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National Program of Cancer Registries

The CDC-funded National Program of Cancer Registries (NPCR) is a population-based surveillance system of cancer registries, established in 1992, which collects data on cancer for 96% of the U.S. population.

About NPCR

NPCR Data and Documentation

2011 NPCR Restricted Access [PDF - 394 KB]

2012 NPCR Restricted Access [PDF - 365 KB]

2013 NPCR Restricted Access [PDF - 415 KB]

Please follow the standard RDC Procedures to access these data.

Comparative Effectiveness Research (CER) Data

In response to the need for data to support comparative effectiveness research (CER), or patient-centered outcomes research, the Agency for Healthcare Research and Quality (AHRQ) and CDC's National Program of Cancer Registries (NPCR) developed a special data collection enhancement project to help answer specific CER questions through the development of analytic datasets. This cancer specific CER dataset includes unique detailed treatment and biomarker data for 2011 breast, colon, and rectal cancers as well as chronic myeloid leukemia cases collected from ten geographically diverse registries.

More about CER

CER Data and Documentation

2011 CER Restricted Access Data-dictionary [PDF - 5.9 MB]

Please follow the standard RDC Procedures to access these data.

Additional Considerations:

Access Modes

NPCR data can be accessed through the four RDC access modes:

User Fees

The standard RDC fees are waived for these data because NPCR has contributed funds to cover them. Please indicated "not applicable – NPCR" on the Funding line in the proposal format.

Approved Projects- Next Steps

The RDC Approved Projects- Next Steps outlines the process with the following exception(s):

  • Data set creation – the variables listed in the data dictionary included in your proposal format will be extracted from the data files to create the analytic data set you will access to conduct your research.

Always discuss next steps with your RDC Analyst.

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