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Personal Genomics

• Personalized Medicine Coalition
• Special personal genomics issue, Genetics in Medicine

 

Also see Genetic Testing and Evidence-Based Recommendations

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Pharmacogenomics

• One Size Does Not Fit All: The Promise of Pharmacogenomics
• Pharmacogenomics Knowledge Base
• Pharmacogenetics Research Network
• Realizing the Potential of Pharmacogenomics: Opportunities and Challenges: Report of the Secretary’s Advisory Committee on Genetics, Health, and Society[PDF 1MB]

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Policy

Advisory Committees and Task Force

• Advisory committees:

  • Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children
  • Secretary's Advisory Committee on Genetics, Health, and Society
    • Realizing the Potential of Pharmacogenomics: Opportunities and Challenges: Report of the Secretary’s Advisory Committee on Genetics, Health, and Society[PDF 1MB]
    • U.S. System of Oversight of Genetic Testing: A Response to the Charge of the Secretary of Health and Human Services: Report of the Secretary’s Advisory Committee on Genetics, Health, and Society[PDF 2MB];

• Task Force:

  • Promoting Safe and Effective Genetic Testing in the United States 
  • Secretary's Advisory Committee on Genetic Testing: Recommendations for the Oversight of Genetic Test 

Policy Centers

• Genetics and Public Policy Center
• Institute for Ethics, American Medical Association
  
  

Policy Databases

• PHG Foundation Policy Database
• ELSI Genetics Resource Directory, World Health Organization
• Policy and Legislation Database, National Institutes of Health
• State Genetic Laws, National Conference of State Legislatures

Position Statements from Professional Organizations

• American College of Medical Genetics policy papers
• American Society of Human Genetics Policy Statement Archives
• Genetics & Public Policy Center Testimony & Statements
• HumGen International Review of Guidelines and Policy Statements[PDF 262KB]
• Statement of the European Society of Human Genetics on direct-to-consumer genetic testing for health-related purposes [PDF 148.93 KB]
  

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Publications

• Peer-Reviewed Scientific Articles

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