Publications and Presentations Using SLAITS Data

Selected products that incorporate SLAITS data are listed below. This non-exhaustive list is updated periodically. Please send citations for SLAITS materials not listed below to slaits@cdc.gov for possible inclusion.

Note to Data Users:

This list attempts to facilitate identification, use, and dissemination of SLAITS-related data products. The words and opinions expressed are those of the author(s), and are not necessarily those of the Department of Health and Human Services, funding agency or organization(s), or data collection contractor(s).

*Grey literature is defined by the Grey Literature Network Service as “information produced on all levels of government, academics, business and industry in electronic and print formats not controlled by commercial publishing i.e. where publishing is not the primary activity of the producing body” (Luxembourg, 1997 – Expanded in New York, 2004); the Grey Literature Network Serviceexternal icon, accessed June 6, 2007). Some libraries (such as the University of British Columbia Library) also classify e-mails, faxes, blog postings, wikis, RSS feeds, and podcasts as grey literature to address changes in technology.

Grey literature is not always subject to a rigorous scientific peer review process prior to dissemination. Readers and data users are cautioned to be vigilant and thorough when assessing the quality of these products.

Design and Operation Reports

Bramlett MD, Brooks KS, Foster EB, Satorius J, Frasier AM, Skalland BJ, Nysse-Carris KL, Morrison HM, Chowdhury SR. Design and Operation of the National Survey of Adoptive Parents of Children with Special Health Care Needs, 2008 pdf icon[PDF – 942 KB]. National Center for Health Statistics. Vital Health Stat 1(51). 2010.

Bramlett MD, Foster EB, Frasier AM, Satorius J, Skalland BJ, Nysse-Carris KL, Morrison HM, Chowdhury SR. Design and Operation of the National Survey of Adoptive Parents, 2007 pdf icon[PDF – 1.4 MB]. National Center for Health Statistics. Vital Health Stat 1(50). 2010.

O’Connor KS, Brooks KS, Nysse-Carris KL, Skalland BJ, Sipulski ET, Costanzo DM. Design and Operation of the Survey of Adult Transition and Health, 2007 pdf icon[PDF – 714 KB]. National Center for Health Statistics. Vital Health Stat 1(52). 2011.

Blumberg SJ, Welch EM, Chowdhury SR, Upchurch HL, Parker EK, Skalland BJ. Design and Operation of the National Survey of Children with Special Health Care Needs, 2005-2006 pdf icon[PDF – 2 MB]. National Center for Health Statistics. Vital Health Stat 1(45). 2008.

Blumberg SJ, Olson L, Frankel MR, Osborn L, Srinath KP, Giambo P. Design and Operation of the National Survey of Children’s Health, 2003 pdf icon[PDF – 3.6 MB]. National Center for Health Statistics. Vital Health Stat 1(43). 2005.

O’Connor KS, Osborn L, Olson L, Blumberg SJ, Frankel MR, Srinath KP, Giambo P. Design and Operation of the National Asthma Survey, 2003 pdf icon[PDF – 1.2 MB]. National Center for Health Statistics. Vital Health Stat 1(46). 2008.

Blumberg SJ, Olson L, Frankel M, Osborn L, Becker CJ, Srinath KP, Giambo P. Design and Operation of the National Survey of Children with Special Health Care Needs, 2001 pdf icon[PDF – 3.4 MB]. National Center for Health Statistics. Vital Health Stat 1(41). 2003.

Blumberg SJ, Olson L, Osborn L, Srinath KP, Harrison H. Design and Operation of the National Survey of Early Childhood Health, 2000 pdf icon[PDF – 2.3 MB]. National Center for Health Statistics. Vital Health Stat 1(40). 2002.

National Survey of Children with Special Health Care Needs, 2009-2010

Wiener RC, Wiener MA. Unmet dental and orthodontic need of children with special health care needs in West Virginiapdf iconexternal icon. Rural and Remote Health (online) 2012;12(3):2069. Accessed December 17, 2012.

National Survey of Adoptive Parents of Children with Special Health Care Needs, 2008

McKlindon A, Welti K, Vandivere S, Malm K. Adopted children with special health care needs: National survey findingspdf iconexternal icon. Adoption Advocate 2011; number 32. Alexandria, VA: National Council for Adoption. Accessed December 12, 2012.

National Survey of Children’s Health, 2007

Shetgiri R, Lin H, Avila RM, Flores G. Parental characteristics associated with bullying perpetration in US children aged 10 to 17 years. Am J Public Health 2012;102(12):2280-86.

Ford JL, Rechel M. Parental perceptions of the neighborhood context and adolescent depression. Public Health Nurs 2012;29(5):390-402.

Bennett AC, Brewer KC, Rankin KM. The association of child mental health conditions and parent mental health status among US children, 2007. Matern Child Health J 2012;16(6):1266-75.

Freedman BH, Kalb LG, Zablotsky B, Stuart EA. Relationship status among parents of children with Autism Spectrum Disorders: A population-based study. J Autism Dev Disord 2012;42(4):539-548.

Boudreau ADA, Van Cleave JM, Gnanasekaran SK, Kurowski DS, Kuhlthau KA. The medical home: Relationships with family functioning for children with and without special health care needs. Acad Pediatr 2012;12(5):391-8.

BeLue R, Degboe AN, Miranda PY, Francis LA. Do medical homes reduce disparities in receipt of preventive services between children living in immigrant and non-immigrant families? J Immigr Minor Health 2012; 14(4):617-25.

Lau M, Lin H, Flores G. Factors associated with human papillomavirus vaccine-series initiation and healthcare provider recommendation in US adolescent females: 2007 National Survey of Children’s Health. Vaccine 2012;30(20):3112-8.

Bennett AC, Rankin KM, Rosenberg D. Does a medical home mediate racial disparities in unmet healthcare needs among children with special healthcare needs? Matern Child Health J 2012;16:S330-8.

Robl JM, Jewell TD, Kanotra S. The effect of parental involvement on problematic social behaviors among school-age children in Kentucky. Matern Child Health J 2012;16:S287-297.

Iida H, Lewis CW. Utility of a summative scale based on the Children with Special Health Care Needs (CSHCN) Screener to identify CSHCN with special dental care needs. Matern Child Health J 2012;16(6):1164-72.

Houtrow A, Jones J, Ghandour R, Stickland B, Newacheck P. Participation of children with special health care needs in school and the community. Acad Pediatr 2012;12(4):326-34.

Drummond A, Looman WS, Phillips A. Coping among parents of children with special health care needs with and without a medical home. J Pediatr Health Care 2012;26(4):266-75.

Palli SR, Mehta S, Aparasu PR. Prevalence and predictors of human papillomavirus vaccination in adolescent girls. J Am Pharm Assoc 2012;52(1):52-8.

Guarnizo-Herreno CC, Wehby GL. Explaining racial/ethnic disparities in children’s dental health: A decomposition analysis. Am J Public Health 2012;102(5):859-66.

Hinojosa MS, Hinojosa R, Fernandez-Baca D, Knapp C, Thompson LA, Christou A. Racial and ethnic variation in ADHD, comorbid illnesses, and parental strain. J Health Care Poor Underserved 2012; 23(1):273-89.

Knapp CA, Hinojosa M, Baron-Lee J, Fernandez-Baca D, Hinojosa R, Thompson L. Factors associated with a medical home among children with attention-deficit hyperactivity disorder. Matern Child Health J 2012;16:1771-78.

Test FS, Caskey R, Rankin KM. The relationship between receiving care within a medical home and HPV vaccine receipt for adolescent girls: Results of the 2007 National Survey of Children’s Health. Matern Child Health J 2012. [Epub online 14 March 2012].

Special journal issue

The April 2012 supplement to volume 16, issue 1 of the Maternal and Child Health Journal is entirely devoted to national and state-specific findings from the 2007 National Survey of Children’s Health.

Kogan MD, Ghandour RM, Schempf AH. Introduction to the special issue of articles from the 2007 National Survey of Children’s Health. Matern Child Health J 2012;16(1):S1-S5.

Barradas DT, Kroelinger CD, Kogan MD. Medical home access among American Indian and Alaska Native children in 7 states: National Survey of Children’s Health. Matern Child Health J 2012;16(1):S6-S13.

Belanoff CM, McManus BM, Carle AC, McCormick MC, Subramanian SV. Racial/ethnic variation in breastfeeding across the US: A multilevel analysis from the National Survey of Children’s Health, 2007. Matern Child Health J 2012;16(1):S14-S26.

Bell JF, Huebner CE, Reed SC. Oral health need and access to dental services: Evidence from the National Survey of Children’s Health, 2007. Matern Child Health J 2012;16(1):S27-S34.

Bethell C, Forrest CB, Stumbo S, Gombojav N, Carle A, Irwin CE. Factors promoting or potentially impeding school success: Disparities and state variations for children with special health care needs. Matern Child Health J 2012;16(1):S35-S43.

Branum AM, Simon AE, Lukacs SL. Among children with food allergy, do sociodemographic factors and healthcare use differ by severity? Matern Child Health J 2012;16(1):S44-S50.

Colby MS, Lipson DJ, Turchin SR. Value for the money spent? Exploring the relationship between expenditures, insurance adequacy, and access to care for publicly insured children. Matern Child Health J 2012;16(1):S51-S60.

Crocetti M, Ghazarian SR, Myles D, Ogbuoji O, Cheng TL. Characteristics of children eligible for public health insurance but uninsured: Data from the 2007 National Survey of Children’s Health. Matern Child Health J 2012;16(1):S61-S69.

Hawkins SS, Chandra A, Berkman L. The impact of tobacco control policies on disparities in children’s secondhand smoke exposure: A comparison of methods. Matern Child Health J 2012;16(1):S70-S77.

Busacker A, Kasehagen L. Association of residential mobility with child health: An analysis of the 2007 National Survey of Children’s Health. Matern Child Health J 2012;16(1):S78-S87.

Kenney MK. Child, family, and neighborhood associations with parent and peer interactive play during early childhood. Matern Child Health J 2012;16(1):S88-S101.

Kramer MR, Dunlop AL. Inter-state variation in Human Papilloma Virus vaccine coverage among adolescent girls in the 50 US states, 2007. Matern Child Health J 2012;16(1):S102-S110.

Riis J, Grason H, Strobino D, Ahmed S, Minkovitz C. State school policies and youth obesity. Matern Child Health J 2012;16(1):S111-S118.

Moore KA, Murphey D, Bandy T. Positive child well-being: An index based on data for individual children. Matern Child Health J 2012;16(1):S119-S128.

Ogbuanu C, Goodman D, Kahn K, Noggle B, Long C, Bagchi S, Barradas D, Castrucci B. Factors associated with parent report of access to care and the quality of care received by children 4 to 17 years of age in Georgia. Matern Child Health J 2012;16(1):S129-S142.

Salas J, Xaverius PK, Chang JJ. Does a medical home influence the effect of low birthweight on health outcomes? Matern Child Health J 2012;16(1):S143-S150.

Schieve LA, Rice C, Yeargin-Allsopp M, Boyle CA, Kogan MD, Drews C, Devine O. Parent-reported prevalence of Autism Spectrum Disorders in US-born children: An assessment of changes within birth cohorts from the 2003 to the 2007 National Survey of Children’s Health. Matern Child Health J 2012;16(1):S151-S157.

Singh GK, Ghandour RM. Impact of neighborhood social conditions and household socioeconomic status on behavioral problems among US children. Matern Child Health J 2012;16(1):S158-S169.

Stehling-Ariza T, Park YS, Sury JJ, Abramson D. Measuring the impact of Hurricane Katrina on access to a personal healthcare provider: The use of the National Survey of Children’s Health for an external comparison group. Matern Child Health J 2012;16(1):S170-S177.

Zickafoose JS, Gebremariam A, Davis MM. Medical home disparities for children by insurance type and state of residence. Matern Child Health J 2012;16(1):S178-S187.

Bethell C, Kogan MD, Strickland BB, Schor EL, Robertson J, Newacheck PW. A national and state profile of leading health problems and health care quality for US children: Key insurance disparities and across-state variations. Acad Pediatr 2011;11(3):S22-S33.

McCarter S, Jones K, Rager KM. Characteristics of youth in the US receiving services from a patient-centered medical home (PCMH). Soc Work Health Care 2011;50(8):595-605.

Schieve LA, Boulet SL, Kogan MD, Yeargin-Allsopp M, Boyle CA, Visser SN, Blumberg SJ, Rice C. Parenting aggravation and autism spectrum disorders: 2007 National Survey of Children’s Health. Disabil Health J 2011;4(3):143-52.

Bethell C, Simpson L, Stumbo S, Carle AC, Gombojav N. National, state, and local disparities in childhood obesity. Health Aff 2010;29(3):347-356.

Chartbooks

U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. The National Survey of Children’s Health 2007. Rockville, Maryland: U.S. Department of Health and Human Services. Chartbooks in this series include:

• Children with special health care needs in context: A portrait of the states and the nation 2007external icon. Published September 2011.
• The health and well-being of children in rural areas: A portrait of the nation 2007external icon. Published September 2011.
• The mental and emotional well-being of children: A portrait of the states and the nation 2007. Published June 2010.
• The health and well-being of children: A portrait of states and the nation 2007external icon. Published July 2009.

National Survey of Adoptive Parents, 2007

Ward BW. Adoptive parents’ suspicion of preadoption abuse of their adopted children and the use of support services. Child Care Health Dev 2012;38(2):175-185.

Jacobson CK, Nielsen L, Hardeman A. Family trends and transracial adoption in the United States. Adopt Q 2012;15(2):73-87.

Faulkner M, Madden EE. Open adoption and post-adoption birth family contact: A comparison of non-relative foster and private adoptions. Adopt Q 2012; 15(1):35-56.

Bramlett MD. (2011). School performance and family relationship quality for adopted children: Benchmark estimatesexternal icon. ASPE Research Brief. U.S. Department of Health and Human Services, Office of the Assistant Secretary for Planning and Evaluation, Washington, DC. Published online August 15, 2011.

Malm K, Vandivere S, McKlindon A (2011). Children adopted from foster care: Adoption agreements, adoption subsidies, and other post-adoption supportsexternal icon. ASPE Research Brief. U.S. Department of Health and Human Services, Office of the Assistant Secretary for Planning and Evaluation, Washington, DC. Published online August 15, 2011.

Malm K, Vandivere S, McKlindon A (2011). Children adopted from foster care: Child and family characteristics, adoption motivation, and well-beingexternal icon. ASPE Research Brief. U.S. Department of Health and Human Services, Office of the Assistant Secretary for Planning and Evaluation, Washington, DC. Published online August 15, 2011.

Radel LF, Bramlett MD & Kreider RM (2011). Special feature: Adoption. In: Federal Interagency Forum on Child and Family Statistics. America’s children: Key national indicators of well-being, 2011pdf iconexternal icon. Washington DC: U.S. Government Printing Office: 69-73.

Rosman E (2011). An overview of the Adoption Quarterly special issue presenting findings from the National Survey of Adoptive Parents (NSAP)pdf iconexternal icon. Adoption Advocate 34. Alexandria, VA: National Council for Adoption.

Vandivere S, Malm K, McKlindon A (2010). ADOPTION USA: Summary and highlights of a chartbook on the National Survey of Adoptive Parentsexternal icon. Adoption Advocate 22. Alexandria, VA: National Council for Adoption.

Vandivere S, Malm K, Radel LF (2009). Adoption USA: A chartbook based on the 2007 National Survey of Adoptive Parentsexternal icon. Washington DC: U.S. Department of Health and Human Services, Office of the Assistant Secretary for Planning and Evaluation.

Bramlett MD, Radel LF (2008). Adopted children with special health care needs: Characteristics, health and health care by adoption typeexternal icon. ASPE Research Brief: U.S. Department of Health and Human Services, Office of the Assistant Secretary for Planning and Evaluation, Washington, DC. Published online October 22, 2008.

Bramlett MD, Radel LF, Blumberg SJ. The health and well-being of adopted children. Pediatrics 2007;119(S1): S54-S60.

Special journal issue

The 3rd and 4th issues of volume 13 of Adoption Quarterly is entirely devoted to the National Survey of Adoptive Parents.

Bramlett MD, Radel LF. The National Survey of Adoptive Parents: An introduction to the special issue of Adoption Quarterly. Adopt Q 2010;13(3-4): 147-56.

Vandivere S, McKlindon A. The well-being of US children adopted from foster care, privately from the United States and internationally. Adopt Q 2010; 13(3-4): 157-84.

Malm K, Welti K. Exploring motivations to adopt. Adopt Q 2010; 13(3-4): 185-208.

Whitten KL, Weaver SR. Adoptive family relationships and healthy adolescent development: A risk and resilience analysis. Adopt Q 2010; 13(3-4): 209-26.

Vonk ME, Lee J, Crolley-Simic J. Cultural socialization practices in domestic and international transracial adoption. Adopt Q 2010; 13(3-4): 227-47.

Bramlett MD. When stepparents adopt: Demographic, health and health care characteristics of adopted children, stepchildren, and adopted stepchildren. Adopt Q 2010; 13(3-4): 248-67.

Radel LF, Bramlett MD, Waters A. Legal and informal adoption by relatives in the US: Comparative characteristics and well-being from a nationally representative sample. Adopt Q 2010; 13(3-4): 268-91.

Radel LF, Bramlett MD. Commentary: Research possibilities using the National Survey of Adoptive Parents. Adopt Q 2010; 13(3-4): 292-301.

Survey of Adult Transition and Health, 2007

Oswald DP, Gilles DL, Cannady MS, Wenzel DB, Willis JH, Bodurtha JN. Youth with special health care needs: Transition to adult health care services. Matern Child Health J 20012 Nov 16. [Epub ahead of print].

Sawicki GS, Whitworth R, Gunn L, Butterfield R, Lukens-Bull K, Wood D. Receipt of health care transition counseling in the National Survey of Adult Transition and Health. Pediatrics 2011;128:e521-e529.

O’Connor KS, Brooks KS, Nysse-Carris KL, Skalland BJ, Sipulski ET, Costanzo DM. Design and operations of the Survey of Adult Transition and Health, 2007. National Center for Health Statistics. Vital Health Stat 1(52). 2011.

O’Connor KS. Crossing the “medical void”: health transition in young adults with special health care needs. Paper presented at the 2010 National Conference on Health Statistics; August 16 – 18, 2010; Washington, DC.

TenBroeck S, O’Connor KS. Lessons from a Follow-back Survey of Individuals with Special Health Care Needs. Paper presented at the 65th annual research meeting of the American Association for Public Opinion Research; May 13 – 16, 2010; Chicago, IL.

Karpur A. Health care transition for youth with disabilities: a follow-up study using the National Survey of Children with Special Health Care Needs. Paper presented at the 137th annual meeting of the American Public Health Association; November 7 – 11, 2009; Philadelphia, PA.

Wood D; Lukens-Bull K; Yin X; Edwards L; Livingood W; Sawicki G. Factors related to employment, school attendance and other outcomes following transition for a national cohort of young adults with special health care needs. Poster presented at the annual conference of the Pediatric Academic Societies; May 2 – 5, 2009; Baltimore, MD.

Sawicki G; Lukens-Bull K; Yin X; Edwards L; Livingood W; Wood D. Access to health care transition support services as reported by young adults in the national Survey of Adult Transition and Health. Poster presented at the annual conference of the Pediatric Academic Societies; May 2 – 5, 2009; Baltimore, MD.

Brooks KS, Carris KL, Satorius J, O’Connor KS. On a wing, a prayer and a phone number: utilizing minimal household data to locate mobile respondents. Paper presented at the 63rd annual research meeting of the American Association for Public Opinion Research; May 15 – 18, 2008; New Orleans, LA.

National Survey of Children with Special Health Care Needs, 2005-2006

McManus BM, Carle AC, Rapport MJ. Classifying infants and toddlers with developmental vulnerability: Who is most likely to receive early intervention? Child Care Health Dev 2012 Dec 5. Doi:10.1111/cch.12013. [Epub ahead of print].

Preskitt JK, McEldowney RP, Mulvihill BA, Wingate MS, Menachemi N. Underinsurance in children with special health care needs: The impact of definition on findings. Matern Child Health J 2012 Oct 10. [E-pub ahead of print].

Willits KA, Nies MA, Racine EF, Troutman-Jordan ML, Platonova E, Harris HL. Medical home and emergency department utilization among children with special health care needs: An analysis of the 2005-2006 National Survey of Children with Special Health Care Needs. J Ambul Care Manage 2012;35(3):238-46.

Chiri G, Warfield ME. Unmet need and problems accessing core health care services for children with Autism Spectrum Disorder. Matern Child Health J 2012;16(5):1081-1091.

Fulda KG, Johnson KL, Hahn K, Lykens K. Do unmet needs differ geographically for children with special health care needs? Matern Child Health J 2012 April 26 [Epub ahead of print].

Richmond NE, Tran T, Berry S. Can the medical home eliminate racial and ethnic disparities for transition services among youth with special health care needs? Matern Child Health J 2012;16:824-833.

Phelps RA, Pinter JD, Lollar DJ, Medlen JG, Bethell CD. Health care needs of children with Down Syndrome and impact of health system performance on children and their families. J Dev Behav Pediatr 2012;33(3):214-20.

Lollar DJ, Hartzell MS, Evans MA. Functional difficulties and health conditions among children with special health care needs. Pediatrics 2012;129(3):e714-22.

Willits KA, Platonova EA, Nies MA, Racine EF, Troutman ML, Harris HL. Medical home and pediatric primary care utilization among children with special health care needs. J Pediatr Health Care 2012 Jan 12 [Epub ahead of print].

Parish SL, Rose RA, Yoo J, Swaine JG. State Medicaid policies and the health care access of low-income children with special health care needs living in the American South. N C Med J 2012;73(1):15-23.

Porterfield SL, DeRigne LA. Medical home and out-of-pocket medical costs for children with special health care needs. Pediatrics 2011;128(5):892-900.

Houtrow AJ, Okumura MJ, Hilton JF, Rehm RS. Profiling health and health-related services for children with special needs with and without disabilities. Academic Pediatrics 2011;11(6):508-516.

Kuo DZ, Cohen E, Agrawal R, Berry JG, Casey PH. A national profile of caregiving challenges among more medically complex children with special health care needs. Arch Ped Adol Med 2011;165(11):1020-1026.

McGrath RJ, Stransky ML, Cooley WC, Moeschler JB. National profile of children with Down Syndrome: Disease burden, access to care, and family impact. Journal of Pediatrics 2011;159(4):535-540.

Richmond N, Tran T, Berry S. Receipt of transition services within a medical home: Do racial and geographic disparities exist? Matern Child Health J 2011;15(6):742-752. Errratum in Matern Child Health J 2011 DOI: 10.1007/s10995-011-0755-3.

Nageswaran S, Parish SL, Rose RA, Grady MD. Do children with developmental disabilities and mental health conditions have greater difficulty using health services than children with physical disorders? Matern Child Health J 2011;15(5):634-641.

Kerfeld CI, Hoffman JM, Ciol MA, Kartin D. Delayed or foregone care and dissatisfaction with care for children with special health care needs: The role of perceived cultural competency of health care providers. Matern Child Health J 2011;15(4):487-496.

McManus BM, Carle A, Acevedo-Garcia D, Ganz M, Hauser-Cram P, McCormick M. Modeling the social determinants of caregiver burden among families of children with developmental disabilities. Am J Intellect Dev Disabil 2011; 116(3): 246-60.

McManus BM, Carle AC , Acevedo-Garcia D, Ganz M, Hauser-Cram P, McCormick MC. Social determinants of state variation in special education participation among preschoolers with developmental delays and disabilities. Health & Place 2011; 17:681-690.

Kuo DZ, Bird TM, Tilford JM. Associations of family-centered care with health care outcomes for children with special health care needs.external icon Matern Child Health J 2011;15(6):794-805.

Montes G, Halterman JS. White-Black disparities in family-centered care among children with autism in the United States: Evidence from the NS-CSHCN 2005-2006. Academic Pediatrics 2011;11(4):297-304.

Carle AC, Blumberg SJ, Poblenz C. Internal psychometric properties of the Children with Special Health Care Needs Screener.external icon Acad Pediatr 2011; 11(2):128-35.

Schieve LA, Boulet SL, Kogan MD, Van Naarden-Braun K, Boyle CA. A population-based assessment of the health, functional status, and consequent family impact among children with Down syndrome.external icon Disabil Health J 2011; 4(2):68-77.

Kuhlthau KA, Bloom S, Van Cleave J, Knapp AA, Romm D, Klatka K, Homer CJ, Newacheck PW, Perrin JM. Evidence for family-centered care for children with special health care needs: A systematic review. Acad Pediatr 2011;11(2):136-43. Examined data from the 2005-2006 NS-CSHCN and related surveys.

Kenney MK, Kogan MD. Special needs children with speech and hearing difficulties: prevalence and unmet needs.external icon Acad Pediatr 2011; 11(2):152-60.

Kenney MK, Denboba D, Strickland B, Newacheck PW. Assessing family-provider partnerships and satisfaction with care among US children with special health care needs.external icon Acad Pediatr 2011; 11(2): 144-51.

Ghandour RM, Perry DF, Kogan MD, Strickland BB. The medical home as a mediator of the relation between mental health symptoms and family burden among children with special health care needs. Acad Pediatr 2011;11(2):161-169.

Park MJ, Adams SH, Irwin CE Jr. Health care services and the transition to young adulthood: challenges and opportunities.external icon Acad Pediatr 2011; 11(2):115-22.

Nishikawa BR, Daaleman TP, Nageswaran S. Association of provider scope of practice with successful transition for youth with special health care needs.external icon J Adolesc Health 2011; 48(2):209-11.

Strickland BB, van Dyck PC, Kogan MD, Lauver C, Blumberg SJ, Bethell CD, Newacheck PW. Assessing and ensuring a comprehensive system of services for children with special health care needs: a public health approach.external icon Am J Public Health 2011; 101(2):224-31.

Duke NN, Scal PB. Adult care transitioning for adolescents with special health care needs: a pivotal role for family centered care.external icon Matern Child Health J 2011; 15(1):98-105.

Blumberg SJ, Read D, Avila RM, Bethell CD. Hispanic children with special health care needs from Spanish-language households.external icon Pediatrics 2010; 126 Suppl 3:S120-8.

Lotstein DS, Kuo AA, Strickland B, Tait F. The transition to adult health care for youth with special health care needs: Do racial and ethnic disparities exist? Pediatrics 2010; 126 Suppl 3: S129-S136.

Knapp CA, Madden VL, Marcu MI. Factors that affect parent perceptions of provider-family partnership for children with special health care needs. Matern Child Health J 2010;14(5):742-750.

Diedhiou A, Probst JC, Hardin JW, Martin AB, Xirasagar S. Relationship between presence of a reported medical home and emergency department use among children with asthma.external icon Med Care Res Rev 2010; 67(4):450-75.

Coker TR, Rodriguez MA, Flores G. Family-centered care for US children with special health care needs: Who gets it and why?external icon Pediatrics 2010;125(6):1159-67

Kogan MD, Newacheck PW, Blumberg SJ, Heyman KM, Strickland BB, Singh GK, Zeni MB. State variation in underinsurance among children with special health care needs in the United States.external icon Pediatrics 2010;125(4):673-80

United States General Accounting Office. Children with Down Syndrome: Families are more likely to receive resources at time of diagnosis than in early childhood.external icon GAO-11-57, released October 8, 2010. Used data from the 2005-6005 NS-CSHCN & other surveys.

DeRigne L, Porterfield S. Employment change and the role of the medical home for married and single-mother families with children with special health care needs. Social Sci Med 2010;70(4):631-641

Ghandour RM, Kogan MD, Blumberg SJ, Perry DF. Prevalence and correlates of internalizing mental health symptoms among CSHCN.external icon Pediatrics 2010;125(2):e269-77

Lindley LC, Mark BA. Children with special health care needs: Impact of health care expenditures on family financial burden.external icon J Child Fam Stud 2010;19(1):79-89

Toomey SL, Homer CJ, Finkelstein JA. Comparing medical homes for children with ADHD and asthma.external icon Acad Pediatr 2010;10(1):56-63

Lewis CW. Dental care and children with special health care needs: A population-based perspective. Academic Pediatrics 2009;9(6 S1):420-426.

Kogan MD, Strickland BB, Newacheck PW. Building systems of care: Findings from the National Survey of Children with Special Health Care Needs. Pediatrics 2009;124 Suppl 4:S333-6

Yu H, Dick AW. Recent trends in State Children’s Health Insurance Program eligibility and coverage for CSHCN. Pediatrics 2009; 124 Supplement 4: S337-42

Bitsko RH, Visser SN, Schieve LA, Ross DS, Thurman DJ, Perou R. Unmet health care needs among CSHCN with neurologic conditions. Pediatrics 2009; 124 Suppl 4: S343-351

Singh GK, Strickland BB, Ghandour RM, van Dyck PC. Geographic disparities in access to the medical home among US CSHCN.external icon Pediatrics 2009;124 Suppl 4:S352-360

Blumberg SJ, Carle AC. The well-being of the health care environment for CSHCN and their families: a latent variable approach.external icon Pediatrics 2009;124 Suppl 4:S361-367

McManus B, McCormick MC, Acevedo-Garcia D, Ganz M, Hauser-Cram P. The effect of state early intervention eligibility policy on participation among a cohort of young CSHCN.external icon Pediatrics 2009;124 Suppl 4:S368-74

Kenney MK. Oral health care in CSHCN: State Medicaid policy considerations. Pediatrics 2009; 124:Supplement 4:S384-S391

Kane DJ, Kasehagen L, Punyko J, Carle AC, Penziner A, Thorson S. What factors are associated with state performance on provision of transition services to CSHCN?external icon Pediatrics 2009;124 Suppl 4:S375-83

Okumura MJ, Van Cleave J, Gnanasekaran S, Houtrow A. Understanding factors associated with work loss for families caring for CSHCN.external icon Pediatrics 2009;124 Suppl 4:S392-8

Busch SH, Barry CL. Does private insurance adequately protect families of children with mental health disorders?external icon Pediatrics 2009;124 Suppl 4:S399-406

Montes G, Halterman JS, Magyar CI. Access to and satisfaction with school and community health services for US children with ASD.external icon Pediatrics 2009;124 Suppl 4:S407-13

Yu SM, Singh GK. Household language use and health care access, unmet need, and family impact among CSHCN.external icon Pediatrics 2009;124 Suppl 4:S414-9

Thompson LA, Knapp CA, Saliba H, Giunta N, Shenkman EA, Nackashi J. The impact of insurance on satisfaction and family-centered care for CSHCN. Pediatrics 2009; 124:Suppl 4 S420-S427

Turchi RM, Berhane Z, Bethell C, Pomponio A, Antonelli R, Minkovitz CS. Care coordination for CSHCN: associations with family-provider relations and family/child outcomes.external icon Pediatrics 2009;124 Suppl 4:S428-34

Parish SL, Shattuck PT, Rose RA. Financial burden of raising CSHCN: Association with state policy choices. Pediatrics 2009;124 Suppl 4:S435-42.

McGrath RJ, Laflamme DJ, Schwartz AP, Stransky M, Moeschler JB. Access to genetic counseling for children with autism, Down syndrome, and intellectual disabilities.external icon Pediatrics 2009;124 Suppl 4:S443-9

Honberg LE, Kogan MD, Allen D, Strickland BB, Newacheck PW. Progress in ensuring adequate health insurance for children with special health care needs.external icon Pediatrics 2009;124(5):1273-80

Raphael JL, Zhang Y, Liu H, Tapia CD, Giardino AP. Association of medical home care and disparities in emergency care utilization among children with special health care needs.external icon Acad Pediatr 2009;9(4):242-8

Carle AC. Fitting multilevel models in complex survey data with design weights: Recommendations.external icon BMC Med Res Methodol 2009 Jul 14;9:49

Strickland BB, Singh GK, Kogan MD, Mann MY, van Dyck PC, Newacheck PW. Access to the medical home: New findings from the 2005-2006 National Survey of Children with Special Health Care Needs.external icon Pediatrics 2009;123(6):e996-1004

Perry TT, Scurlock AM, Jones SM, Tilford JM. Economic and caregiver impacts of food allergy (FA):Analyses from the 2005-2006 National Survey of Children with Special Health Care Needs. J Allergy Clin Immunol 2009;123(2):s113

Lotstein DS, Ghandour R, Cash A, McGuire E, Strickland B, Newacheck P. Planning for health care transitions: results from the 2005-2006 National Survey of Children with Special Health Care Needs.external icon Pediatrics 2009;123(1):e145-52

Scal P, Horvath K, Garwick A. Preparing for adulthood: health care transition counseling for youth with arthritis.external icon Arthritis Rheum 2009;61(1):52-7

Blumberg SJ, Welch EM, Chowdhury SR, Upchurch HL, Parker EK, Skalland BJ. Design and operation of the National Survey of Children with Special Health Care Needs, 2005-2006.external icon Vital Health Stat 1. 2008;(45):1-188

Bramlett MD, Radel LF. Adopted children with special health care needs: Characteristics, health, and health care by adoption type [PDF – 278 KB].pdf iconexternal icon US Department of Health and Human Services, Office of the Assistant Secretary for Planning and Evaluation (ASPE), Office of Human Services Policy. ASPE Research Brief. Washington, DC: October 2008.

Kogan MD, Strickland BB, Blumberg SJ, Singh GK, Perrin JM, van Dyck PC. A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005-2006.external icon Pediatrics 2008;122(6):e1149-58

Progress toward implementing community-based systems of services for children with special health care needs: summary tables from the National Survey of Children with Special Health Care Needs, 2005-2006 pdf icon[PDF – 92 KB]. December 19, 2007.

Frasier A, Upchurch H, Welch E, O’Connor KS. A ‘cooling off’ period: the effect of retrospective monetary incentives on response rates. Paper presented at the 62nd American Association for Public Opinion Research conference; May 17 – 20, 2007; Anaheim, CA

National Survey of Children with Special Health Care Needs, 2005-2006 Chartbook

U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. The National Survey of Children with Special Health Care Needs, 2005-2006. Rockville, Maryland: U.S. Department of Health and Human Services, 2007. It can be downloaded hereexternal icon.

National Survey of Children’s Health, 2003

Shaw TE, Currie GP, Koudelka CW, Simpson EL. Eczema prevalence in the United States: Data from the 2003 National Survey of Children’s Health. J Invest Dermatol 2011;131:67-73.

Chen H-Y, Cisler RA. Assessing health-related quality of life among children with special health care needs in the United States. Child Health Care 2011;40(4):311-325.

Sisson SB, Broyles ST, Baker BL, Katzmarzyk PT. Screen time, physical activity, and overweight in US youth: National Survey of Children’s Health 2003. J Adolesc Health 2010;47:309-11.

Rollins BY, Belue RZ, Francis LA. The beneficial effect of family meals on obesity differs by race, sex, and household education: The National Survey of Children’s Health, 2004-2004. J Am Diet Assoc 2010;110:1335-39.

Raphael JL, Zhang Y, Liu H, Giardino AP. Parenting stress in US families: Implications for paediatric healthcare utilization. Child Care Health Dev 2010;36(2):216-24.

Curtin C, Anderson SE, Must A, Bandini L. The prevalence of obesity in children with autism: A secondary analysis using nationally representative data from the National Survey of Children’s Health. BMC Pediatr 2010;10:11.

Li J, Hooker NH. Childhood obesity and schools: Evidence from the National Survey of Children’s Health. J Sch Health 2010;80:96-103.

Subramanian SV, Kennedy MH. Perception of neighborhood safety and reported childhood lifetime asthma in the United States (U.S.): A study based on a national survey. PLoS ONE 2009;4(6):e6091.

Singh GK, Kogan MD, van Dyck PC, Siahpush M. Racial/ethnic, socioeconomic, and behavioral determinants of childhood and adolescent obesity in the United States: Analyzing independent and joint associations. Ann Epidemiol 2008;18(9):682-695.

Lutfiyya MN, Garcia R, Dankwa CM, Young T, Lipsky MS. Overweight and obese prevalence rates in African American and Hispanic children: An analysis of data from the 2003-2004 National Survey of Children’s Health. J Am Board Fam Med 2008;21:191-199.

Liptak GS, Benzoni LB, Mruzek DW, Nolan KW, Thingvoll MA, Wade CM, Fryer GE. Disparities in diagnosis and access to health services for children with autism: Data from the National Survey of Children’s Health. J Dev Behav Pediatr 2008;29(3):152-160.

Dietrich T, Culler C, Garcia RI, Henshaw MM. Racial and ethnic disparities in children’s oral health. JADA 2008;139(11):1507-17.

Kopycka-Kedzierawski DT, Auinger P. Dental needs and status of autistic children: Results from the National Survey of Children’s Health. Pediatr Dent 2008;30(1):54-8.

Waring ME, Lapane KL. Overweight in children and adolescents in relation to attention-deficit/hyperactivity disorder: Results from a national sample. Pediatrics 2008;122(1):e1-e6.

Larson K, Russ SA, Crall JJ, Nalfon N. Influence of multiple social risks on children’s health. Pediatrics 2008;121(2):337-44.

Bethell CD, Read D, Blumberg SJ, Newacheck PW. What is the prevalence of children with special health care needs? Toward an understanding of variations in findings and methods across three national surveys. Matern Child Health J 2008; 12(1):1-14.

Brachlow AE, Ness KK, McPheeters ML, Gurney JG. Comparison of indicators for a primary care medical home between children with autism or asthma and other special health care needs – National Survey of Children’s Health. Arch Pediatr Adolesc Med 2007; 161:399-405.

Lewis C, Mouradian W, Slayton R, Williams A. Dental insurance and its impact on preventive dental care visits for U.S. children. J Am Dent Assoc. 2007;138:369-380.

Lewis CW, Johnston BD, Linsenmeyar KA, Williams A, Mouradian W. Preventive dental care for children in the United States: a national perspective. Pediatrics 2007: 119; e544 – e553.

Bramlett MD, Blumberg SJ. Family structure and children’s physical and mental health. Health Aff (Millwood) 2007; 26: 549-58.

Bramlett MD, Radel LF, Blumberg SJ. The health and well-being of adopted children. Pediatrics 2007;119:54-60.

Blackman JA, Gurka MJ. Developmental and behavioral comorbidities of asthma in children. J Dev Behav Pediatr. 2007;28:92-99.

Montes G, Halterman JS. Psychological functioning and coping among mothers of children with autism: a population-based study. Pediatrics 2007; 119:e1040-e1046.

Montes G, Halterman JS. Bullying among children with autism and the influence of comorbidity with ADHD: a population-based study. Ambul Pediatr 2007; 7: 253-7.

Okumura MJ, McPheeters ML, Davis MM. State and national estimates of insurance coverage and health care utilization for adolescents with chronic conditions from the National Survey of Children’s Health, 2003. J Adolesc Health 2007;41:343-349.

Pedlow S, Luke JV, Blumberg SJ. . Multiple imputation of missing household poverty level values from the National Survey of Children with Special Health Care Needs 2001, and the National Survey of Children’s Health, 2003 pdf icon[PDF – 320 KB]. June 22, 2007.

Lee LC, Harrington RA, Chang JJ, Connors SL. Increased risk of injury in children with developmental disabilities. Res Dev Disabil. 2007.

Barlow SE, Chang JJ. Is parental aggravation associated with childhood overweight? An analysis of the National Survey of Children’s Health 2003. Acta Paediatr. 2007;96:1360-1362.

Tudor-Locke C, Kronenfeld JJ, Kim SS, Benin M, Kuby M. A Geographical Comparison of Prevalence of Overweight School-aged Children: The National Survey of Children’s Health 2003. Pediatrics. 2007;120:e1043-1050.

Zeni MB, Kogan MD. Existing population-based health databases: useful resources for nursing research. Nurs Outlook 2007; 1: 20-30.

Bialik C. How many kids have autism? The Wall Street Journal 2006 Nov 30 (the ‘Numbers Guy’ section).

Blanchard LT, Gurka MJ, Blackman JA. Emotional, developmental, and behavioral health of American children and their families: a report from the 2003 National Survey of Children’s Health. Pediatrics 2006; 117: e1202-12.

Centers for Disease Control and Prevention. Parental report of diagnosed autism in children aged 4 – 17 years – United States, 2003 – 2004. MMWR 2006; 55:481 – 486.

Gurney JG, McPheeters ML, Davis MM. Parental report of health conditions and health care use among children with and without autism: National Survey of Children’s Health. Arch Pediatr Adolesc Med 2006; 160: 825-30.

Kim SS, Tudor-Locke C, Kronenfeld JJ. National and state prevalence of overweight children: the National Survey of Children’s Health. Poster presented at the 46th Annual Conference on Cardiovascular Disease Epidemiology and Prevention in association with the Council on Nutrition, Physical Activity, and Metabolism; March 2 – 5, 2006; Phoenix AZ, poster number 216. Circulation 2006; 113: P216.

O’Connor KS, Blumberg SJ. The National Survey of Children’s Health: a source of child health quality indicators. Paper presented at the 2005 AcademyHealth Annual Research Meeting; June 26 – 28, 2005; Boston, MA; and the 2006 National Center for Health Statistics Data Users Conference; July 10 – 12, 2006; Washington, D.C.

Shaikh MA, Shaikh IA. Correlates of emergency room visit in under 18 year olds: results from National Survey of Children’s Health 2003. Am J Epidemiol 2006; 163: S17.

Van Cleave J, Davis MM. Bullying and peer victimization among children with special health care needs. Pediatrics 2006; 118: e1212 – 19.

Centers for Disease Control and Prevention. Prevalence of diagnosis and medication treatment for Attention-Deficit / Hyperactivity Disorder – United States, 2003. MMWR 2005; 54; 842-7.

American Lung Association, Epidemiology & Statistics Unit, Research and Program Services. Trends in asthma morbidity and mortality, May 2005.

Blumberg SJ, Olson L, Frankel MR, Osborn L, Srinath KP, Giambo P. Design and Operation of the National Survey of Children’s Health, 2003 pdf icon[PDF – 3.6 MB]. National Center for Health Statistics. Vital Health Stat 2005; 1(43).

Centers for Disease Control and Prevention. Mental health in the United States: Parental report of diagnosed autism in children aged 4-17 years–United States, 2003-2004. MMWR Morb Mortal Wkly Rep. 2006;55:481-486.

O’Connor KS. A new tool to monitor indicators of health and child well-being for school-aged children: the SLAITS National Survey of Children’s Health. Paper presented at the 2004 National Center for Health Statistics Data Users Conference; July 12 – 14, 2004; Washington, D.C.

van Dyck P, Kogan MD, Heppel D, Blumberg SJ, Cynamon ML, Newacheck PW. The National Survey of Children’s Health: a new data resource. Matern Child Health J 2004; 8:183-8.

National Survey of Children’s Health, 2003

Chartbooks

U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. The National Survey of Children’s Health 2003. Rockville, Maryland: U.S. Department of Health and Human Services, 2005. Chartbooks in this series include:

• The health and well-being of childrenexternal icon: a portrait of states and the nation 2005.
• The oral health of childrenexternal icon: a portrait of the states and the nation 2005.
• The health and well-being of children in rural areasexternal icon: a portrait of the nation 2005.
• Overweight and physical activity among childrenexternal icon: a portrait of states and the nation 2003.

National Survey of Children’s Health, 2003

Special journal issue

The February 2007 supplement to journal Pediatrics (volume 119) is entirely devoted to the National Survey of Children’s Health.

National and state-specific findings from the National Survey of Children’s Health. Pediatrics 2007; 119: A1.

Kogan MD, Newacheck PW. Introduction to the volume on articles from the National Survey of Children’s Health. Pediatrics 2007; 119:S1-S3.

Allred NJ, Wooten KG, Kong Y. The association of health insurance and continuous primary care in the Medical Home on vaccination coverage for 19- to 35-month-old children. Pediatrics 2007; 119: S4-S11.

Liu J, Probst JC, Martin AB, Wang J-Y, Salinas CF. Disparities in dental insurance coverage and dental care among US children: the National Survey of Children’s Health. Pediatrics 2007; 119: S12-S21.

Kim HH, Viner-Brown SI, Garcia J. Children’s mental health and family functioning in Rhode Island. Pediatrics 2007; 119: S22-S28.

Smaldone A, Honig JC, Byrne MW. Sleepless in America: inadequate sleep and relationships to health and well-being of our Nation’s children. Pediatrics 2007; 119: S29-S37.

Singh GK, Kogan MD, Dee DL. Nativity/immigrant status, race/ethnicity, and socioeconomic determinants of breastfeeding initiation and duration in the United States, 2003. Pediatrics 2007; 119: S38-S46.

Youngblade LM, Theokas C, Schulenberg J, Curry L, Huang I-C, Novak M. Risk and promotive factors in families, schools, and communities: a contextual model of positive youth development in adolescence. Pediatrics 2007; 119: S47-S53.

Bramlett MD, Radel LF, Blumberg SJ. The health and well-being of adopted children. Pediatrics 2007; 119: S54-S60.

Zeni MB, Sappenfield W, Thompson D, Chen H. Factors associated with not having a personal health care provider for children in Florida. Pediatrics 2007; 119: S61-S67.

Moore CG, Probst JC, Tompkins M, Cuffe S, Martin AB. The prevalence of violent disagreements in US families: effects of residence, race/ethnicity, and parental stress. Pediatrics 2007; 119: S68-S76.

Altarac M, Saroha E. Lifetime prevalence of learning disability among US children. Pediatrics 2007; 119: S77-S83.

McKay CM, Bell-Ellison BA, Wallace K, Ferron JM. A multilevel study of the associations between economic and social context, stage of adolescence, and physical activity and Body Mass Index. Pediatrics 2007; 119: S84-S91.

Dee DL, Li R, Lee L-I, Grummer-Strawn LM. Associations between breastfeeding practices and young children’s language and motor skill development. Pediatrics 2007; 119: S92-S98.

Visser SN, Lesesne CA, Perou R. National estimates and factors associated with medication treatment for childhood Attention-Deficit/Hyperactivity Disorder. Pediatrics 2007; 119: S99-S106.

Mulvihill BA, Altarac M, Swaminathan S, Kirby RS, Kulczycki A, Ellis DE. Does access to a Medical Home differ according to child and family characteristics, including special-health-care-needs status, among children in Alabama? Pediatrics 2007; 119: S107-S113.

Schieve LA, Blumberg SJ, Rice C, Visser SN, Boyle C. The relationship between autism and parenting stress. Pediatrics 2007; 119: S114-S121.

van Dyck PC. Final commentary on the special volume of articles from the National Survey of Children’s Health. Pediatrics 2007; 119: S122-S123.

National Asthma Survey, 2003

Roy A, Downes MJ, Wisnivesky JP. Comprehensive environmental management of asthma and pediatric preventive care. Pediatric Allergy & Immunology 2011;22(3):277-82.

Baptist AP, Talreja N, Clark NM. Asthma education for older adults: results from the National Asthma Survey. J Asthma 2011;48(2):133-8.

Talreja N, Baptist AP. Effect of age on asthma control: results from the National Asthma Survey. Ann Allergy Asthma Immunol 2011;106(1):24-9.

Grossman HL, Schlender A, Alperin P, Stanley EP, Zhang J. Modeling the effects of omalizumab over 5 years among patients with moderate-to-severe persistent allergic asthma. Current Medical Research & Opinion 2010; 26(12):2779-93. This simulation study used NAS data to support the Archimedes Asthma Model, and create the representative base population of US asthmatics aged 12 years and older with moderate-to-persistent allergic asthma.

Roy A, Wisnivesky JP. Comprehensive use of environmental control practices among adults with asthma. Asthma & Allergy Proceedings 2010;31(5):72-7.

Downes MJ, Roy A, McGinn TG, Wisnivesky JP. Factors associated with furry pet ownership among patients with asthma. Journal of Asthma 2010;47(7):742-9.

Roy A, Wisnivesky JP. Racial and ethnic differences in the use of environmental control practices among children with asthma. Journal of Asthma 2010;47(5):507-12.

Nguyen T, Lurie M, Gomez M, Reddy A, Pandya K, Medvesky M. The National Asthma Survey – New York State: Association of the home environment with current asthma status. Public Health Rep 2010;125(6):877-887. The National Asthma Survey- New York State was a telephone survey that screened for the presence of asthma in households in New York. These data were collected using the SLAITS mechanism, but are separate and distinct from the other two NAS samples (national and four-state).

Vaidya V, Holiday-Goodman M, Pinto S. Demographic disparities in patient-reported use of inhaled corticosteroids among patients with persistent asthma. Journal of Allergy and Asthma 2010;3:101-106.

Temprano J, Mannino DM. The effect of sex on asthma control from the National Asthma Survey. J Allergy Clin Immunol 2009;123(4):854-860.

Crocker D, Brown C, Moolenaar R; Moorman J, Bailey C; Mannino D; Holguin F. Racial and ethnic disparities in asthma medication usage and health-care utilization: data from the National Asthma Survey. Chest 2009;136(4):1063-1071.

Roy A, Wisnivesky J. Comprehensive use of environmental control practices among children with asthma. Paper presented at the 2009 National Environmental Public Health Conference, October 26 – 28, 2009; Atlanta, GA. Abstract available hereexternal icon.

Taylor B, Mannino D, Brown C, Crocker D, Twum-Baah N, Holguin F. Body mass index and asthma severity in the National Asthma Survey. Thorax 2008 Jan;63(1):14-20.

Inkelas M, Garro N, McQuaid EL, Ortega AN. Race/ethnicity, language, and asthma care: findings from a 4-state survey. Ann Allergy Asthma Immunol 2008;100:120-127.

Halterman JS; Auinger P; Conn KM; Lynch K; Yoos HL; Szilagyi PG. Inadequate therapy and poor symptom control among children with asthma: findings from a multistate sample. Ambul Pediatr 2007;7(2):153-159.

Taylor BA, Brown C, Crocker D, Moorman J, Twum-Baah N, Holguin F. Body Mass Index as a predictor of asthma severity in adult asthmatics: results from the 4-state National Asthma Survey. Paper presented at the American Thoracic Society International Conference (ATS 2007); May 18 – 23, 2007; San Francisco, CA (abstract published in J Investig Med 2007 55 Suppl: S289).

Brown C, Crocker D, Holguin F. Smoking, asthma education and asthma symptom severity. Poster presented at the American Thoracic Society International Conference (ATS 2007); May 18 – 23, 2007; San Francisco, CA.

Crocker D, Brown C, Bailey C, Moorman J, Holguin F. Racial and ethnic disparities in asthma severity and treatment: data from the National Asthma Survey. Poster presented at the American Thoracic Society International Conference (ATS 2007); May 18 – 23, 2007; San Francisco, CA. Roundtable presented at the Council of State and Territorial Epidemiologists (CSTE) 2007 annual conference; June 24 – 28, 2007; Atlantic City, NJ.

Centers for Disease Control and Prevention. Percentage of persons with current asthma who used inhaled medication during the preceding 3 months, by medication type and symptom severity level – United States, 2003. MMWR 2006; 55: 919.

O’Connor KS. Asthma in working-age adults. Paper presented at the 2006 National Center for Health Statistics Data Users Conference; July 10 – 12, 2006; Washington, D.C.

Alverez-Garriga C, Valente JG, Yang W, Montealegre F, Noffsinger S, Butler M, Linnell D, Moss D, Hull A, Wilson J, Bihler K, Huber J, Minnitte D, Rose K, Patay J, Ramos A, Pace J, Bayona M. Important predictors for asthma hospitalization. Paper presented at the 134th annual meeting and exposition of the American Public Health Association; November 4 – 8, 2006; Boston, MA.

Coffey RM, Ho K, Adamson DM, Matthews TL, Sewell J. Asthma care quality improvement: a resource guide for state action. (Prepared by Thomson Medstat and The Council of State Governments under Contract No. 290-00-0004). Rockville, MD: Agency for Healthcare Research and Quality, Department of Health and Human Services; April 2006. AHRQ Pub. No. 06-0012-1.

Ho K, Coffey RM, Castillo D. Asthma care quality improvement: a workbook for state action. Rockville, MD: Agency for Healthcare Research and Quality, Department of Health and Human Services; April 2006. AHRQ Pub. No. 06-0012-2.

Becker C, Rodkin S, O’Connor K, Moorman J. How accurate are proxy reports: results of a verification study pdf icon[PDF – 99 KB]external icon. Proceedings of the Survey Research Methods Section, American Statistical Association 2004; 4920-4922. Poster presented at the 59th Conference of the American Association for Public Opinion Research; May 13 – 16, 2004; Phoenix, AZ.

O’Connor KS, Moorman J, Cynamon ML, Olson L, Osborn L, Rodkin S. A comparison of the effects of four study designs on data quality: preparing for the National Asthma Survey. Poster presented at the 58th Conference of the American Association for Public Opinion Research; May 15 – 18, 2003; Nashville, TN.

The National Asthma Survey- New York State (NAS-NYS) was a telephone survey that screened for the presence of asthma in households in New York. The NAS-NYS data were collected using the SLAITS mechanism, but are separate and distinct from the other two NAS samples (national and four-state). A detailed report is available herepdf iconexternal icon and was produced by the New York State Department of Health, Public Health Information Group, Center for Community Health (Cooperative Agreement #U59/CCU220867).

National Survey of Children with Special Health Care Needs, 2001

2011

Yucel RM, He Y, Zaslavsky AM. Gaussian-based routines to impute categorical variables in health surveys. Statist Med 2011;30:3447-60.

2010

Spears AP. The Healthy People 2010 outcomes for the care of children with special health care needs: An effective national policy for meeting mental health care needs? Matern Child Health J 2010;14(3):401-11.

Blumberg SJ, Read D, Avila RM, Bethell CD. Hispanic children with special health needs from Spanish-language households. Pediatrics 2010;126:S120-S128.

Rose RA, Parish SL, Yoo J, Grady MD, Powell SE, Hicks-Sangster TK. Suppression of racial disparities for children with special health care needs among families receiving Medicaid. Social Science & Medicine 2010;70(9):1263-1270.

2009

Nageswaran S. Respite care for children with special health care needs. Arch Ped Adol Med 2009;163(1):49-54.

Lykens KA, Fulda KG, Bae S, Singh KP. Differences in risk factors for children with special health care needs (CSHCN) receiving needed specialty care by socioeconomic status. BMC Pediatrics 2009;9:48.

Fulda KG, Lykens K, Bae S, Singh K. Factor for accessing a medical home vary among CSHCN from different levels of socioeconomic status. Matern Child Health J 2009;13(4):445-56.

2008

Tang MH, Hill KS, Boudreau AA, Yucel RM, Perrin JM, Kuhlthau KA. Medicaid managed care and the unmet need for mental health care among children with special health care needs. Health Services Research 2008;43(3):882-900.

Hill KS, Freeman LC, Yucel RM, Kuhlthau KA. Unmet need among children with special health care needs in Massachusetts. Matern Child Health J 2008;12(5):650-61.

Kane D, Mosca N, Zotti M, Schwalberg R. Factors associated with access to dental care for children with special health care needs. JADA 2008;139(3):326-33.

Benedict RE. Quality medical homes: Meeting children’s needs for therapeutic and supportive services. Pediatrics 2008;121(1):e127-34.

Bethell CD, Read D, Blumberg SJ, Newacheck PW. What is the prevalence of children with special health care needs? Toward an understanding of variations in findings across three national surveys. Maternal Child Health J 2008; 12(1):1-14.

Bramlett MD, Blumberg SJ. (online / in press). Prevalence of children with special health care needs in metropolitan and micropolitan statistical areas in the United States. Maternal and Child Health Journal, 2008. (DOI 10.1007/s10995-007-0262-8)

O’Connor KS, Bramlett MD. Vaccination coverage by special health care needs status in young children. Paper presented at the National Leadership Summit on Eliminating Racial and Ethnic Disparities in Health; January 9 -11, 2006; Washington, D.C. Manuscript in press, Pediatrics (online), 2008.

2007

Read D, Bethell C, Blumberg SJ, Abreu M, Molina C. An evaluation of the linguistic and cultural validity of the Spanish language version of the Children with Special Health Care Needs Screener. Matern Child Health J 2007; 11(6):568-85.

Inkelas M, Raghavan R, Larson K, Kuo AA, Ortega AN. Unmet mental health care need and access to services for children with special health care needs and their families. Ambulatory Pediatrics 2007;7(6):431-8.

Pedlow S, Luke JV, Blumberg SJ. Multiple imputation of missing household poverty level values from the National Survey of Children with Special Health Care Needs 2001, and the National Survey of Children’s Health, 2003 pdf icon[PDF – 321 KB]. June 22, 2007.

Skinner AC, Slifkin RT. Rural/urban differences in barriers to and burdens of care for children with special health care needs. J Rural Health 2007; 23:150-7.

Oswald DP, Bodurtha JN, Willis JH, Moore MB. Underinsurance and key health outcomes for children with special health care needs. Pediatrics 2007; 119: e341-47.

Haley J, Kenney G. Low-income uninsured children with special health care needs: why aren’t they enrolled in public health insurance programs? Pediatrics 2007; 119: 60-8.

Porterfield SL, McBride TD. The effect of poverty and caregiver education on perceived need and access to health services among children with special health care needs. Am J Public Health 2007; 97: 323-9.

Barry CL, Busch SH. Do state parity laws reduce the financial burden on families of children with mental health care needs? Health Serv Res 2007; 42 (3p1): 1061- 1084.

Wang G, Watts C. Genetic Counseling, Insurance Status, and Elements of Medical Home: Analysis of the National Survey of Children with Special Health Care Needs. Matern Child Health J 2007.

2006

Barry CL, Busch SH. Effects of state parity laws on the family financial burden of children with mental health care needs. Paper presented at the 134th Annual Meeting and Exposition of the American Public Health Association; November 4 – 8, 2006; Boston, MA.

Ganz ML, Tendulkar SA. Mental health care services for children with special health care needs and their family members: prevalence and correlates of unmet needs. Pediatrics 2006; 117:2138-48.

Denboba D, McPherson MG, Kenney MK, Strickland B, Newacheck PW. Achieving family and provider partnerships for children with special health care needs. Pediatrics 2006; 118: 1607-15.

Chen AY, Newacheck PW. Insurance coverage and financial burden for families with children with special health care needs. Ambul Pediatr 2006; 6: 204-9.

Yu H, Seid M. Uninsurance among children eligible for the State Children’s Health Insurance Program: results from a national survey. Managed Care Interface 2006; 19: 31-9.

Nageswaran S, Roth MS, Kluttz-Hile CE, Farel A. Medical homes for children with special health care needs in North Carolina. N C Med J 2006; 67: 103-9.

Van Cleave J, Davis MM. Bullying and peer victimization among children with special health care needs. Pediatrics 2006; 188: e1212-e1219.

Waldman HB, Perlman SP. Children with special health care needs: results of a national survey. ASDC J Dent Child 2006; 73: 57-62.

Heslin KC, Casey R, Shaheen MA et al. Racial and ethnic differences in unmet need for vision care among children with special health care needs. Arch Ophthalmol 2006; 124: 895-902. Paper presented at the National Leadership Summit on Eliminating Racial and Ethnic Disparities in Health; January 9 – 11, 2006; Washington, D.C.

Ngui EM, Flores G. Satisfaction with care and ease of using health care services among parents of children with special health care needs: the roles of race/ethnicity, insurance, language, and adequacy of family-centered care. Pediatrics 2006;117(4):1184-96.

Partington SN, Cisler RA, Blair KA. Prevalence of children with special health care needs in Milwaukee, Wisconsin: data from the Milwaukee metropolitan statistical area. Wmj 2006;105(3):30-5.

Skinner AC, Slifkin RT, Mayer ML. The effect of rural residence on dental unmet need for children with special health care needs. J Rural Health 2006;22(1):36-42.

Yu H, Dick AW, Szilagyi PG. Role of SCHIP in serving children with special health care needs. Health Care Financ Rev 2006;28(2):53-64.

2005

Blumberg SJ, O’Connor KS, Kenney G. Unworried parents of well children: a look at uninsured children who reportedly do not need health insurance. Pediatrics 2005; 116:345-351. Poster presented at the 2005 AcademyHealth Annual Research Meeting; June 26 – 28, 2005; Boston, MA.

Centers for Disease Control and Prevention. Mental health in the United States: Health care and well being of children with chronic emotional, behavioral, or developmental problems – United States, 2001. MMWR 2005; 54: 985-989.

O’Connor, KS. Does qualitative evaluation measure up? pdf icon[PDF 195 KB]external icon. Paper presented at the 2005 Federal Committee on Statistical Methodology (FCSM) Research Conference; November 14 – 16, 2005; Arlington, VA.

Kogan MD, Newacheck PW, Honberg L, Strickland B. Association between underinsurance and access to care among children with special health care needs in the United States. Pediatrics 2005; 116: 1162-9.

Honberg L, McPherson M, Strickland B, Gage JC, Newacheck PW. Assuring adequate health insurance: results of the National Survey of Children with Special Health Care Needs. Pediatrics 2005; 115: 1233-9.

Lewis C, Robertson AS, Phelps S. Unmet dental care needs among children with special health care needs: implications for the medical home. Pediatrics 2005; 116: e426-31.

Huang ZJ, Kogan MD, Yu SM, Strickland B. Delayed or forgone care among children with special health care needs: an analysis of the 2001 National Survey of Children with Special Health Care Needs. Ambul Pediatr 2005; 5:60-7.

Scal P, Ireland M. Addressing transition to adult health care for adolescents with special health care needs. Pediatrics 2005; 115: 1607-12.

Inkelas M, Garro N. A picture of needs for children with special health-care needs: what we are learning from the national survey. J Pediatr Nurs 2005; 20: 207-10.

Kuhlthau K, Hill KS, Yucel R, Perrin JM. Financial burden for families of children with special health care needs. Matern Child Health J 2005; 9: 207-18.

Lotstein DS, McPherson M, Strickland B, Newacheck PW. Transition planning for youth with special health care needs: results from the National Survey of Children with Special Health Care Needs. Pediatrics 2005; 115: 1562-8.

Mayer ML, Slifkin RT, Skinner AC. The effects of rural residence and other social vulnerabilities on subjective measures of unmet need. Med Care Res Rev 2005;62(5):617-28.

Special journal issue

The June 2005 supplement to volume 9, issue 2 of the Maternal and Child Health Journal is entirely devoted to national and state-specific findings from the 2001 National Survey of Children with Special Health Care Needs.

Kogan MD, van Dyck PC. The National Survey of Children with Special Health Care Needs: Using state-level data to improve systems of care for children. Matern Child Health J 2005;9S(2):S1-S2.

Bumbalo J, Ustinich L, Ramcharran D, Schwalberg R. Economic impact of families caring for children with special health care needs in New Hampshire: The effect of socioeconomic and health-related factors. Matern Child Health J 2005;9S(2):S3-S11.

Tippy K, Meyer K, Aronson R, Wall T. Characteristics of coordinated ongoing comprehensive care within a medical home in Maine. Matern Child Health J 2005;9S(2):S13-S21.

Kane DJ, Zotti ME, Rosenburg D. Factors associated with health care access for Mississippi children with special health care needs. Matern Child Health J 2005;9S(2):S23-S31.

Stein REK, Silver EJ. Are rates of functional limitations associated with access to care? A state-level analysis of the National Survey of Children with Special Health Care Needs. Matern Child Health J 2005;9S(2):S33-S39.

Rosenwald D, Onufer C, Clark G, Wilkin T, Rankin K, Gupta K. The need for care coordination among children with special health care needs in Illinois. Matern Child Health J 2005;9S(2):S41-S47.

Young MC, Drayton VLC, Menon R, Walker LR, Parker CM, Cooper SB, Bultman LL. CSHCN in Texas: Meeting the need for specialist care. Matern Child Health J 2005;9S(2):S49-S57.

Viner-Brown SI, Kim HK. Impact of caring for children with special health care needs on the family: Rhode Island’s experience. Matern Child Health J 2005;9S(2):S59-S66.

Oswald DP, Bodurtha JN, Broadus CH, Willis JH, Tlusty SM, Bellin MH, McCall BR. Defining underinsurance among children with special health care needs: A Virginia sample. Matern Child Health J 2005;9S(2):S67-74.

Smaldone A, Honig J, Byrne MW. Delayed and foregone care for children with special health care needs in New York State. Matern Child Health J 2005;9S(2):S75-86.

Mulvihill BA, Wingate MS, Altarac M, Mulvihill FX, Redden DT, Telfair J, Pass MA, Ellis DE. The association of child condition severity with family functioning and relationship with health care providers among children and youth with special health care needs in Alabama. Matern Child Health J 2005;9S(2):S87-97.

Baruffi G, Miyashiro L, Prince CB, Heu P. Factors associated with ease of using community-based systems of care for CSHCN in Hawai’i. Matern Child Health J 2005;9S(2):S99-S108.

Inkelas M, Smith KA, Kuo AA, Rudolph L, Igdaloff S. Health care access for children with special health care needs in California. Matern Child Health J 2005;9S(2):S109-S116.

De Fries S, Sharp V, Nardella M, Peters R. A data driven process in Washington State to improve systems of care for children with special health care needs: The National Survey of CSHCN. Matern Child Health J 2005;9S(2):S117-S120.

Blumberg SJ, Bramlett MD. Comparing states on outcomes for children with special health care needs. Matern Child Health J 2005;9S(2):S121-S128.

Newacheck PW. Commentary. Matern Child Health J 2005;9S(2):S129-S130.

2004

McPherson M, Weissman G, Strickland BB, van Dyck PC, Blumberg SJ, Newacheck PW. Implementing community-based systems of services for children and youths with special health care needs: how well are we doing? Pediatrics 2004; 113: 1538-1544.

U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. The National Survey of Children with Special Health Care Needs Chartbook 2001. Rockville, Maryland: U.S. Department of Health and Human Services, 2004.

van Dyck PC, Kogan MD, McPherson MG, Weissman GR, Newacheck PW. Prevalence and characteristics of children with special health care needs. Arch Pediatr Adolesc Med 2004;158(9):884-90.

Blumberg SJ, Osborn L, Luke JV, Olson L, Frankel MR. Estimating the prevalence of uninsured children: an evaluation of data from the National Survey of Children with Special Health Care Needs, 2001. National Center for Health Statistics. Vital Health Stat 2004; 2(136). View/download PDF 3.8 MB

Dusing SC, Skinner AC, Mayer ML. Unmet need for therapy services, assistive devices, and related services: data from the National Survey of Children with Special Health Care Needs. Ambul Pediatr 2004; 4: 448-54.

Agency for Healthcare Research and Quality. 2004 National Healthcare Disparities Report. Rockville, MD: U.S. Department of Health and Human Services, Agency for Healthcare Research and Quality; December 2004. AHRQ Pub. No. 05-0014.

• The 2004 NHDR included numerous measures from the 2001 NS-CSHCN in the ‘priority populations’ section:
  • CSHCN and family-centered care
  • CSHCN and access to health care (health insurance coverage, adequacy, usual source of care)
  • CSHCN and patient perceptions of need (unmet need, CSHCN needing specialty care who reported difficulty getting a referral)

Mayer ML, Skinner AC, Slifkin RT. Unmet need for routine and specialty care: data from the National Survey of Children with Special Health Care Needs. Pediatrics 2004; 113: e109-15.

Oftedahl E, Benedict R, Katcher ML. National survey of children with special health care needs: Wisconsin-specific data. WMJ 2004; 103: 88-90.

Strickland B, McPherson M, Weissman G, van Dyck P, Huang ZJ, Newacheck P. Access to the medical home: results of the National Survey of Children with Special Health Care Needs. Pediatrics 2004; 113: 1485-92.

Yu SM, Nyman RM, Kogan MD, Huang ZJ, Schwalberg RH. Parent’s language of interview and access to care for children with special health care needs. Ambul Pediatr 2004; 4: 181-7.

Bethell CD, Read D, Brockwood K. Using existing population-based data sets to measure the American Academy of Pediatrics definition of medical home for all children and children with special health care needs. Pediatrics 2004; 113:1529-1537.

Betz CL. Is help really on the way? (editorial). J Pediatr Nurs 2004; 19: 1-2.

2003

Blumberg SJ, Olson L, Frankel M, Osborn L, Becker CJ, Srinath KP, Giambo P. Design and operation of the National Survey of Children with Special Health Care Needs, 2001 pdf icon[PDF – 1.1 MB]. National Center for Health Statistics. Vital Health Stat 2003; 1(41).

Blumberg SJ. Comparing states using survey data on health care services for children with special health care needs pdf icon[PDF – 7.1 MB]. Paper presented at the Ninth Annual Maternal and Child Health Epidemiology Conference; December 10 – 12, 2003; Tempe, Arizona.

Progress toward implementing community-based systems of services for children with special health care needs: summary tables from the National Survey of Children with Special Health Care Needs, 2001 pdf icon[PDF – 90 KB]. April 28, 2003.

Olson L, Osborn L, Blumberg SJ, Brady S. Collecting data in multiple languages: development of a methodology. Paper presented at the 58th annual meeting of the American Association for Public Opinion Research; May 15 – 18, 2003; Nashville, TN.

Inkelas M, Ahn P, Larson K. Experiences with health care for California’s children with special health care needs chartbook, 2003 pdf icon[PDF – 460 KB]external icon. Los Angeles, CA: UCLA Center for Healthier Children, Families, and Communities.

2002

Bethell CD, Read D, Neff J, Blumberg SJ, Stein REK, Sharp V, Newacheck PW. Comparison of Children with Special Health Care Needs Screener to the Questionnaire for Identifying Children with Chronic Conditions – Revised. Ambul Pediatr 2002; 2: 49-57.

van Dyck PC, McPherson M, Strickland BB, Nesseler K, Blumberg SJ, Cynamon ML, Newacheck PW. The National Survey of Children with Special Health Care Needs. Ambul Pediatr 2002; 2: 29-37.

2001

Bramlett MD. Imputation of low-income status in the National Survey of Children with Special Health Care Needs, 2001 pdf icon[PDF – 220 KB]. National Center for Health Statistics.

National Survey of Early Childhood Health, 2000

Kuo AA, Inkelas M, Slusser WM, Maidenberg M, Halfon N. Introduction of solid food to young infants. Matern Child Health J 2011;15(8):1185-94.

Halfon N, Stevens GD, Larson K, Olson LM. Duration of a well-child visit: Association with content, family-centeredness, and satisfaction. Pediatrics 2011;128(4):657-64.

Regalado M, Larson K, Wissow LS, Halfon N. Factors associated with discipline counseling for parents of infants and young children. Academic Pediatrics 2010;10(5):353-9.

Thompson DA, Sibinga EM, Jennings JM, Bair-Merritt MH, Christakis DA. Television viewing by young Hispanic children: Evidence of heterogeneity. Archives of Pediatric & Adolescent Medicine 2010;164(2):174-9.

Chapman DJ, Perez-Escamilla R. US national breastfeeding monitoring and surveillance: Current status and recommendations. Journal of Human Lactation 2009;25(2):139-50.

Inkelas M, Newacheck PW, Olson LM, Zuckerman B, Schuster MA. Does having a regular primary care clinician improve quality of preventive care for young children? Medical Care 2008;46(3):323-30.

Mistry R, Stevens GD, Sareen H, De Vogli R, Halfon N. Parenting-related stressors and self-reported mental health of mothers with young children. American Journal of Public Health 2007;97(7):1261-8. Erratum appears in Am J Public Health 2007;97(9):1543.

Thompson DA, Christakis DA. The association of maternal mental distress with television viewing in children under 3 years old. Ambul Pediatr 2007;7:32-7.

Stevens GD. Gradients in the health status and developmental risks of young children: the combined influences of multiple social risk factors. Matern Child Health J 2006; 10:187-99.

Chung PJ, Lee T, Morrison J, Schuster MA. Preventive care for children in the United States: quality and barriers. Annual Review of Public Health 2005;27:491-515.

Flores G, Olson L, Tomany-Korman SC. Racial and ethnic disparities in early childhood health and health care. Pediatrics 2005; 115: e183-93.

Flores G, Tomany-Korman SC, Olson L. Does disadvantage start at home? Racial and ethnic disparities in health-related early childhood home routines and safety practices. Arch Pediatr Adolesc Med 2005; 159:158-65.

Halfon N, Inkelas M, Abrams M, Stevens GD. Quality of preventive health care for young children: strategies for improvement. The Commonwealth Fund; 2005.

Hayman L, Callister L. Racial and ethnic disparities in early childhood health and healthcare. American Journal of Maternal Child Nursing. 2005;30:276.

Leiferman J, Ollendick T, Kunkel D, Christie I. Mothers’ mental distress and parenting practices with infants and toddlers. Archives of Women’s Mental Health 2005;8:243-7.

Shaikh MA, Shaikh IA. Correlates of breastfeeding in under three year old children – United States (letter to the editor). J Ayub Med Coll Abbottabad 2005; 17: 3.

Stevens GD, Mistry R, Zuckerman B, Halfon N. The parent-provider relationship: does race/ethnicity concordance or discordance influence parent reports of the receipt of high quality basic pediatric preventive services? J Urban Health 2005; 82:560-74.

Thompson DA, Christakis DA. The association between television viewing and irregular sleep schedules among children less than 3 years of age. Pediatrics 2005;116:851-6.

Blumberg SJ, O’Connor KS. Parents’ mood and the content of pediatric care for young children. Ambul Pediatr 2004; 4: 209-16.

Zuckerman B, Stevens GD, Inkelas M, Halfon N. Prevalence and correlates of high-quality basic pediatric preventive care. Pediatrics 2004; 114: 1522-9.

Lu M, Prentice J, Yu S, Inkelas M, Lange L, Halfon N. Childbirth education classes: sociodemographic disparities in attendance and the association of attendance with breastfeeding initiation. Maternal and Child Health Journal 2003; 7:87-93.

Nelson C, Wisslow LS, Cheng T. Effectiveness of anticipatory guidance: recent developments. Current Opinion in Pediatrics 2003;15:630-5.

Blumberg SJ, Olson L, Osborn L, Srinath KP, Harrison H. Design and Operation of the National Survey of Early Childhood Health, 2000 pdf icon[PDF – 2.3 MB]. National Center for Health Statistics. Vital Health Stat 2002; 1(40).

Halfon N, Olson L, Inkelas M, Mistry R, Sareen H, Lange L, Hochstein M, Wright J. Summary statistics from the National Survey of Early Childhood Health, 2000 pdf icon[PDF – 3.4 MB]. National Center for Health Statistics. Vital Health Stat 2002; 15(3).

National Survey of Early Childhood Health, 2000

Special journal issue

The June 2004 supplement to Pediatrics is devoted to NSECH data.

Halfon N, Olson LM. Content and quality of health care for young children: results from the 2000 National Survey of Early Childhood Health. Pediatrics 2004; 113: S1894.

Halfon N, Olson LM. Introduction: results from a new national survey of children’s health. Pediatrics 2004; 113: S1895-8.

Blumberg SJ, Halfon N, Olson LM. The National Survey of Early Childhood Health. Pediatrics 2004;113: S1899-1906.

Olson LM, Inkelas M, Halfon N, Schuster MA, O’Connor KG, Mistry R. Overview of the content of health supervision for young children: reports from parents and pediatricians. Pediatrics 2004; 113: S1907-16.

Inkelas M, Schuster MA, Olson LM, Park CH, Halfon N. Continuity of primary care clinician in early childhood. Pediatrics 2004; 113: S1917-25.

Halfon N, Regalado M, Sareen H, Inkelas M, Peck Reuland CH, Glascoe FP et al. Assessing development in the pediatrics office. Pediatrics. 2004;113: S1926-33.

Kogan MD, Schuster MA, Yu SM, Park CH, Olson LM, Inkelas M, Bethell C, Chung PJ, Halfon N. Routine assessment of family and community health risks: parent views and what they receive. Pediatrics 2004; 113: S1934-43.

Kuo AA, Franke TM, Regalado M, Halfon N. Parent report of reading to young children. Pediatrics 2004; 113: S1944-51.

Regalado M, Sareen H, Inkelas M, Wissow LS, Halfon N. Parents’ discipline of young children: results from the National Survey of Early Childhood Health. Pediatrics 2004; 113: S1952-58.

Santoli JM, Huet NJ, Smith PJ, Barker LE, Rodewald LE, Inkelas M, et al. Insurance status and vaccination coverage among US preschool children. Pediatrics 2004;113: S1959-64.

Halfon N, Inkelas M, Mistry R, Olson LM. Satisfaction with health care for young children. Pediatrics 2004; 113: S1965-72.

Bethell C, Reuland CHP, Halfon N, Schor EL. Measuring the quality of preventive and developmental services for young children: national estimates and patterns of clinicians’ performance. Pediatrics 2004; 113: S1973-83.

Berman S. Financing childhood health supervision services in the 21st century. Pediatrics 2004; 113: S1984-5.

Alpert JJ, Zuckerman PM, Zuckerman B. Mommy, who is my doctor? Pediatrics 2004; 113: S1985-7.

Margolis PA. Small steps and big leaps: implications of the National Survey of Early Childhood Health for improving the quality of preventive and developmental care for young children. Pediatrics 2004; 113: S1988-90.

Data warehouses or query systems that incorporate SLAITS data

• • The Data Resource Center for Child & Adolescent Healthexternal icon, a project of the Child and Adolescent Health Measurement Initiative (housed at the Oregon Health & Sciences University, Portland, OR). This site provides a wealth of information on the analysis, interpretation, use, and dissemination of data for a number of SLAITS modules.

• Child health care quality toolboxexternal icon: It provides resources to improve measurement and evaluation of quality in children’s health programs.

Other general resources or comparative studies related to SLAITS or telephone surveys (1997 – present)

Kempf AM, Remington PL. New challenges for telephone survey research in the Twenty-First Century. Annu Rev Public Health 2007; 28:113-26.

O’Connor, KS. Methodological issues with adding questions quickly to an on-going survey of children with special health care needs. Paper presented at the Workshop on Modifying Surveys in Response to Disruptions (American Statistical Association 2006 Strategic Initiative); March 15 – 16, 2007; Washington, D.C.

Meurer JR, Navon L, Redd SC, Gilmore LA, Butterfoss FD, Lara M, Cohn JH, Lachance LL. Childhood asthma surveillance by community coalitions. Health Promotion Practice 2006; 7: 77S-86S.

Blewett LA, Davern M. Meeting the need for state-level estimates of health insurance coverage: use of state and federal survey data. Health Serv Res 2006; 41 (3p1): 946-75.

Makuc D. Measurement of income in NCHS surveys. Paper presented at the 2006 National Center for Health Statistics Data Users Conference, July 10 – 12, 2006; Washington, D.C.

Cantor D, O’Hare BC, O’Connor KS. The use of monetary incentives to reduce non-response in Random Digit Dial telephone surveys. Paper presented at the Second International Conference on Telephone Survey Methodology (TSM II); January 11 – 15, 2006; Miami, FL.

Blewett LA, Good MB, Call KT, Davern M. Monitoring the uninsured: a state policy perspective. J Health Polit Policy Law 2004; 29:107-46.

Makuc D. Focus on prescription drug use: data from the National Center for Health Statistics. Paper presented at the 2004 AcademyHealth annual research meeting, San Diego, CA; June 6 – 8, 2004.

Harris KW. Source point data editing in health surveys. Working paper #38, United Nations Statistical Commission and Economic Commission for Europe, Conference of European Statisticians, work session on statistical data editing; October 20 – 22, 2003; Madrid, Spain.

Krawiec C, Egner M, Scheuren F. Employing the monthly Current Population Survey to create nontelephone household totals by state for SLAITS. Paper presented at the 2002 American Statistical Association (Joint Statistical Meetings) meeting; New York, New York. Abstract #300876.

Harris KW. Use of data editing and multiple imputation in health surveys. Working paper #38, Statistical Commission and Economic Commission for Europe, Conference of European Statisticians, UNECE work session on statistical data editing; May 27 – 29, 2002; Helsinki, Finland.

O’Connor KS, Richardson TL, Blumberg SJ, Cynamon M. SLAITS: a new state and local data collection tool of the NCHS. Poster presented at the annual meeting of the Academy for Health Services Research and Health Policy; June 23 – 25, 2002; Washington, D.C. (Acad Health Serv Res Health Policy Meet 2002; 19:31). Also presented at the annual meeting of the Metropolitan Washington Public Health Association; April 3, 2002; Washington, D.C.

Wooldridge J, Hill I, Harrington M, Kenney GM, Hawkes C, Haley JM. Interim evaluation report: Congressionally mandated evaluation of the State Children’s Health Insurance Program. Submitted to the Department of Health and Human Services Office of the Secretary, Assistant Secretary for Planning and Evaluation, by Mathematica Policy Research, Inc., and the Urban Institute. Contract No.: HHS-100-01-0002, MPR Inc. No.: 8782-110external icon.

Schloman BF. Using health statistics: a Nightingale legacyexternal icon. Online J Issues Nurs, article published August 31, 2001.

Richardson TL, Blumberg SJ, Cynamon M, Ezzati-Rice T. Tracking the uninsured–evolving issues and new challenges. Paper presented at the 129th Annual Meeting of the American Public Health Association; October 21-25, 2001; Atlanta, GA.

Richardson TL, Blumberg SJ, Cynamon M, Ezzati-Rice T. SLAITS: a new state and local data collection tool of the NCHS. Poster presented at the 129th Annual Meeting of the American Public Health Association; October 21-25, 2001; Atlanta, GA.

Anderson JE, Lentine D, Knight SL, Blumberg SJ, Fichtner R. Measuring HIV/STD risk behaviors: two telephone survey pretests conducted in 2000. Proceedings of the Annual Meeting of the American Statistical Association (JSM); August 5 – 9, 2001.

Blumberg SJ, Cynamon ML, Osborn L, Olson L. The impact of touch-tone data entry in telephone interviews of HIV/STD risk behaviors, presented at the 56th annual research meeting of the American Association for Public Opinion Research, May 2001, Quebec, Montréal, Canada.

Blumberg SJ, Cynamon M. Misreporting Medicaid enrollment: results of three studies linking telephone surveys to state administrative records. In: Cynamon M, Kulka R, editors. Proceedings of the Seventh Conference on Health Survey Research Methods; September 24-27, 1999, Williamsburg, VA. pp. 180-6.

Madans J, Ezzati-Rice T, Cynamon M, Blumberg SJ. Targeting approaches to state-level estimates pdf icon[PDF – 4.7 MB]. In: Cynamon M, Kulka R, editors. Proceedings of the Seventh Conference on Health Survey Research Methods; September 24-27, 1999; Williamsburg, VA. pp. 224-30.

Ezzati-Rice T, Cynamon M, Blumberg SJ, Madans JH. Use of an existing sampling frame to collect broad-based health and health-related data at the state and local level pdf icon[PDF – 40 KB]. Paper presented at the 1999 Federal Committee on Statistical Methodology Research Conference; November 15 – 16, 1999; Arlington, VA.

Halfon N, Inkelas M, DuPlessis H, Newacheck PW. Challenges in securing access to care for children. Health Aff (Millwood) 1999; 18:48-63.

Halfon N, Inkelas M, Newacheck PW. Enrollment in the State Child Health Insurance Program: a conceptual framework for evaluation and continuous quality improvement. The Millbank Quarterly 1999; 77: 181-204.

Brown BV. Tracking the well-being of children within states: the evolving Federal role in the age of devolution. The Urban Institute 1998; Series A, No. A-21.

Sorenson AW, Hallfrisch J, Morabia A. Is one national health and nutrition survey enough for state and local needs? Nutrition Today 2005; 40: 84-7.

Riley T. How will we know if CHIP is working? Health Aff (Millwood) 1999; 18:64-6.

Letter from the National Committee on Vital & Health Statistics to the Honorable Dr. Donna Shalala, Secretary of the Department of Health and Human Servicesexternal icon (as of September 1998). Endorses the use and adaptation of the SLAITS mechanism to collect, monitor, and evaluate data for the State Children’s Health Insurance Program (SCHIP).

Nelson DE, Thompson B, Smith SM, Harris JR, Madans J, Hunter EL. Monitoring system change: a new need for an old tool. Health Aff (Millwood) 1997; 16(5):134-138.

Workshops on how to access or use SLAITS data

Luke JV, Blumberg SJ. Workshop on using the National Survey of Children’s Health dataset: practical applications. Presented at the 12th Annual Maternal and Child Health Epidemiology Conference; December 6 – 8, 2006; Atlanta, GA.

Bramlett MD, Luke JV. Advanced workshop on analyzing data from the National Survey of Children’s Health. Presented at the 2006 National Center for Health Statistics Data User’s Conference; July 10 – 12, 2006; Washington, D.C.

Blumberg SJ. Workshop on the National Survey of Children’s Health. Presented at the 11th Annual Maternal and Child Health Epidemiology Conference; December 7 – 9, 2005; Miami, FL.

Books that mention or describe the SLAITS data collection mechanism

Boslaugh S. Secondary data sources for public health: a practical guide. 1st ed. New York: Cambridge University Press; 2007. pp. 47, 60 – 64. (Chapter 4, Data on multiple health topics).

National Research Council, Panel for the Workshop on the State Children’s Health Insurance Program, Division of Behavioral and Social Sciences and Education, Committee on National Statistics, Leibowitz AA, Pollack ES, eds. Data needs for the state children’s insurance program. Washington, D.C.: National Academy Press; 2002. pp. 11, 59, 60. (Chapter 2, Estimating eligibility; Appendix C, Brief description of national surveys mentioned at the workshop).

Demlo LK, Gentleman JF. Morbidity data. In: O’Carroll PW, Yasnoff WA, Ward ME, Ripp LH, Martin EL, eds. Public health informatics and information systems. New York: Springer-Verlag New York Inc.; 2003. pp. 288, 292-3, 308-9.

Johantgen M. Appendix B: Selected health data sources. In: Waltz CF, Strickland OL, Lenz ER. Measurement in nursing and health research. New York: Springer Publishing Company Inc.; 2005. pp. 428.

National Research Council and Institute of Medicine, Committee on Evaluation of Children’s Health, Board on Children, Youth, and Families, Division of Behavioral and Social Sciences and Education. Children’s health, the nation’s wealth: assessing and improving child health. Washington, D.C.: The National Academies Press; 2004. pp. 94 -5, 187-8. (Chapter 4, Measuring children’s health; Chapter 6, Developing state & local data systems).

Masters theses or doctoral dissertations

(listed alphabetically by last name)

Bala-Brusilow, Cynthia. A study of the associations between childhood obesity and three forms of social capital.external icon Detroit (MI): Wayne State University, Department of Sociology; October 2010. Doctor of Philosophy degree, analyzed 2003 NSCH data.

Batan, Marilyn Cochon. Assessing the relationship between socioeconomic variables and risk of overweight among children 6 years of age. Richmond (VA): Virginia Commonwealth University, Department of Epidemiology & Community Health; December 2005. Master of Science degree, analyzed 2003 NSCH data. URN etd-08012006-173820

Bezner, Stephanie K. Structural equation model of variables associated with family functioning among a nationally representative sample of families with a child with autism. Denton (TX): University of North Texas, Department of Psychology; August 2009. Doctor of Philosophy degree in Clinical Psychology, analyzed 2003 NSCH data. OCLC 489096023

Botelho, Gregory Gordon. The changing face of U.S. children’s mental health: exploring the dynamics and characteristics of childhood autism, ADHD, and depression diagnoses and treatment.external icon Washington DC: Georgetown University, Graduate School of Arts and Sciences, Georgetown Public Policy Institute; April 2007. Master of Public Policy degree, analyzed 2003 NSCH data.

Brown, Betty G. Children’s special health care needs, mothers’ coping and social support, and maternal mental health. Phoenix (AZ): Arizona State University, Department of Sociology; December 2007. Doctor of Philosophy degree, analyzed 2003 NSCH data.

Cook-Smith, Jessica N. An ecologic analysis of socioeconomic and environmental determinants of overweight and obesity prevalence among US adolescents using Bayesian small area estimation with 2003 and 2007 National Survey of Children’s Health. Atlanta (GA): Emory University, Rollins School of Public Health, Department of Epidemiology; 2012. Master of Public Health degree, analyzed 2003 and 2007 NSCH data.

Croake, Sarah. State mandates for mental health parity: an effective tool in reducing unmet need for mental health care?external icon Washington DC: Georgetown University, Graduate School of Arts and Sciences, Georgetown Public Policy Institute; April 2008. Master of Public Policy degree, analyzed 2005-2006 NS-CSHCN data.

Culver, Katherine D. Association between parental role-modeling of physical activity and child’s physical activity: A cross-sectional study of NSCH 2003 data. Richmond (VA): Virginia Commonwealth University, Department of Epidemiology & Community Health; April 2009. Master of Public Health degree, analyzed 2003 NSCH data.

Cunningham, Adrienne. The impact of socioeconomic status on the asthma prevalence in minority children. Georgia State University; 2009. Master of Public Health degree, analyzed 2003 NSCH data.

DeRigne, LeaAnne. The influence of health insurance on the unmet mental health needs of children with special health care needs. St. Louis, MO: Washington University; 2006. Doctor of Philosophy degree in social work, analyzed 2001 NS-CSHCN data. Publication number AAT 3238644

Eldanaf, Naja Jamil. The association between breast feeding and being overweight in children. Richmond (VA): Virginia Commonwealth University, Department of Epidemiology & Community Health; April 2006. Master of Public Health degree, analyzed 2003 NSCH data. URN etd-05022006-150331

Erickson, Erin. Outcomes associated with breastfeeding: A multivariate regression analysis of the National Survey of Children’s Health. University of Minnesota, Department of Epidemiology; 2010. Master of Public Health degree, analyzed 2003 NSCH data.

Ghandour, Reem. Mental health symptoms among children with special health care needs: prevalence, correlates, and mediation of internalizing and externalizing symptoms. Baltimore, MD: Johns Hopkins University, Bloomberg School of Public Health; Department of Population, Family, and Reproductive Health; May 2009. Doctor of Public Health degree, analyzed 2001 NS-CSHCN data.

Glassner, Jorie A. Assessing the relationships between household mold exposure and asthma status in children nationwide sampled by the 2003 National Asthma Survey.external icon Urbana (IL): University of Illinois, Department of Kinesiology & Community Health, 2010. Master of Science degree, analyzed 2003 NAS data.

Mandic, Carmen Gomez. State-level family support: impacts on children with special health care needs. Boston (MA): Harvard University, School of Public Health, Department of Society, Human Development, and Health; 2008. Doctor of Science degree, analyzed 2001 NS-CSHCN data.

Marti-Morales, Madeline. Care coordination, family-centered care and functional ability in children with special health care needs in the United States. Walden University, College of Health Sciences; 2011. Doctor of Philosophy degree in Public Health, analyzed 2005-2006 NS-CSHCN data.

McDonald, Kate. Transitions to adulthood for children with special health care needs. University of Arizona, Mel and Enid Zuckerman College of Public Health; 2011. Doctor of Public Health degree, analyzed 2007 SATH data.

Pugsley, River Anne. The relationship between breastfeeding and the development of asthma in early childhood. Richmond (VA): Virginia Commonwealth University, Department of Epidemiology & Community Health; August 2005. Master of Public Health degree, analyzed 2003 NSCH data. URN etd-10272005-122958

Skoro, Nevena. Delayed and foregone care for children with special health care needs in Virginia: A cross-sectional study using 2005-2006 NS-CSHCN.external icon Richmond (VA): Virginia Commonwealth University, Department of Epidemiology & Community Health; May 2009. Master of Public Health degree, analyzed 2005-2006 NS-CSHCN data.

Spears, Amanda Page. The Healthy People 2010 criteria for the care of children with special health care needs: an effective national policy for meeting mental health care needs?external icon Washington DC: Georgetown University, Graduate School of Arts and Sciences, Georgetown Public Policy Institute; April 2007. Master of Public Policy degree, analyzed 2001 NS-CSHCN data.

Tarabek, Jessica. Relationship satisfaction and mental health of parents of children with autism: A comparison of autism, ADHD, and normative children. Blacksburg (VA): Virginia Polytechnic Institute and State University (Virginia Tech), Department of Human Development; February 2011. Master of Science degree, analyzed 2007 NSCH data. URN etd-02142011-181107

Brochures

Well-Being in Texas, An Overview