Resources [139 KB, 11 pages] for more information on IISrelated legislation.

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