CDC is building an approach to the surveillance of neurologic conditions in three stages. Stage 3 is dependent upon resources.

COVID-adjusted dates show delays caused by extensive deployments of staff to support CDC’s ongoing COVID-19 response. However, progress has also been gained in terms of access to additional data sources as well as efficiencies in receiving data due to CDC’s COVID-19 response and Data Modernization Initiative.

NNCSS Project Plan: Stage 1: Learn What Works, Stage 2: Build out NNCSS, Stage 3: Extend NNCSS

National Neurological Conditions Surveillance System (NNCSS) Project Plan

Stage 1: Learn What Works

Conduct demonstration projects of two high-burden neurological conditions: multiple sclerosis (MS) and Parkinson’s disease (PD).

  • Identify, assess, and select data sources and case definitions.
  • Use case definitions in data sources to produce initial MS and PD prevalence estimates.
  • Propose approaches for NNCSS build out and extension.

Initial Plan: October 2018 to September 2020

COVID-adjusted: October 2018 to August 2023

Stage 2: Build Out NNCSS

Implement approaches to enable ongoing surveillance of MS and PD.

  • Maintain surveillance of MS and PD prevalence and add other priorities (for example, mortality).
  • Add data sources and refine approaches and cost estimates.
  • Explore criteria to help prioritize conditions to add to NNCSS.

Initial Plan: October 2020 to September 2021

COVID-adjusted: January 2022 to September 2023

Stage 3: Extend NNCSS

Implement approaches to initiate surveillance of additional neurological conditions.

  • Use NNCSS approaches to produce surveillance estimates for new conditions.
  • Continue surveillance for MS and PD.
  • Review data sources, methods, and approaches to ensure they remain state-of-the-art.

Initial Plan: October 2021 and beyond

COVID-adjusted: September 2024 and beyond