Hemophiliais a life-long disorder that occurs in 1 out of 5,032 live male births in the United States. An individual lives each day of his life with the complications and issues that result from bleeding or treating the disorder.
This course will help hemophilia treatment center staff to promote a family-centered approach in the diagnosis, assessment, and management of hemophilia and in addressing potential complications from hemophilia and its treatment.
One Family's Response
Finding out that our son has hemophilia was one of the scariest and most difficult times in our lives. Neither of us knew this disease was in our family! Knowing that this is something that we've passed on to our son is especially hard. It has been four months since the diagnosis, and we are slowly coming to terms with what our life will be, but we know there's a rough road ahead.
Welcome to the HTC
Patients with hemophilia and their families face life- long concerns in addition to sporadic, unpredictable times of crisis. In chronic illness, the response of parents and family members of patients are very different; there is often a difference in adaptations, lifestyle changes, and relationships with health care providers. The team approach utilized in the U.S. at comprehensive hemophilia treatment centers (HTCs) is designed with patients and families as partners and at the center of all aspects of treatment.
The demands and complications of hemophilia change throughout the life span. This requires constant flexibility and continuing resourcesfor the individual and his family to thrive. Health care providers who understand the implications of hemophilia for each member of the family and at each stage of life have the ability to support the patient and foster the best quality of health in every stage of life.
This course is designed to enhance hemophilia patient care by increasing the knowledge and skill of providers who are new to hemophilia treatment. The course is intended to serve as a foundation to build additional skills through continuing education and clinical practice.
By taking this course, you will learn how to
- Recognize elements of hemophilia patient diagnosis
- Determine proper treatment options to prevent and treat bleeding episodes
- Identify potential complications associated with hemophilia
- Recognize issues that might arise with patients and their family members, as a result of diagnosis
The course is divided into four modules:
- Page last reviewed: February 6, 2017
- Page last updated: November 23, 2016
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