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Administration on Intellectual and Developmental Disabilities (AIDD)
AIDD seeks to improve and increase services for individuals with developmental disabilities that promote independence and inclusion in society. This website contains information on AIDD’s programs and other helpful resources, such as a developmental disabilities program directory by state and grants and funding information.

American Academy of Pediatrics
The American Academy of Pediatrics comprises pediatricians committed to the health of infants, children, adolescents, and young adults. The website contains general information about children’s health, as well more specific information about guidelines, policies, and publications. This organization also hosts a website specifically for parents: HealthyChildren.org.

American Association on Intellectual and Developmental Disabilities (AAIDD)
The AAIDD is an interdisciplinary organization of professionals and citizens working to support individuals with disabilities by promoting policy, research, and practice.

Association of University Centers on Disabilities (AUCD)
The AUCD is a network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, as well as their families and communities.

Building the Legacy: IDEA 2004
This website provides resources related to the Individuals with Disabilities Education Act (IDEA). Divided between information related to Part B (for those 3 through 21 years of age) and Part C (for those from birth through 2 years of age), this website offers video clips, training materials, presentations, and other helpful materials that cover a variety of topics from the Individualized Education Program to IDEA’s alignment with the No Child Left Behind Act.

Department of Education
The U.S. Department of Education (DOE) has resources to assist with the educational needs of children with developmental disabilities.

DisabilityMeasures.org
DisabilityMeasures.org is an online resource with measurement tools for assessment, screening, and research concerning individuals with disabilities.

Diagnostic and Statistical Manual of Mental Disorders
The Diagnostic and Statistical Manual of Mental Disorders (DSM), published by the American Psychiatric Association, is the standard classification of mental disorders used by mental health professionals in the United States.

Disability.gov
Disability.gov offers comprehensive information on disability programs and services in communities nationwide. The site links to more than 14,000 resources from federal, state, and local government agencies; academic institutions; and nonprofit organizations.

First Signs
First Signs is dedicated to educating parents and professionals about early identification and intervention for children at risk for developmental delays and disorders, including autism.

Insure Kids Now!
Each state provides no-cost or low-cost health insurance coverage for eligible children through Medicaid and the Children’s Health Insurance Program. This website has basic facts about these programs. It also has links to each state's insurance program for children, where you can learn who is eligible for the programs, how to apply, and what services are covered. Information is available in English and Spanish.

International Classification of Functioning, Disability, and Health
The International Classification of Functioning, Disability, and Health provides a unifying framework for classifying the consequences of disease and for measuring health and disability at both individual and population levels.

MedlinePlus
MedlinePlus, a service of the U.S. National Library of Medicine and the National Institutes of Health, provides information on many different types of developmental disabilities, as well as resources on prevention and screening, research, statistics, law and policy, and more.

My Child Without Limits
My Child Without Limits provides resources for families of young children from birth through 5 years of age with developmental delays or disabilities, as well as for professionals who work with these individuals. The site also has a national resource locator where visitors can find local service providers, community organizations, and government agencies.

National Association of Councils on Developmental Disabilities (NACDD)
The NACDD supports state and territorial councils in implementing the Developmental Disabilities Assistance and Bill of Rights Act and promoting the interests and rights of individuals with disabilities and their families.

National Dissemination Center for Children with Disabilities (NICHCY)
The NICHCY serves as a source of information on programs and services for infants, children, and youth with disabilities; IDEA, the nation’s special education law; and research-based information on effective practices for children with disabilities. The website includes resource sheets that list state agencies serving children and youth with disabilities, state chapters of disability organizations and parent groups, and parent training and information projects.

National Institutes of Health (NIH)
Several institutes within the NIH conduct and fund research about developmental disabilities. They also offer information to the public and educational programs for health professionals. They include:

PBS Parents: Children with Disabilities
PBS Parents provides information about child development from birth through the early school years. The Children with Disabilities page covers topics such as inclusive education, assistive technology, and advocating for your child.

Special Education Guide
Special Education Guide provides easy-to-understand advice, information, and resources for parents and teachers of children with special needs.

The Arc
The Arc is a national, community-based organization advocating for individuals with intellectual and developmental disabilities and their families through public policy and provision of supports and services.

The International Classification of Diseases
The International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM) is the official system of codes for diagnoses and procedures in the United States. The International Classification of Diseases, Tenth Revision (ICD-10) is used internationally.

The State of the World's Children 2013: Children with Disabilities
The 2013 edition of this report focuses on the situation of children with disabilities across the world.

Transportation Security Administration (TSA): Children with Disabilities
The TSA offer tips to parents and guardians of children with disabilities when traveling.

Other Resources

Links to websites related to autism spectrum disorders

Links to websites related to cerebral palsy

Links to websites related to hearing loss

Link to external partners working together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities

 

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Contact Us:
  • Centers for Disease Control and Prevention

    National Center on Birth Defects and Developmental Disabilities

    Division of Birth Defects and Developmental Disabilities

    1600 Clifton Road
    MS E-87
    Atlanta, GA 30333
  • 800-CDC-INFO
    (800-232-4636)
    TTY: (888) 232-6348
  • Contact CDC-INFO
  • Page last reviewed: December 26, 2013
  • Page last updated: December 26, 2013
USA.gov: The U.S. Government's Official Web PortalDepartment of Health and Human Services
Centers for Disease Control and Prevention   1600 Clifton Rd. Atlanta, GA 30333, USA
800-CDC-INFO (800-232-4636) TTY: (888) 232-6348 - Contact CDC-INFO