Summary of NCHS Surveys and Data Collection Systems

National Health Interview Survey on Disability (NHIS-D) 1994-1995

• The NHIS-D was conducted to meet overlapping data needs of four DHHS offices to provide a useful set of measures while maintaining a balance between the social, administrative, and medical considerations involved in disability measurement. The NHIS-D was not limited to one definition of disability; therefore, it allowed analysts from varying programs to combine data items in different ways to meet specific agency or program needs. https://www.cdc.gov/nchs/nhis/nhis_disability.htm

National Hispanic Health and Nutrition Examination Survey (HHANES) 1982-1984

• The HHANES was a one-time health examination survey focused on three major subgroups of the Hispanic population – Mexican Americans in the southwest, Cubans in Miami (Dade County) Florida, and Puerto Ricans in the New York City area. Hispanics were included in past health and nutrition examinations, but not in sufficient numbers to produce estimates of the health of Hispanics in general, or specific data for subgroups. https://www.cdc.gov/nchs/nhanes/hhanes.htm

NHANES Epidemiologic Follow-up Study (NHEFS) 1982-1984; 1986, 1987, 1992

• The NHEFS was designed to investigate the relationship between clinical, nutritional, and behavioral factors assessed in the first National Health and Nutrition Examination Survey (1971-1975), and subsequent morbidity, mortality, and hospital utilization, as well as changes in risk factors, functional limitation, and Institutionalization. https://www.cdc.gov/nchs/nhanes/nhefs/nhefs.htm

NHANES National Youth Fitness Survey (NNYFS) 2012

• The NNYFS was conducted to collect data on physical activity and fitness levels in U.S. children aged 3-15. The survey provided an evaluation of their health and fitness levels through interviews and fitness tests. https://www.cdc.gov/nchs/nnyfs.htm

National Hospital Discharge Survey (NHDS) 1965-2008

• The NHDS was a national probability survey designed to meet the need for information on characteristics of inpatients discharged from non-Federal short-stay hospitals in the United States. https://www.cdc.gov/nchs/nhds.htm

National Nursing Home Survey (NNHS) 1973-74, 1977, 1985, 1995, 1997, 1999 and 2004

• The NNHS was a continuing series of national sample surveys of nursing homes, their residents, and staff. Although each of these surveys emphasized different topics, they all provided some common basic information about nursing homes, their residents, and staff. All nursing homes included in this survey had at least three beds and were either certified (by Medicare or Medicaid) or had a state license to operate as a nursing home. https://www.cdc.gov/nchs/nnhs.htm

National Health Provider Inventory (NHPI) 1991

• The NHPI is a comprehensive national listing of health care facilities, including nursing homes, home health agencies, hospices, and licensed residential care facilities. Data in the inventory include information on the services, location, staff, and other characteristics of the facilities and provides a sampling frame of facilities for other health care provider surveys.

National Home and Hospice Care Survey (NHHCS) 1992-1994, 1996, 1998, 2000, and 2007

• The 2007 NHHCS was one in a continuing series of nationally representative sample surveys of U.S. home health and hospice agencies. It was designed to provide descriptive information on home health and hospice agencies, their staffs, services, and patients. https://www.cdc.gov/nchs/nhhcs.htm

National Survey of Ambulatory Surgery (NSAS) 1994-1996; 2006

• The NSAS provided the only national data on ambulatory surgical care in hospital-based and freestanding ambulatory surgery centers. Efforts are now underway to include ambulatory surgery centers in the National Hospital Ambulatory Medical Care Survey. https://www.cdc.gov/nchs/nsas.htm

National Nursing Assistant Survey (NNAS) 2004

• The NNAS was the first national study of nursing assistants working in nursing facilities in the U.S. The survey looked at the important role of nursing assistance in providing long-term care services for the growing elderly and chronically ill population, and provided new information needed to recruit, retain, and expand the paraprofessional long-term care workforce. https://www.cdc.gov/nchs/nnas.htm

National Home Health Aide Survey (NHHAS) 2007

• The NHHAS was the first national probability survey of home health aides, designed to provide national estimates of home health aides employed by agencies that provide home health and/or hospice care. The survey was conducted as a supplement to the 2007 National Home and Hospice Care Survey. https://www.cdc.gov/nchs/nhhas.htm

National Survey of Residential Care Facilities (NSRCF) 2010

• The NSRCF was a first time national data collection effort to gather information about the characteristics of residential care facilities, including assisted living residences, board and care homes, congregate care, enriched housing programs, homes for the aged, personal care homes, and shared housing establishments. https://www.cdc.gov/nchs/nsrcf.htm

National Maternal and Infant Health Survey (NMIHS) 1988; 1991

• The NMIHS collected data needed by Federal, State, and private researchers to study factors related to poor pregnancy outcomes, including low birthweight, stillbirth, infant illness, and infant death. The survey expanded on information available for birth, fetal death, and infant death vital records and was the first national survey that included data on the three pregnancy outcomes simultaneously. A longitudinal follow-up study was conducted in 1991 to obtain additional information about respondents from the 1988 survey. https://www.cdc.gov/nchs/nvss/nmihs.htm

National Mortality Follow-back Survey (NMFS) 1993

• The NMFS was conducted using a sample of U.S. residents who died in a given year to supplement the death certificate with information from a person familiar with the decedent’s life history. The information, sometimes enhanced by administrative records, provided a unique opportunity to study the etiology of disease, demographic trends in mortality, and other health issues. https://www.cdc.gov/nchs/nvss/nmfs.htm

National Employer Health Insurance Survey (NEHIS) 1994

• The NEHIS was the first federally sponsored survey designed to produce state estimates of employer-sponsored health insurance. The objective was to measure state and national levels of health insurance spending by employers; to provide baseline data at the state and national levels for monitoring trends in the employment-based health insurance system; and to provide data for prospective policy analysis of the effects of health care reform. https://www.cdc.gov/nchs/data/misc/employer.pdfpdf icon

National Survey of Early Childhood Health (NSECH) 2000

• The NSECH survey focused on the delivery of pediatric care to families with children under 3 years of age and the promotion of young children’s health by families in their homes.

National Survey of Children with Special Health Care Needs (CSHCN) 2001, 2005-2006, 2009-2010

• The CSHCN survey assessed the prevalence and impact of special health care needs among children in the U.S., and to evaluate change over time. The survey explored the extent to which children with special health care needs had medical homes, adequate health insurance, assess to needed services, and adequate care coordination.

National Asthma Survey (NAS) 2003

• The NAS examined the health, socioeconomic, behavioral, and environmental predictors that relate to better control of asthma. The study explored the content of care and health care expenditures of persons with asthma.

National Survey of Children’s Health (NSCH) 2003, 2007, 2011-2012

• The NSCH examined the physical and emotional health of children 0-17 years of age. Special emphasis was placed on factors that may relate to well-being of children, including medical homes, family interactions, parental health, school and after-school experiences, and safe neighborhoods.

Survey of Adult Transition and Health (SATH) 2007

• The NSATH was a nationwide survey looking at the health of young people who were 19 to 23 years old in 2007, whose parents were originally interviewed in 2001 in a previous SLAITS health survey when the subjects were 14 to 17 years old. The goal of the follow-up survey was to examine their current health care needs and transition from pediatric health care providers to adult health care providers.

National Survey of Adoptive Parents (NSAP) 2007

• The NSAP provided nationally representative estimates on the characteristics, pre-adoption experiences, and post-adoption support experiences of families of adopted children aged 0 to 17. These children were identified in other SLAITS surveys as being adopted through the U.S. foster care system, domestic private adoption agencies, or international adoption. .

National Survey of Adoptive Parents of Children with Special Health Care Needs (NSAPSN) 2008

• The NSAPSN survey focused on the delivery of pediatric care to families with children under 3 years of age and the promotion of young children’s health by families in their homes.

Survey of Pathways to Diagnosis and Services (SPDS) 2011

• SPDS provided nationally representative estimates on the characteristics of children with special health care needs aged 6-17 ever diagnosed with autism spectrum, intellectual disability or developmental delay. The survey examined, among other items, the emergence of symptoms, providers who made the diagnosis, and current and past treatment and services.

National Survey of Children in Non-Parental Care (NSCNC) 2013

• NSCNC provided nationally representative estimates on the characteristics, living arrangements, and service accessibility of non-institutionalized children who were living apart from their parents in the United States. Children in non-parental care were identified in the 2011-2012 National Survey of Children’s Health.

National Survey of the Diagnosis and Treatment of ADHD and Tourette Syndrome (NS-DATA) 2014

• NS-DATA assessed the diagnostic experiences as well as the service and treatment utilization of families raising children between 6 and 17 with Attention-Deficit/Hyperactivity Disorder and/or with Tourette Syndrome in the United States. The survey examined, among other items, the individuals involved in the diagnostic assessment, current medication and treatment, and school functioning and performance.