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Resources and Guidance for Healthcare Providers Caring for Infants Affected by Zika Virus

Caregivers of children with Zika-related complications are often overwhelmed and are in need of support, guidance, and care coordination with a medical home. Healthcare providers should work closely with parents and families to monitor their infant’s development and determine what choices are available and how to best care for their infant’s condition and needs.

Many of the short and long-term effects of prenatal Zika infection on a baby are unknown. Until we learn more, recommendations from the August 2016 MMWR, Interim Guidance for the Clinical Evaluation and Management of Infants with Congenital Zika Virus Infection — United States, August 2016, should be followed for any baby diagnosed with congenital Zika virus infection.

Download the companion evaluation and outpatient management tool.

Additional Resources

Early Intervention
Early intervention (before school age) can have a significant impact on a child’s ability to learn new skills and the support r families have to help the child. Early intervention includes a range of targeted services to help young children who have developmental delays or specific health conditions.  Services can include special instruction, physical and occupational therapy, speech and language therapy, and other services to help young children. Every US state and territory provides these services through its own comprehensive, coordinated program. Federally funded early intervention services may be offered for free or at low cost to families. Health care providers should refer families to early intervention as soon as possible to ensure maximum benefit. Visit CDC’s Early Intervention Contacts page for early intervention contacts by state, commonwealth or territory.

Bright Futures
Bright Futures is a national initiative of the American Academy of Pediatrics to promote and improve the health and well-being of infants, children, and adolescents. The site includes publications, training tools, and distance learning materials.

Guidelines for Health Supervision of Infants, Children, and Adolescents, Third Edition
This guideline provides detailed information on well-child care for healthcare practitioners.

Developmental and Behavioral Pediatrics Online
Developmental and Behavioral Pediatrics Online is a website for professionals interested in child development and behavior in a medical setting. The website focuses on primary care development and behavior, including early intervention and screening, and provides articles, handouts, and materials about developmental disabilities developed for professionals and parents. It also offers a practice section with information to support primary and specialty healthcare practice.

CDC’s Hearing Loss Resources for Health Professionals
This page has tools and information about hearing loss for health professionals, including free educational materials to give to patients.

Birth to 5: Watch Me Thrive
A coordinated federal effort to encourage healthy child development, behavioral and developmental screening for children, and support for the families and providers who care for them.

AAP Medical Home
A medical home is an approach to providing comprehensive and high quality primary care that facilitates partnerships between patients, clinicians, medical staff, and families. This website provides tools, resources, state specific information, and promising practices in pediatric medical home implementation.

Vision Loss Chapter from Visual Impairments: Determining Eligibility for Social Security Benefits
This chapter reviews the major issues in testing infants' and children's visual acuity, fields, and contrast sensitivity and offers some recommendations for testing to ensure fair evaluation of their visual abilities.

KanLovKids Low Vision site
This site hosted by the Kansas State School for the Blind and Lions Club International provides information and links to resources about low vision devices.

National Center for Children's Vision and Eye Health
A major resource about children’s vision for providing leadership development, health promotion, communication and marketing, as well as education and training to public and private entities throughout the United States.

Depression in Mothers: More than the Blues [PDF-608K]
A toolkit created by the Substance Abuse and Mental Health Services Administration for family service providers that help mothers struggling with depression.

Children & Youth with Special Health Care Needs
The Association of Maternal & Child Health Programs is a national center dedicated to improving healthcare coverage and financing for children and youth with special healthcare needs.

Leadership Education in Neurodevelopmental and Related Disabilities (LEND) programs
This professional development program enhances the clinical expertise and leadership skills of professionals from a variety of disciplines, who are dedicated to caring for children with neurodevelopmental and other related disabilities, including autism.

Samhsa.gov/dtac/zika –practical steps to ease stress and anxiety about the Zika virus. Resources for public health official, pregnant women, parents, etc.
A toolkit for family service providers

Psychosocial support for pregnant women and for families with microcephaly and other neurological complications in the context of Zika virus: Interim guidance for healthcare providers [PDF-1M]
This document was developed in early 2016, when the causal link between Zika virus infection and microcephaly had not yet been established. Designed for healthcare practitioners and anyone else providing support to pregnant women, this publication offers guidance in communication techniques; emotional and behavioral distress reactions; and ways to provide support, teach stress management techniques, and offer advice on parenting to expectant and new mothers.

Supporting Children with Special Healthcare Needs Planning Resource [PDF-300K]
This matrix from the U.S. Department of Health and Human Services, Office of the Assistant Secretary for Preparedness and Response highlights some of the existing federal and national services and programs for supporting children with special healthcare needs.

Promoting Stress Management for Pregnant Women during the Zika Virus Disease Outbreak: A Resource for Healthcare Providers

Meeting Webcast: Clinical Evaluation & Management of Infants with Congenital Zika Infection (July 21 and July 22, 2016)
During this meeting, pediatric health specialists, non-governmental partners, and federal officials gathered at CDC to discuss clinical evaluation and management of infants with congenital Zika virus infection in the United States. CDC considered these discussions on clinical evaluation and management when developing interim guidance for healthcare providers.

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