Health Insurance Coverage

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The majority of male Registry participants with hemophilia had private insurance (53% for both hemophilia A and B). Thirty-nine percent of males had public insurance (40% hemophilia A; 36% hemophilia B). Additionally, 4% of males with hemophilia A or B were covered by some other form of health insurance and 3% were uninsured (2% hemophilia A; 7% hemophilia B) (Figure 8). Private insurance includes commercial insurance and military insurance. Public insurance includes Medicaid, Medicare, state programs, and Indian Health Services.

Figure 8. Distribution of male Registry participants with hemophilia, by insurance and hemophilia type

Figure 8. Distribution of male Registry participants with hemophilia, by insurance and hemophilia type
	All		Hemophilia A		Hemophilia B
Private	4,890	53.3%	3,886	53.4%	1,004	52.9%
Public	3,576	39.0%	2,897	39.8%	679	35.8%
Insured Other	378	4.1%	308	4.2%	70	3.7%
Uninsured	275	3.0%	138	1.9%	137	7.2%
Unknown	54	0.6%	47	0.7%	7	0.4%

Health Insurance Coverage by Age

Both private and public health insurance are utilized as the primary form of insurance among male hemophilia participants in the Registry < 2 years of age (52% and 45%, respectively, for hemophilia A and 48% and 45%, respectively, for hemophilia B) and 2–10 years of age (47% and 49%, respectively, for hemophilia A and 48% and 46%, respectively, for hemophilia B). More than 55% of male Registry participants (both hemophilia A and B) between 11 and 64 years of age were using private insurance. In contrast, among Registry participants 65 years of age or older, 73% of hemophilia A participants and 76% of hemophilia B participants were using public insurance (Figures 9 and 10).

Figure 9. Distribution of male Registry participants with hemophilia A, by primary insurance and age group

Figure 9. Distribution of male Registry participants with hemophilia A, by primary insurance and age group
	Private		Public		Insured Other		Uninsured		Unknown
<2 years	150	51.7%	129	44.5%	*	*	*	*	6	2.1%
2–10 years	814	46.7%	862	49.4%	47	2.7%	11	0.6%	10	0.6%
11–19 years	961	54.6%	694	39.4%	80	4.5%	19	1.1%	6	0.4%
20–44 years	1402	59.6%	716	30.4%	128	5.4%	85	3.6%	21	1.0%
45–64 years	505	57.5%	313	35.6%	38	4.3%	*	*	*	*
65+ years	54	21.5%	183	72.9%	*	*	*	*	*	*

* Counts less than six have been suppressed to protect patient confidentiality

Figure 10. Distribution of male Registry participants with hemophilia B, by primary insurance and age group

Figure 10. Distribution of male Registry participants with hemophilia B, by primary insurance and age group
	Private		Public		Insured Other		Uninsured		Unknown
<2 years	38	47.5%	36	45.0%	*	*	*	*	*	*
2–10 years	187	47.5%	181	45.9%	6	1.5%	*	*	*	*
11–19 years	258	58.2%	144	32.5%	13	2.9%	*	*	*	*
20–44 years	329	58.0%	144	25.4%	29	5.1%	*	*	*	*
45–64 years	175	55.6%	100	31.7%	19	6.0%	*	*	*	*
65+ years	17	17.3%	74	75.5%	*	*	*	*	*	*