Thalassemia: Materials and Multimedia
Video Series on Living with Thalassemia
Aaron Cheng’s family learned he had thalassemia when he was 8 months old. In these videos, Aaron shares how he learned about thalassemia and overcame many challenges in managing his blood disorder. Aaron also shares how thalassemia influenced his passion to become a physician. Watch the four part series below: Learning about Thalassemia, Transitioning from Pediatric to Adult Thalassemia Care, Managing Transfusions and Chelation, and Living with Thalassemia.
Webinars
Webinar and Rounds Archives
View webinars and virtual rounds on a variety of topics that focus on a collection of inherited blood disorders called the thalassemias.
Social Media Graphics
Materials
Thalassemia Transfusion Resources
Thalassemia transfusion resources developed for healthcare providers, blood banks, and persons with thalassemia and their families.
- Transfusion Management of Beta (β) Thalassemia: Initiating Regular Transfusions
A Thalassemia Resource for Healthcare Providers - Transfusion Management of Beta (β) Thalassemia: Initiating Regular Transfusions
A Thalassemia Resource for People with Thalassemia and their Caregivers - Transfusion Management of Beta (β) Thalassemia: Developing a Transfusion Plan
A Thalassemia Resource for Healthcare Providers - Transfusion Management of Beta (β) Thalassemia: Understanding a Transfusion Plan
A Thalassemia Resource for People with Thalassemia and their Caregivers
Materials from Other Organizations
Guide To Living With Thalassemia [PDF – 2.63 MB]
Learn more about how to live healthy with thalassemia by viewing this guide.
School Toolkit for Thalassemia [PDF – 1.53 MB]
View this school toolkit to learn more about how to best manage school and thalassemia transfusions for children who have thalassemia.
