Links to Other Websites on Hemophilia

Publications

National Hemophilia FoundationExternal
The National Hemophilia Foundation (NHF) provides information for people affected by hemophilia, health care providers, and researchers. A free, confidential information resource center, called HANDIExternal, answers questions, makes referrals, provides literature and maintains an extensive library collection on hemophilia and other bleeding and clotting disorders. Information includes fact sheets, care guides, discussion groups, locations of local chapters, and more.

Hemophilia Federation of AmericaExternal
Hemophilia Federation of America assists and advocates for the hemophilia and bleeding disorders community. They provide several community-based programs including a wide range of adult outreach, as well as broad-based support for families.

World Federation of HemophiliaExternal
The World Federation of Hemophilia builds coalitions of patients, health care providers, and governments to achieve sustainable care and provides information to increase the understanding of hemophilia worldwide. They provide materials for patients in several languages, trainings, and educational programs.

The American Society of HematologyExternal

National Institutes of HealthExternal
That National Institutes of Health provides information about hemophilia, including causes, symptoms, diagnosis, and treatments.

Canadian Hemophilia SocietyExternal
The Canadian Hemophilia Society provides information and educational materials.