Race/Ethnicity

The racial distribution of Registry and HTC PP participants were similar (Figure 5). Overall, 80% of Registry participants were white (hemophilia A: 79%; hemophilia B: 83%), 12% were black or African-American (hemophilia A: 13%; hemophilia B: 10%), and 5% were Asian, American Indian/Alaska Native (AI/AN), or Native Hawaiian or other Pacific Islander (NH/PI) (hemophilia A: 5%; hemophilia B: 5%)  (Figure 5).

The majority of participants in the Registry (84%) and HTC PP (83%) were non-Hispanic compared to Hispanic (15% Registry; 16% HTC PP), with less than 1% of participants with unknown ethnicity for both Registry and HTC PP (Figure 6).

Figure 5. Racial distribution of male Registry and HTC PP participants
Figure 5. Racial distribution of male Registry and HTC PP participants

Figure 5. Racial distribution of male Registry and HTC PP participants
HTC PP Registry
Race n % n %
White 16,734 80.9% 7,292 79.5%
Black or African American 2,345 11.3% 1,112 12.1%
Asian 756 3.7% 325 3.5%
American Indian/Alaska Native 206 1.0% 74 0.8%
Native Hawaiian or Other Pacific Islander 90 0.4% 40 0.4%
More than one of these 231 1.1% 142 1.5%
Unknown 322 1.6% 188 2.0%
Figure 6. Ethnic distribution of male Registry and HTC PP participants with hemophilia
Figure 6. Ethnic distribution of male Registry and HTC PP participants with hemophilia

Figure 6. Ethnic distribution of male Registry and HTC PP participants with hemophilia
HTC PP Registry
Ethnicity n % n %
Hispanic, Latino/a, or Spanish origin 3,392 16.4% 1,375 15.0%
Not Hispanic, Latino/a, or Spanish origin 17,160 83.0% 7,717 84.1%
Unknown 132 0.6% 81 0.9%