Project - National Neurological Conditions Surveillance System (NNCSS)
Millions of peopleExternal of all ages across the United States face the substantial and sometimes devastating consequences of neurological disorders and conditions.
In 2016, as part of the 21st Century Cures ActExternal, Congress authorized Centers for Disease Control and Prevention (CDC) to initiate development of a National Neurological Conditions Surveillance System (NNCSS). Congress has appropriated $5 million for the NNCSS as part of the FY 2019 spending bill for the U.S. Department of Health and Human Services.
How will the NNCSS work?
- The $5 million appropriated in FY 2019 will enable CDC to begin its NNCSS developmental and implementation work. This will include:
- Exploring data needs and identifying available data sources
- Determining how to build an effective system that will identify gaps in desired data and explore approaches
- Collaborating and communicating with partners, stakeholders, and Congress about the status and available details of the NNCSS.
- With this investment, consistent with the 21st Century Cures Act, the NNCSS will collect and synthesize data to help increase understanding of neurological disorders and to support further neurologic research.
- There will be three stages of the NNCSS, which CDC will carry out in association with partners and stakeholders:
- Demonstrations using two neurological conditions, multiple sclerosisExternal and Parkinson’s diseaseExternal, to determine how we can have the biggest impact by exploring innovative methods and complex data sources, and capturing lessons learned, to determine which approaches will help efficiently extend the NNCSS to other neurological conditions
- Building out the NNCSS for multiple sclerosis and Parkinson’s disease using successful approaches from the demonstration projects, and checking methods, costs, and opportunities, as resources allow
- Using lessons learned to extend the NNCSS to other neurological conditions, as resources allow
CDC looks forward to helping to develop greater understanding of neurological disorders and conditions to improve health and economic consequences for those who are affected.